[lakeview]

in reply to: Just a small frustration #1068367

Oh wow,,, is this familiar…. often this happens with me… I feel like a little kid at the doctor’s office. But I am starting to put my foot down… Also I bring a friend or my spouse as often as I can – I feel the drs. treat me better (especially the men) when someone else is in the room. I feel quite proud of myself since the last time I was in I told my eye dr. that he could expect me to ask lots of questions because that is MY field of expertise- asking questions- then when he said I will see you in 3 months, I said firmly no – you will see me in a month… finally taken aback he said okay 6 weeks – I guess I will have 66 patients to see then instead of 65! And I said great.

I feel that being an woman and an older woman and one with TED – an eyeball looking at the floor- I am being marginalized……. and this disease is bad enough without that happening too!!
Could be worse, 100 years ago, they would have just put us Graves disease sufferers in the insane asylum… this is where we ended up going back then.
Do you believe it!
Have a great day!
Lakeview

[lakeview]

in reply to: Cancer #1068471

Oh I am so sorry … take heart though, my cousin who has young children too, recently had thyroid cancer too. She had her thyroid removed and is doing fine. She has not needed further treatments to date (it was removed last December). She is doing very well and has told me this is absolutely the best cancer to get – since survival rates are very high. You are not alone and I am sure you will recover well.
Hugs,
Lakeview

[lakeview]

in reply to: Gutted and fed up :( #1068490

Oh dear! I feel so bad for you. Have you lost your voice completely or does it just sound different? I so hope that things turn around for you. You are one strong woman, keep on fighting- things will get better!!
Lakeview

[lakeview]

in reply to: Surgery done!! #1068587

I am so glad you are doing well. Can you keep us posted on your recovery process- I am weighing my options for the future…
All the best,
Lakeview

[lakeview]

in reply to: Wow, updates…. very positive :) #1068516

Wonderful, wonderful news………. keep the good news coming!!
Lakeview

[lakeview]

in reply to: Gardasil Vaccine and Graves Disease #1069567

I am so sorry to hear about your daughter and what she is going through. I know that in getting this disease, I asked myself why me and why now.
My mother had graves disease so for me there is a genetic component. However, I wonder why now – I think for me there may have been a combination of factors – genetic,,, but I was also very stressed and had a very bad flu – thinking back though, whenI first had symptoms I had just had my hepitatis A shot – was travelling to Mexico so thought it would be a good idea. Like you, I have wanted answers as to why I got this and thought, I wish I had not had that shot – maybe that was it! I guess I will never have an answer – but I believe it was a combination of many things. And there is no looking back now… and in my case since my vision is so bad… there is no looking up or sideways either ” title=”Wink” />
Don’t blame yourself – just be there for her and in time she will get better.
All the best,
Lakeview

[lakeview]

in reply to: Having a bad day- need cheering up #1068851

Thank you for your replies. It feels good to know there are people out there who know what this is like…..or who can understand.
It is really hard to see the light at the end of the tunnel with this…. guess I will be here complaining for some time…

[lakeview]

in reply to: Eye Masks #1068918

Hi… I have been sleeping with an eye mask that I actually got on an airline flight once… I really like it … this kind can be purchased at a luggage – travel store… it is cloth with ties to keep it on.
Otherwise I also have a mask that I purchased to soothe my eyes in the day that I can put in the frig… that is more of a beauty mask and is plastic.
Hope this helps..
Lakeview

[lakeview]

in reply to: TED & orbital radiation therapy #1068978

I am also wondering – is radiation and steriods worthwhile …
Also what are the side effects of steriods and do they happen to everyone….
I am awaiting tests and results and wondering what the next course of action will be for me… so far I have had no treatments but my eyes are swollen and I have double vision. I am going to my optomotrist tomorrow to see if I can get prisms for my glasses.
I am euthyroid… and my endocrinologist has seen this before… but mentioned that thryoid drugs can help the eyes… but no drugs for me yet.
So I am in limbo… and wondering if anyone else has been there before
Thanks
Lakeview

[lakeview]

in reply to: What’s your input on conference speakers? #1071131

I would definitely like to know more on eye issues at the conference.
Nancy,,, I honestly am a bit nervous about coming… my husband has offered to drive us there from Canada… however, right now I am very light sensitive – hat and dark glasses and i really have trouble talking to people since I have double vision – can you provide me with some encouragement–
Lakeview

[lakeview]

in reply to: Phew I made! I am now thyroid free and home! #1069466

Just thought I would let you know that I am following your progress with all kinds of good thoughts in my heart for you. Lots of prayers and good energy are being sent — You are going through a difficult time be kind to yourself…
All the best
Lakeview

[lakeview]

in reply to: My big day! RAI tomorrow #1069583

Good luck… hope it goes well… !!

[lakeview]

in reply to: My big day! RAI tomorrow #1069578

All the best, I hope it goes well… please keep us posted.

[lakeview]

in reply to: Intro #1069624

So glad you will be a moderator! And it is nice to know you are recovering from graves well.
You don’t look old enough to be a grandmother!! ” title=”Very Happy” />

[lakeview]

in reply to: PTU? #1069814

Hi everyone
Just wanted to say that I add my support to you! I understand what you are going through. Mamabear, that was a very sweet and lovely post.
Reading these posts makes me realize how type A, I am too…. so I am going to try to make an effort to slow down.
I hope that things start turning around for you soon Sue… there is an end to this… we just have to hang in.
Lakeview

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