Hi – I’m new to this forum and have the same question as Jeff as to what to expect with radiation thereapy. I’m had TED since October of last year. I’m currently on prednisone (60 mg per day) and am meeting with a radiologist in NYC on Thursday to discuss radiation therapy. My TED doctor in February told me to taper off the prednisone and then “ride it out” until August or September, when he felt the active phase would end. Who is he kidding? Just tapering off the prednisone for a couple of weeks was terrible – severe redness/watery eyes, stiffness/swelling and double vision (especially at night when tired). Told him that wasn’t an option so we are now moving towards the radiation therapy. I just hope it works and will get me back to “normal”. I know there will be several weeks of increased swelling after the radiation but after that, will things go back to normal? I want my baby blues back!
I’ll check out the links that Kimberly mentioned as well but I have a feeling I’ve seen them already – there doesn’t seem to be anything newer (thinking there might be some newer advances)
Thanks!
