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WOW, thanks for all of the informative posts!
All of my family lives far away & I have tried to get some kind of family history from them, but no one seems to know anything. The only family medical history I KNOW of is that my aunt (mom’s sister) has GD & had RAI, my grandma (moms side) died of lymphoma, fatty liver (mom & her sister) & high blood pressure. I was diagnosed with TED around end of ’01. I don’t think my aunt with GD has that though.
My kiddo’s ped suggested I get their thyroid levels checked once a year. I don’t think they are actually looking for graves. I will have to look at their records to see. They thought it was a good idea to give that a look when they are in for their checkups. I never would have even thought to have that done before, but they said it was a good idea with me having thyroid issues. I never had any problems until I gave birth to my 1st munchkin. I got down to 88lbs and didn’t feel right so they checked it out & was concerned how hypER my thyroid was. RAI not long after.
The 1st appt w/ my new endo, he explained the ‘symptoms’ of both hyper & hypo. This may sound odd, but I have some ‘symptoms’ of both, no matter what my TSH is at. (All other thyroid levels in ‘normal’ range)I have for at least a year, but they seem to have gotten worse about the past 6 month. I figure it must be stress or something like that making it seem this way.
As for some of my other posts..hahaha I re-read them. I can totally tell when they were right after an appt w/ my family dr!!! He would throw things out there like ‘pituitary tumor’ or ‘leukemia’ with no real explanation. I would run home to look up what in the world he was even talking about. Which all lead me to some sort of ‘you’re dying’ site..lol I since then have learned what places to stay away from, OH & not see that dr again..LOL He REFUSSED to give me a referral to an endo (& I had to have one). He did nothing to explain the real issues, just liked to bring up things that didn’t apply to me & say ‘have a nice day’. I happened to hear about a free clinic & I went. They were SO helpful & got me a referral that day. Within a few weeks I got great insurance & do not qualify to be seen there anymore.)
( I know I sound like a total nut job & I apologize. lol Now that I have a great endo, I am hoping to be able to ask him questions & not get the run around! This site is the best out there! (& believe me, I have been everywhere in cyber space to get info..HAHAHA) Its nice to know I can always come to this site & know its real ppl w/ real stories to read & even learn from! So thank you everyone for making me feel I am not alone!
KariThanks everyone for the info! The more I learn about GD, the more fascinated I get! I was diagnosed in ’98 and never knew anything about it until about aug of ’10! I was young when diagnosed lol Now in my 30’s, I was tired of feeling like this, so I started researching. It is just amazing everything that is/could be involved when having GD!
I have read CD is common in families. Out of curiosity, I asked the pediatrician IF I do infact have CD, would they recommend my kids getting tested. They told me if my test comes back positive, call & have an appt made to get my kids tested as well. Do any of you have CD & and any of your children?Does anyone know what the other autoimmune diseases that are ‘common’ with GD? This is all new to me & its hard to do research when I have no idea what to research..LOL AND there are so many contradicting web sites, its hard to know what is correct.
Thank you so much for the info! I keep reading your posts to make sure I didn’t miss anything!
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KariThanks! I have no one to talk to about all of this. Here is what I am most confused about.
My 2nd appt he got my results (20.4) and was ready to change my meds. THANK GOODNESS I did my research. I explained maybe a lab error b/c my last labs (20 days earlier) was .203. I even showed him my copy. He said lab errors rarely happen, but lets wait to change anything. SWEET! He actually listned! HE said labs rarely make mistakes, HE brought up the pituitary tumor & needed an MRI, HE said it doesnt make sense! NOW with 1 ‘normal range lab’ I am fixed & 3 of 4 were lab mistakes, no mri to even check after saying that & see me in 3 months. I’m so frustrated!
Not that this part matters, But I have to tell it.) My WBC, PLT CT, among others have been off for years. My old dr never said a word & I never knew or asked. This new dr seemed to listen so I asked him at my last appt "why". He says abnormal is just my normal. OK..lol THATS when he said "I mean its not like they are THAT high. I could do a bone marrow test to check for leukiema (sp) but is it really worth it? If it goes higher I will do one" Not that that is a concern of mine, they have been off for over 8 years. But Why even say it?
Before I left I asked if I should get an Endo, he said no. they wouldnt do anything he isnt doing. The only Endo around here didnt take my insh. I am calling today to see if maybe she takes my new insh. I do not have optical insh, but I was told the optom will bill it as medical so I should be good there. Daylight savings saved me from taking kids to school in the dark! YEAH!) I guess I will keep searching until I find a dr that WILL listen. How do you all explain things to your dr without sounding like a hypercondriac? lol Thats what I feel they will be thinking when I see a new one.
Thanks again for responding! Its nice to know other ppl out there WANT to know whats going on & actually DO ask questions. Here, no one asks, just trusts. I cant do that anymore! ~Kari
