Greetings All,
I was diagnosed in 2010 with Grave’s disease. Had RAI. After 4 months started on synthroid and levels have been adjusted only a few times. Have been stable for years and felt great. April 2016 started with dry eyes, bloodshot, gritty etc. Went to eye Dr. treated for dry eyes with drops. 3 visits later I had swelling in left eye told him I had Graves (which was noted in my chart) also started with double vision only in the morning upon waking, rest of day seemed fine. He sent me to Nero Ophthalmologist, had orbit MRI to confirm TED and both eyes were effected. More swelling, tight muscles, double vision to the right and up and down movement. August 2016 started on IV steroids once a week for 12 weeks to stop progression. I have had to treatments as of this writing and see a slight improvement. Less swelling, can read better and still drive. Only side effect of steroid is headache day of and day after treatment due to blood pressure spike. I am very hopeful and have changed my diet to an anti inflammatory diet and feel good. My thyroid levels have remained normal for me. I’ll post more as things change. So thankful for this forum, not much info out there from others. My big question is to all, can this come back again once it is burned out? I know stress triggers my auto immune system big time!!!
