[Lis163]

in reply to: Six Years Gone! #1064204

Dear Carys,
I have just joined this site only a few minutes ago and came across your post.
Thank you, you give me hope. Lisa.

[Lis163]

in reply to: PTU and Liver failure #1065639

Hi,
I am a patient with Graves disease. I have had it for a period of nine years now and have been in and out of remission, usually for aprox two years at each time, except for the first time when I was first diagnosed and now.
In May of this year I have had a relapse but was told by a call out doctor who saw my rash to stop taking the medicine. Normally I have allergic to Neo-mercazole but not to PTU. I had blood tests done and they revealed low white blood count, I am cyclic neutropenic but each time that I have blood tests done my white blood count is still low.
Alarmingly, my liver test showed some slight liver abnormality. Both tests in June and in August after ceasation of PTU.
I saw an endocrinologist three weeks ago and regardless of my blood test results, i.e. low white blood count, scaring left over from rash (has not fully disappeared yet) and still some liver damage. Although he would not go into detail of those results. All he said was that we will most likely do RAI. I asked him if I have a choice in that matter. I realise that I should let go of my thyroid after fighting for it for nine years if it is not working correctly. But, would have to ask if there are other ways. I realise that there are surgical procedures to remove the thyroid and personally as scarey as it sounds, I may prefer that method to ingesting a radio active cocktail. Anyway, this is my history if anyone can relate to it or who wouldn’t mind giving some feedback.

I have a nuclear scan scheduled for tomorrow due to some slight swelling on one side of my thyroid which no doubt will give a better answer to which treatment I would best suite. However, I have until this date not tried a holistic path. Such as seeing a GP who deals with nutrition, herbs etc… I have heard that people with low boron can have hyperthyroidism. I must look into that.

There is a myriad of research out there but it all just makes me more frustrated and tired and non the wiser. If anyone has any ideas it would be much appreciated. In fact the more that I read the more frightened I become about ablation of the thyroid or thyroidectomies. (In particular myexedema coma after a thyroidectomy), unsure of correct spelling, or thyroid storm after RAI which I believe is a lot easier to get out of trouble compared to being severely hypothyroid.

As a final note, I am instructed by the endocrinologist to go home and take the PTU for six weeks and I have felt naseaus for the past three weeks of taking the PTU again. I worry about my liver. His theory would be to get me euthroid no doubt. Should I just go to my GP and request a liver test along with my white blood count??

Any ideas anybody, cheers, Lisa.

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