[Khadijah]

in reply to: Went to the endo today… #1175043

Thanks, that explains things. Also the pharmacy gave me methmizole the generic I take it.

On a side note, I just found out I can’t get in to see the surgeon until dec 11 and probably won’t get scheduled for surgery until late January or February if I’m lucky. Now, I’m really bummed. I have to talk to the endo or see if my second opinion doctor has another good surgeon. What crappy luck.

[Khadijah]

in reply to: New to Graves #1174955

You are not alone, indeed! I’m going to the endo tomorrow to most likely get put on meds. Out of curiosity what side-effects or bad reaction did you have to the Methinazole? I’m curious what look out for when I start. I am very sensitive to medicine so this will be interesting.

[Khadijah]

in reply to: New and Seeking Advice #1174950

Hi! I’m new too but much older. I feel for you having to deal with this at such a young age and going to school.

That said, it takes a while to come to grips with this disease and unfortunately there really isn’t any way to avoid taking meds for the rest of your life. Just focus on getting well. What were the results of you uptake? I think that determines whether or not you have graves? When do you go back to the doctor?

Read through the posts and hopefully you will get a better idea of what you want. Neither option is easy. I myself, have not made a decision yet.

Good luck! Keep us posted!

[Khadijah]

in reply to: Husband’s definition of support… #1174910

No beta blockers because I have a little asthma and they make it worse. Also, I wasn’t shaking too bad and my heart rate is up but borderline not horrible. Also, if I wanted them he would have given them to me, it’s not like he didn’t offer. I just didn’t want any yet. However, I feel worse than two weeks ago when I saw him. Yes, I have lots of questions.

I don’t know if I need a second opinion but I may go to see if gives me additional or the same surgeons. I would like to see what their bedside manner is like. If this person is going to check me every six months I better like him!

Tomorrow can’t come soon enough.

p.s. husband asked if I was having “another flare-up” because I asked for help because I couldn’t fight my five year old when trying to buckle him in his seat. I admit it sucks that my 5 yo is stronger than me right now.

[Khadijah]

in reply to: Methimazole dose #1174866

I also had trouble finding an endo to see me before 3 months! I gave up and my doctor called around and found someone to see me sooner. I have had an ultrasound, an uptake and a visit to the endo before the scheduled appointment I found myself. But, I am still keeping that appointment as a second opinion. Who knew endos were so hard to schedule!?

I think what Bobbi said sounds about right, it’s the meds doing the work. How long have you had graves?

Also, don’t you need to be euthyroid before doing RAI or surgery. Let me know what you decide?

I’m right behind ya!

[Khadijah]

in reply to: Husband’s definition of support… #1174907

Thanks everyone! I see the doctor on Tuesday and will talk about the next steps. I did get the results as well so I now know for certain I have graves. I would say in the last week I have accepted my fate. I already discussed beta- blockers and doctor said I did not need them. I do like the idea about showing husband an article and say I don’t understand… Mr. M-I-T will love that one!
Yes, I am reading everything I can. But, I do want to get well ASAP no doubt about that. But, I understand that isn’t happening anytime soon.

I had to tell my teacher I wouldn’t be in the show in March. That was awful. I still hope that I can get well enough to at least do a solo or something…I know wishful thinking.

[Khadijah]

in reply to: Husband’s definition of support… #1174902

I am not a runner so I know he wasn’t expecting me to run, he just wanted to make a point that GD is not that bad if someone can “run”while they have it. I asked him again to go to the doctor with me and he said he was too busy.

Getting sick with someone like him is a nightmare. I had a disability and was on bed rest the last two and a half months of my pregnancy. He was a complete monster during that time. My son has some issues and since the pregnancy I have focused on my son and not getting a divorce. I lost my job last year and now I have that same horrible feeling when I was on bed rest and completely helpless. I swore when I got better I would divorce him, and now this.

My marriage to my husband is like the story of the frog and the scorpion. The scorpion begs the frog to carry him across the pond and the frog says “no, you will sting me and I will die” the Scorpion says ” no, I promise I won’t sting you. Please please take me across the pond!” the frog takes him across the pond and the scorpion stings him. The frog asks the scorpion as he lays dying “why did you sting me?” and the scorpion says “I can’t help myself, I am a scorpion that’s what we do.”

Now, you see why I want to get better fast. But, I am coming to the realization that this will take months and months…I just hope I can survive till then.

[Khadijah]

in reply to: Hot yoga and Graves’ Disease #1174895

If your symptoms are not so bad right now they could get worse with hot yoga, I am a dancer and I think by pushing myself I got worse in a matter of weeks! I would not push yourself physically until your levels are better. I know how hard it is. We have a show coming up and I had to remove myself from the line-up. I feel like a failure. But I’m with you on wanting to do something active. Let’s make a pact not to push ourselves until our levels are better!

[Khadijah]

in reply to: New here with a dilemma #1174889

Thanks for the responses! I have read the “treatment options” thread and all the threads going back about 15 pages!

Bobbi! Thank you about the no exercise comment. That explains a lot. No my doctor didn’t mention it but I only saw him once and I probably didn’t mention the dancing because right now I’m not and I know I won’t be for a while. But, I will ask because I was thinking about doing yoga or something about my muscle loss. That is freaking me out the most. I feel like a blob of jelly.

Naisly- no, I especially refuse to attempt remission with the medication. I don’t want to risk my liver or kidneys under any circumstance. Also, im pretty sure i have no chance of remission with my levels. I am leaning tward RAI but now i am concerned about my eyes. I have very bad eyesight to begin with.

Snelson- I know it’s hard for people to understand but I’m thinking my husband brought it on. He is my stress trigger but I got too sick to fight for a divorce. I hope I get better so I can do something about my bad situation.

I would love to hear more about people’s recovery. It gives me hope!

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