[kelly]

in reply to: Remission? What do you think? #1064169

hey shirley,
thank you!! i haven’t read all, cuz i just found you guys, but i’ve been obsessesed with reading as many as i can…and then poppn back on to get replies, which is not like me..i get addicted, which is why i stay away from computer so much. but i’ve realized lately, that it’s a viable source of info. and since so many with graves disease, need to help themselves with the disease, it’s nice to know we can check in with each other..but i got your point, which is get all the docs lined up and get my attitude adjusted to agree that it is my life.. my genes should be addressed, but they’re not everything.
i have my next appt 12/2 with the endo (she is the second endo to be talking of RA with me on the first appt). i liked her, but she said she thought i had a 20% chance of recovery and i should consider RAI….she also thought i should stay at 10 mg, but when my energy started to change, and i got my own blood work, sure enough i called her to say tsh went from .42 to 1.77 in 3 weeks, can i go down to 5 mg and she said, yes. if im able to maintain at 5mg, and improve so rapidly, why would i even consider RAI?? (i might have to find another Endo and the so far the only one’s that don’t push RAI…are private pay, no insurance types that charge 500/50 mn)…right now i’m on "charity care""
i’m in hawaii..so, i’m closing the computer and might not check back till i’m home in (oakland)– i’m not looking forward to going home- thank you to anyone and so far,thank you kimberly and shirly)

[kelly]

in reply to: Remission? What do you think? #1064167

hi, kimberly,
thank you for replying. (my mother was a saint and i miss her all the time, but i want to show her i can be healthy!!!)

do you have any experience or book or reference that could tell me more about fertility and post natal outcomes for a graves disease candidate??
i know i have autoimmune disease in my family, which could have triggered it, but my thyroid was fine my whole life ( i had it checked for 8 years straight after loosing my mom),,but as a result of severe depression, a pyschiatrist put me on lithium (three years) and then boom! i was diagnosed with graves disease (two years ago)..went off lithium immediately! and now i’ve been battling thyroid issues…i think it’s more adrenal based b/c of a life of PTSD…anyway,
if ANYONE..HAS ANY ADVICE ON THE PREGNANCY THING.. please point me to a book, doctor, something…b/c my mother and my aunt have suffered so much from autoimmune issues after their two births.it’s scary! i’ve been trying to live my own life and want to create my own experience, is it possible??? i’ve been so healthy in my life…seriously healthy…i’m confused about how this happpened..i do realize, that no matter how healthy i am, i do let stress in like a sponge lets in water…
exercise and nature just aren’t enough…i must remind myself of the "power of the maximum mind" right??
thank you to anyone that understands, kelly (in hawaii, and still having trouble finding my inner calm)

[kelly]

in reply to: Remission? What do you think? #1064165

hi, i’m new to this forum, and wasn’t sure how to post a question without replying…so, i popped on to ask if anyone has any more knowledge than three endo’s i’ve seen, one integrative med doc, and one ob/gyn? on the subject of birth defects with ptus? anyone know if the amount your taking affects the liklihood of congenital birth defects? there is very little controlled research out there..not planning on becoming pregnant, but not able to use anything but condoms, worried about accidents..
i’m on 5 mg of methamizole been trying to get graves in remission for 2 years..i’m 34 (ideally should be making a baby this year..but have to wait..) mom died of lupus when she was 47 (very frustrated with western world, but been taking these meds..so bummed! anyone anything??
light and love, kelly

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