[KatyPop]

in reply to: Just off Methimazole & High Antibodies #1180969

Thank you thank you thank you Ski, For such a sound and pragmatic response– This makes me a little less worried, to hear the antibody levels can bounce around. And yes, I wish we had checked them before I went off ATD, but I had to strong-arm my endo just for this. He hates to check antibodies, claiming we only need to know that they exist.

I will focus on normal T levels going forward. Keeping fingers crossed; blood work coming up next weekend. And a lot can happen in a year. I have read about small maintenance doses of ATDs working too! So there is still room to make adjustments.

And I appreciate your mention of the bottom line. This disease really scared me, and I forgot that there are simple, straightforward goals to focus on. Much better than focusing on the crazy stuff I can’t control.

Thank you again.
Katy

[KatyPop]

in reply to: Is Graves as a response instead of a disease? #1180922

I do think that Grave’s is, at base, a stress or inflammatory response!
And I bet the genetics that create it wouldn’t have stayed around so long, if maybe somewhere in there, it was advantageous, or at least ‘covered for’ in some way.

Katy

[KatyPop]

in reply to: Just off Methimazole & High Antibodies #1180966

Dear Shirley and Nancy-
Thank you so much for responding so soon! And for your kindness.
Perhaps it is too soon to really tell. I’m getting bloodwork every two weeks, because I responded so well to the methimazole that I went to hypo on a high dose, so we had to keep monitoring. Boy did I get woozy on 40mg!

I have been reading about Dr. Dean Ornish, and how he designed a program clinically proven to reverse (not just slow down) heart disease. It worked so well that health insurance companies now back it. And it has been working for years. He is trying this program now with prostate cancer. And there is some evidence that this program can also help with other kinds of disease (for example auto-immune disease).

I think I am going to try it. Anything to lower those antibodies!
I haven’t very much experience with Graves’, but I will also try to answer other’s posts– if I can help, I will!
Katy

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