[Lddugger]

in reply to: T4-Only Versus T3/T4 Combination Therapy – Please Share Your Experiences #1184240

I was put on thyroid medication at numerous levels that never made me feel normal, and then my endocrinologist put me on the generic cytomel 10 mg in the morning along with my 88 mcg of levothyroxine. I had tried brand name vs generics and also a new liquid thyroid capsule that had not made a difference. This seemed to be good for about 2 years, but now I am back to being hyperthyroid. My endocrinologist has quit practice, so I am working with a PA who used to work for an endocrinologist as the GP in the practice stated she wasnt really good at endocrinology compared to the PA. We have tried to decrease the T3 to 5 mg daily. I immediately gained about 4 # in 2 weeks. Frustrating! My other issue was after being on birth control pills about 1 year I stopped them in February. This may have set me into this condition. Anyway, I was so tired before the T3 in the afternoons, it did seem to help. Im back to being tired. We are all works in progress. Pays to keep checking your thyroid and keep asking questions. This is a frustrating disease. I am also worried my TED has returned as my L eye started watering profusely in January. I have seen 2 opthalmolgists and am returning to my ocuplastic surgeon this coming week. I have had 2 surgeries on each eye as I was operating in the hot phase by a surgeon who did not understand this disease. This was how my TED started before (watering eyes).

[Lddugger]

in reply to: Graves’ and TED – Status update #1183069

Robboford, Best of luck on your surgery. I had two surgeries for orbital decompression on both eyes as my first doctor jumped in too early making my disease worse. Your doc may want to wait on the eye that is still showing symptoms of not being in complete remission or inactive. This is a long process but the second set of surgeries was the best thing I ever did. I was out 26 in each eye. I was glad with the second go around that doc did them separately too just FYI. The pain was much more tolerable and I could at least watch tv. Be sure to speak up if pain control is not to your liking. I also stayed a night in the hospital on the second set of surgeries each and it was much better with nursing care, and IV medications for pain. The absolute best of luck to you, keep strong. The double vision can be a problem until all the swelling goes down, and I have it permanently to the sides, but is is a minor issue I barely notice. My eyes feel amazingly better without all that pressure and are much less light sensitive and only tear in wind.

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