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in reply to: Problems with synthroid after thyroidectomy #1063483

Kimberly wrote:2. I’ve heard of rare cases where patients were reacting to the dyes used to color-code the tablets. It might be worth changing your prescription to a non-color-coded version, which I believe is the 50 mcg version. (For example, instead of taking one 100 mcg pill, a patient would take 2 50 mcg pills). Your doctor or pharmacist will be able to give you more info on this.

I have never been aware of a reaction to dyes in the past, but I have been on both levothyroxine and synthroid 150 and have had the same reaction with my heart. Right now, I just have a bunch of samples of Synthroid at home, and will have to make do with that until I can see the new doc. Next endo appointment is in December as well.

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in reply to: Problems with synthroid after thyroidectomy #1063482

Are you saying that changing doses alone could cause my heart issues? I know you can’t tell me for sure, but if I stick this dose out, is there a good chance it will get better? I know changing so often is not good. I just haven’t been able to tolerate my symptoms on either 137 or 150. I am thinking of alternating doses every other day to see if this is gentler on my body. It seriously over-reacts to everything I take.
I don’t have a way to measure my BP at home. I was keeping track of my pulse, and a whole bunch of things in a daily journal. but when the doc just dismissed it all as anxiety, I gave up. Don’t see the point. I know it’s higher. I know I could walk miles a day 2 weeks ago when I first started this dose, and now I can’t get up a flight of stairs without my heart feeling like it will explode. I’m tired of fighting doctors. I just don’t have the energy to do it anymore, and hope the new one will help.
I don’t drink caffeine. haven’t been able to for years because it makes me too anxious. As far as other meds, I take Calcium, Vitamin D and Magnesium for parathyroid issues. Doc wants me to take antidepressant which could cause a fast or irregular heart beat. Scares me that it could make this worse.
I drink a lot of water. I don’t drink or smoke. I am 33 and menopause should not be an issue. I am not aware of anything I am doing to make my heart worse besides trying to get up and be more than a couch potato on occasion.

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in reply to: Very frustrating and need some serious help #1063929

I saw the referral lists and may make some calls. My eyes just tend to glaze over when I see a list of doctors. I really feel more comfortable when someone who has actually been there can give me their opinion/experience.

Bottom line is that I felt great for a good month starting a week after surgery. Endo told me I was hypo and raised my replacement hormone. About two weeks later, I started having heart palpitations again. I felt anxious and agitated and my whole body hurt. Heart rate and BP were elevated.

Endo did bloodwork and everything was in range. He dropped my dose and switched me to brand synthroid.

Two weeks later, I feel exhausted and depressed all the time. My whole body still hurts, and I can’t focus on anything. Don’t have the energy to do anything and I just want to cry all the time.

My next appointment is in December. I can’t wait that long feeling the way that I do.

Endo told me that as long as my labs were normal, he did not think it was thyroid, and would refer me back to my PCP. All through my hyper storm and in the months prior to my surgery, he would tell me that my symptoms were not thyroid related, and send me back to my PCP who would tell me that it was my thyroid and that it would get better after surgery. She was right, everything did get better for a month. I felt better than I had in years.

Now I am just so discouraged. I have no idea where to go for help. One more appointment with a doctor who wants to argue with me about how I could not possible be feeling the way that I do and that they know more about this body I have lived in for 33 years than I do would just break me at this point.

I have not been able to function since April and I really just want my life back.

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in reply to: Very frustrating and need some serious help #1063927

I have Graves and had a total thyroidectomy in August as well. I am very frustrated with my Endo since surgery, and I think I may need to find a new one. My parathyroids have been very low functioning since surgery and my thyroid replacement does not feel right to me. I fell terrible and my Endo has not been helpful. If you find someone you like in Columbus, I would love to know who. I just want to feel normal again.

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in reply to: Has anyone else developed a shellfish allergy? #1063852

Hi,
I was diagnosed with Graves in April and went into toxic storm in May, and had a Total Thyroidectomy in August.
I am not sure if this is an official allergy or not, but I encountered shellfish twice since my surgery, and felt sick to my stomach. Forget eating it, I could not stand to be anywhere near it. I have never had a problem with shellfish in the past, but I will stay away from it from now on.

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