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Viewing 7 posts - 1 through 7 (of 7 total)
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  • Lisa27
    Participant
    November 9, 2015 at 12:00 pm
    Post count: 8
    in reply to: Newly diagnosed with Hyperthyroidism and most likely Graves #1184025

    Ok so I just left one if the top Graves Eye Opthamogist and he says I have an extremely complex medical picture and he is not convinced I have Graves Disease. My TSI was normal, and he said if I were to start methimazole mow I will become hypo rapidly as my free T4 is 1.1, but free t3 is 4.0 high and TSH low. So, I am going to see a top thyroid Graves endocrinologist for a second opinion Dec.2. I am now incredibly confused. He is not quite sure whats going on.

    Lisa27
    Participant
    November 4, 2015 at 1:32 pm
    Post count: 8
    in reply to: Newly diagnosed with Hyperthyroidism and most likely Graves #1184023

    I am wondering if there are other questions I should ask my doctor before starting methimazole? Are there other treatment options or is this something I should wait and see?

    Lisa27
    Participant
    November 2, 2015 at 6:39 pm
    Post count: 8
    in reply to: Newly diagnosed with Hyperthyroidism and most likely Graves #1184021

    I am just starting methimazole 10 mg this week sometime. I have an appointment with a Graves Disease Opthamologist at University of Michigan. My endo is also at u of M. My TSH was off back in May at my Promary Care doctor. He referred me to endo here in Lansing and I asked to go to the specialty endocrinology clinic at U if M. I read enough stories to know i needed to go to best place. I need to still see cardiologists.

    Lisa27
    Participant
    November 2, 2015 at 6:39 pm
    Post count: 8
    in reply to: Newly diagnosed with Hyperthyroidism and most likely Graves #1184020

    I am just starting methimazole 10 mg this week sometime. I have an appointment with a Graves Disease Opthamologist at University of Michigan. My endo is also at u of M. My TSH was off back in May at my Promary Care doctor. He referred me to endo here in Lansing and I asked to go to the specialty endocrinology clinic at U if M. I read enough stories to know i needed to go to best place. I need to still see cardiologists.

    Lisa27
    Participant
    October 29, 2015 at 12:49 pm
    Post count: 8
    in reply to: Newly diagnosed with Hyperthyroidism and most likely Graves #1184017

    Hopefully, I will know when that happens as I have alot of thise same symptoms now with heart palpitations and high resting heart rate and brain fog. I haven’t lost any weight unfortunately and can’t afford to put on more. it happen quick due to my T4 being low? Also, will he lower dose? Won’t methimazole bring T3 and and T4 down? I am praying I do not have eye disease. Does anyone else have low T4?

    Thank you!

    Lisa27
    Participant
    October 28, 2015 at 8:20 pm
    Post count: 8
    in reply to: Newly diagnosed with Hyperthyroidism and most likely Graves #1184015

    I spoke to my doctor today who confirmed the Graves Diseade diagnosis. He is starting me on 10 mg of methimazole, I believe just once a day. Any words of wisdom? I am alreafy on a beta blocker since way before this for my bp. I go to see a Graves Opthamologist on the 9th.

    Lisa27
    Participant
    October 27, 2015 at 11:51 am
    Post count: 8
    in reply to: Newly diagnosed with Hyperthyroidism and most likely Graves #1184014

    Thank you. I have not started taking methimazole as of yet. My doctor wanted to wait to get results of TSI and CBC as my liver enzymes have been a little elevated since May or June, about the same time my TSH started going low. I have never had thyroid problems before.

    TSI Lab from Oct
    TSI=1.0 ref <1.3

    My labs from Sept when I finally saw endocrinology were

    TSH=.05 ml/UL ref 0.30-5.50 ml/Ul
    Free T4= 1.03 ng/dL ref 0.76-1.70 ng/dL
    Free T3= 4.0pg/mL ref 1.9-3.9- pg/mL
    T3 Total = 172 ng/dL ref 80-175 ng/dL

    Tc-99m injection and scan
    Impression: Diffusely moderately increased radiotracer uptake within the thyroid gland consistent with Graves disease.

    U/S
    Impression – Mildly prominent thyroid gland with heterogenous parenchymal echotexture.

    Previously in July (no other tests done, I was sent to Endocrinology)

    TSH=.31
    Free T4=.81

    My endo really believe I have Graves, but I am waiting to talk to him since having the TSI done. I am hoping he will call me today as he has the results now. He did the CBC to make sure I could start methimazole due to my liver enzymes which are ALT=81 and AST=53

    I don’t know if I will have more tests done or if the Graves will be confirmed. I see conflicting messages surrounding the TSI numbers.

    Thank you for your support. I am trying to sort all of this out. I have a child with special health care needs and am a breast cancer survivor, so I have a lot of knowledge in regards to medical issues and terminology.

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