Forum Replies Created

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • Karen55
    Participant
    Post count: 5
    in reply to: Rituximab #1184671

    Thanks, Liz1967. That was very helpful. I found the steroids, both oral and intravenous to be very helpful, but was on them too long and cannot go that route again. No one has mentioned orbital radiation. I will do some research on that.

    Karen55
    Participant
    Post count: 5

    I just wanted to report that after many visits to several of my doctors I finally received a diagnosis for the head/facial pain following surgery. I have trigeminal neuralgia. The Trigeminal nerve was disturbed during the surgery. I am finally feeling some relief, had 2 good days this week, but it does flare, especially at night. It affects my teeth, cheek, eye, forehead and occasionally the back of my head. I have taken Prednisone regularly for 6 years (I also have ocular Myesthenia Gravis) and am also on the taper pack for a week to try to help calm this down. I hope no one else experiences this post-surgery issue, but perhaps if you do, it won’t take you as long to find the answers. I just need to be patient and was told the pain will come and go, but it’s a relief to know what I am dealing with. This has all taught me to really listen to and obey my body, I’m not one who sits much, but the recliner has been my new best friend! :)

    Karen55
    Participant
    Post count: 5

    Shirley and Kimberly,
    Thanks for your quick responses. I certainly don’t consider myself a super woman, but having both done at the same time has made recovery a little harder than I expected. The decompression surgery is the one causing most of my issues, but my energy level is low also. I expected to be doing more at this point. I just started my new dose of synthroid this week so that should help.
    I love my adjustable bed and yes, the feet elevate as well which is important so you don’t keep sliding down. My dr. suggested it when I was 1st diagnosed with Graves in 2006. Thanks for the encouragement!
    Karen

Viewing 3 posts - 1 through 3 (of 3 total)