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  • lin
    Participant
    March 26, 2009 at 4:20 pm
    Post count: 7
    in reply to: GD Recurrence #1072582

    Yes, I’d like also to know abut your experience on PTU for 10 years. I am trying to get my dr. to put me on long-term meds for my Graves, but he insists I take RAI. He thinks the risk of bone marrow suppression on ATDs is too great, but I’ve yet to hear of someone who has had that problem.

    lin
    Participant
    March 26, 2009 at 4:04 pm
    Post count: 7
    in reply to: Desperately need advice #1072705

    Thank you, Ski, for the information. I have found 2 new endocrinologists and have appointments in April and May. I hope one of them is willing to help me.

    lin
    Participant
    March 25, 2009 at 1:16 pm
    Post count: 7
    in reply to: Desperately need advice #1072703

    Well, I went to my current endocrinologist today, and he refused to keep me on methimazole. He just kept saying, "I won’t do it" no matter how I tried to convince him. He said he has seen bone-marrow suppression from methimazole and that it is "not dose specific" so he would not agree to me staying even on a low dose long-term. He said RAI was my only option with him, and that I need to find another doctor if I want to stay on methimazole. He did agree to give me a one-month prescription to tide me over till I find someone new as my blood work shows definite Graves Disease.

    I had never heard of bone-marrow suppression as being a possible side-effect of ATDs. Is this true? I knew it could suppress the immune system, but I thought that was easily remedied by getting off the ATD. Bone-marrow suppression is much more serious, is it not?

    I guess I need to find a new endo now. I live in Houston, TX, by the way, in case anyone knows of a good one here!

    Many thanks SO much again for everyone’s help. I deeply appreciate it.

    lin
    Participant
    March 23, 2009 at 11:44 am
    Post count: 7
    in reply to: Desperately need advice #1072692

    Thank you all so very much for your time and advice. I was a nervous wreck over all of this, but your words have helped make me feel more confident!

    I have an appointment with my current doctor on Wednesday. I am hoping that, if he drops me, he will at least put me back on methimazole to stabilize me until I can see another doctor. It takes a LONG time to get into a good endocrinologist around here. The one I just called has a YEAR wait!!!

    If there is anyone out there who has been on ATDs for long-term, PLEASE tell me for how long and how things went for you. Since I was on them for 5 years + before, I don’t know anyone who has been on them for longer than I have, and I would really like to hear about it if someone has.

    Thanks So much again.

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