[katet]

in reply to: RAI, not so godd reaction #1068324

Thanks for the advice – the lump did go down (it was on the left) and now I have a weird bump on the roof of my mouth where the pill stuck on it’s way down. I’m sure it’s crazy but I’ve never had such a thing in my mouth. It looks and feels a bit like a pimple but def. not a cold sore. That too is getting better and it just annoys my endo when I call so I’ll leave that be. We just moved to Philadelphia and my old companies insurance sucks so I’m excited to get a better doctor when my new stuff starts.

Also, my eyes are starting to get better and less dry – only need drops 5 times a day!

I hope everyone else is doing better!

[katet]

in reply to: RAI, not so godd reaction #1068321

julie, glad to hear you’re feeling a bit better. you should def. grab some lubricating eye gel too – get tons of free samples from your eye dr.! i used it for the first time last night and woke up feeling much more refreshed and without a headache!

i’m also still really hyper. i wasn’t all that bad before the rai but haven’t been able to get to bed until 3am since… also, i finally got to talk to my endo today and apparently the lump at what i assume is my salivary gland is totally unrelated – i don’t believe this for a second considering i’ve never had it before but it is still going down and is less painful so i’m not too worried.

keep us posted!

best,
katie

[katet]

in reply to: RAI, not so godd reaction #1068316

Hi Julie,

I’m sorry to hear you’re not feeling well. I hope the coming days prove better – just get your rest and load up on excederin if you are allowed to take it!

I also got a dose of 20 mci and have had some issues myself. I’ve been drinking between 4 and 5 gallons a day since I got my dose and think that’s prob. why I haven’t had too bad of a sore throat. I have had a pretty bad headache every morning but nothing excederin won’t take care of. I’ve had some really bad stomach issues – but the atenolol my endo has me on does that as well.

The main problems I’ve had are with my eyes and now a pain/lump in my throat. I had my eyes checked a week before I got the rai and again today. Basically my doctor didn’t notice any major changes except that they are very, very dry. I went from having zero eye issues to dry eyes, slight double vision and the feeling that one eye was bigger than the other all in 4 days… the eye dr. said that this is to be expected right after the radiation and likely stems from just being too dry so she gave me a ton of drops and some stuff that I can put on them at night. I’m sure I looked like a nut going in there saying I measured my eyes with my fingers and they feel different but I know I would have freaked out had I not gone! She going to see me monthly to track any changes which makes me feel better.

Also, starting last night I feel like I have this hard lump in my throat/mouth – right behind my bottom left teeth. I’m not too concerned about it mostly because I think I’ve just sucked too many Jolly Ranchers the last few days. I did also have a pretty sore "burn" on the roof of my mouth a day after and I think this is because the pill rested there for a minute before I could swallow it. That went away pretty fast though. I’d like to ask my endo about this stuff though – if I could get in touch with him!

I’ve been trying to get through to him ALL day but haven’t even gotten a call back. It bothers me a lot that I left messages with his secretary about my eyes, iodine-free diet etc. and he couldn’t be bothered. It really makes me nervous that this man prescribed radioactive iodine but also couldn’t be bothered to tell me any of the potential side effects other than an extremely, extremely off chance that it could hurt my eyes. My eye dr. basically said that she’d like to have a chat with him about being a bit more open about the possibilities and what to expect. Had I not found this forum I would have had no knowledge of what was an okay thing to expect.

I really hope you feel better soon – we’ll have to keep track of our progress and compare as we go the same dose on the same day!

[katet]

in reply to: Who Has Had RAI Once With Great Long Lasting Results #1070799

thanks so much for all of these responses! i just had rai on friday and am very hopeful that i’ll be as lucky as all of you. it’s been hard reading about a lot of the negatives so it’s nice to see these positive outcomes!

[katet]

in reply to: Katet.. Going in for RAI today! Good luck! #1068335

thanks so much, i really appreciate it! it’s been three days and i’m feeling okay. to be honest i really didn’t know what to expect and have really scared myself to death by reading online, etc.! i’ve had a sore throat and headache every morning but i imagine it’s to be expected.

like i said, i’ve been very, very, very scared about what i’ve read online (future eye issues, cancer, and children) but i also feel relieved that it’s just over. i don’t fell like i have the best endo in the world and plan on getting a new one soon but that didn’t really effect my decision and despite what i’ve learned i don’t think i’d change my mind. just taking medicine seemed too risky – only a 20% chance of remission and a drop in white blood cell count! my endo also completely ruled out surgery and to be honest i think i’m too much of a wimp to have considered it (i cried just having my wisdom teeth out!). they all have their own risks and now i really just need to suck it up and deal with what comes out of my choice.

i really, really appreciate your support and the info i’ve gained from this forum. my family and boyfriend don’t seem to think that this is a big deal (and maybe it’s just the grave’s hormonal issues that are making me think it really is a huge deal) but it’s nice to hear and learn from what others are going through since we’re all stuck with it for life.

[katet]

in reply to: Gardasil Vaccine and Graves Disease #1069572

Thanks for this information – I had no idea. I’m 24 and was just diagnosed about a month ago. I received the vaccine about 2 years ago and when I think back that is about when my symptoms started. At the time I rapidly dropped about 50 lbs and started having what I thought were panic attacks. Since, it’s gotten so bad that I am hungry ALL of the time and have gained almost all of that weight back.

I’m getting RAI on Friday and hope to stabilize afterwards…

[katet]

in reply to: 6 weeks post RAI and all better?!? #1068396

Julie, from what my Endo said you want the dose to be "too high" because if they don’t bring you to underactive you will likely be overactive over time.

I’m getting the treatment this Friday the 4th and my major concern is the eyes. I saw an Opthomologist last week and apparently I’m showing no signs of eye trouble but it sounds like that usually expresses itself later. I’m only 24 and really not looking forward to a possible lifetime of eye trouble on top of this.

Also, I’ve actually gained a ton of weight (going from 125lbs to 155lb in a year) since being diagnosed and I’m nervous that I’ll gain even more. My hope is that with this taken care of I won’t be so incredibly hungry all of the time and might return to normal…

Good luck and keep us posted!

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