Thank you for all your replies. It’s so nice to know I’m not in this alone. I’ve been doing tons of research, and I have come to the conclusion that this disease is so complex. It’s hard to explain to my husband and friends exactly what it is, and it kind of frustrates me that all they seem to care about is that I will be ok. I mean, I’m glad that I’ll be ok,too But I can’t get over the initial shock that I have this rare disease, and I certainly don’t feel ok, just yet.
My Doctor failed to mention that I have options when it comes to treatment. In fact, when he mentioned the word pill, I asked about the RAI and he said, "No, a daily pill." I will definitely be doing more researches on the treatment best for me, but I’m not quite sure how to determine that. I’m really excited to start treatment though!
Thanks again for all your kind words. I really needed to feel like someone understand what I’m going through!! If you have any suggestions on pro’s and con’s of treatments, please feel free to advise me. Thanks!
-Jackie
