[kaicee118]

in reply to: question #1073835

Hi – I was diagnosed with Graves in November 2006. As early as summer of 2005, I started feeling run down, achy, with pain in my muscles and a low-grade fever for weeks at a time. I was tested for everything – Lyme disease, rheumatoid arthritis, lupus – finally I was told I might have fibromyalgia. A year later, I was hyperthyroid – but I always see the summer of 2005 as the start of my health problems, and I wouldn’t be surprised if it was my thyroid way back then.

Hope this helps.

[kaicee118]

in reply to: What if you do not treat? #1074026

I’ll say that I don’t feel any better while on Tapazole – different, certainly, but not better. Are you on medication when you feel tired, depressed and dizzy, cccmmm? I ask because I’m trying to get to the bottom of why I feel this way.

And I have to admit that when I was first diagnosed with Graves over 2 years ago, my GP told me that he would give me tapazole because I was experiencing symptoms, but if a person has no symptoms you can just wait for your thyroid to "burn itself out" (with blood testing along the way). I know better than that now. I don’t feel good at all on tapazole but I do take it, because of the toll the disease takes on my body if I don’t.

[kaicee118]

in reply to: Total Thyroidectomy Scheduled 2/5/09 #1073994

Hi Carole – I’m just curious – when you say your antibody titer was very high, do you remember what the numbers were? I just wanted to compare them to mine:-)

Thanks!

[kaicee118]

in reply to: Terrible feeling of cold and sweating at nigh #1073979

Monika – I have not been on PTU, but I know that since I’ve had Graves’, it’s a wonder I have not broken my thermostat with all the turning up and turning down I do. It seems I cannot keep my body at a comfortable temperature. I’ve also had problems (not temp-related) with taking Tapezol, so I agree you should ask your doctor.

[kaicee118]

in reply to: Total Thyroidectomy Scheduled 2/5/09 #1073988

I am also probably going to have surgery later in the spring, so I am very interested in the answers to these questions also! Anyone?

One more question – how long were you in the hospital?

I especially liked the question, "Did you start looking forward to things again?" I am waiting for that day…I am so hoping to feel better by the time the warm weather is here…

Thanks!

[kaicee118]

in reply to: 2009 Conference? #1074227

Thanks – I look forward to hearing about it – if it’s on the East Coast, that’s closer to me (although I’ve never been to San Diego – that was the last one, right?) And hopefully I’ll be post-surgery by then and I’ll be feeling better! ” title=”Very Happy” />

I would like to hear from others who have been to conferences too.

I’m just really coming to terms with the notion that I have a "disease." This is real – not just something that will go away if I rest and lose some weight. And getting emotional support has become more important to me now that I’m going through this second round of Graves.

Thanks to all who offer support on this board. Peace!

Karen

[kaicee118]

in reply to: Tapazole and muscle weakness #1074328

Thanks for your replies. I know muscle weakness isn’t a normal side effect of Tapazole, but I didn’t know if anyone else ever had this experience.

To me, the muscle weakness with Graves/noTapazole is different from the muscle weakness I have once I start the meds (I know – this is way picky!) But the first is like shaky/trembly muscle weakness, and the second is like waves of weakness that make me feel like I can’t do anything. Maybe I’m not explaining it well, but to me they’re totally different…

Anyway…I’m really considering surgery at this point. I’m sick of being sick. Thanks again –

[kaicee118]

in reply to: Just Diagnose, why would I choose any treatment other than.. #1074294

Just a little comment regarding your last sentence – yes, Graves does cause my face to break out. It causes all kinds of strange things to happen…

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