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Viewing 15 posts - 31 through 45 (of 55 total)
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  • julies
    Participant
    Post count: 61

    You should call your doctor today, please do not wait, the same thing happened to me, I had one break out a week after starting the Methimazole, then three weeks another rash that started with a hot red face chest and arms. My doctor took me right off the Methimazole. I have gone two weeks with no medication, started the beta blocker, but am gaining fluid. I have restarted the PTU today, only a small amount due to my problems with the Methimazole. Please call you doctor and let us know what they suggest.

    Julies

    julies
    Participant
    Post count: 61

    Hi I hope you feel better soon

    I might have RAI very soon, please let me know how you do.

    I am very worried about this treatment

    Thank you

    Julies

    julies
    Participant
    Post count: 61

    Hi jmeret,

    Ihave been taken the ambien since April when my primary first thought I had GD. I was on the Methimazole for almost a month but could not tolerate it, had a bad reaction, I do not feel it was caused in relation to the ambien. Like you I cannot sleep with out it, my endo took me off the Methimazole two weeks ago. My Primary wants me back on the beta-blockers ASAP, due to the anxiety. The anxiety; caused by the GD. I am also very glad for this support. No one really knows how this disorder can turn our lives up side down. The best advise, I can give is the same advise I try to give myself everyday; it is that we are all-beautiful on the inside and out. No matter what this disease does to us, we all will get well again. I am counting on that. <img decoding=” title=”Razz” />

    Try to smile <img decoding=” title=”Very Happy” /> more if you can, that might help you feel a little better

    take care

    Julies

    julies
    Participant
    Post count: 61

    Hi

    Do hang in there. I have been tried for six years; I just found out in May that I had GD. They put me through sleep studies, two years ago, and four years ago I went on anti depressants. At work for years everyone knew me as the person who could not stop saying she was tired, I mean every day. Now I know why I have been tired, it took just a blood test. Why it took so long I haven’t a clue.

    I am taken ambien, but also at times take night quill it works it takes that much just to knock me out.

    I hope the medication you are taken works and you finial get the rest you deserve

    Sleep tight <img decoding=” title=”Wink” />

    Julies

    julies
    Participant
    Post count: 61

    I have been off the medication for a week now, not that I was on it long enough but to lower my white blood count and cause me to have a cold for a month. It also caused two breakouts, that included; a hot/red face and arms, then the hives to lead to a rash. Did this happen to anyone else?

    My doctor wants me to do RAI, after reading many post,I worrie becasue it does not sound like anyone is really feeling much betterfor this treatment. What is the sence? I am feeling ok now, just dry skin, hair falling out, what the sense getting all those other symtoms, they seem worse.

    I have an appointment on July 16 for a second opinion, my first Endo, is telling me I can’t wait. What the heck!

    Julies

    julies
    Participant
    Post count: 61

    Emily

    No, I will call now, thanks, where is my mind :roll:
    Is it not great living with Graves!

    Julies

    julies
    Participant
    Post count: 61

    Hi everyone

    Just heard from my primary care, I have an appointment for my second opinion on July 16th. I am a little pissed off right now. Friday the on-call endo stopped my medication, had blood Saturday, was told that I would hear something Monday, it is Tuesday, I am feeling a little stressed with out any medication,
    this is very scary.

    I love this support group because we can learn so much for each other. It is a safe place to say that you are scared.

    Thank you,

    <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” /> <img decoding=” title=”Razz” />

    Julies

    julies
    Participant
    Post count: 61

    to be honest, I have not noticed too much of a change, but I have had months in the past years, that I thought I was going out of my mind. I believe I have been sick with Graves for many years.
    I just took this long for them to do the blood work. Staying in bed and away from others helps, and also a good cry does release alot of stress :cry:
    some months I just do not like myself,

    Jules

    julies
    Participant
    Post count: 61

    Welcome

    I am 44 as well, just found out in May I had Graves, I was on medication, had a bad reaction to it last week, they say three out of 100 have this reaction. I am against any kind of surgery. Once the thyroid is gone it is gone for good. You will have need medication for the rest of your life. That is diffcult for me to think about. I hope you find help and support here, I know I did.
    And it is important to educate yourself as much as you can. My endo told me that if I did not treat this I could have a heart attack. I am still looking for information on that.

    good luck

    Julie

    julies
    Participant
    Post count: 61
    in reply to: GD Treatments #1070583

    Get a second Opinion,

    Jules

    julies
    Participant
    Post count: 61

    Hi everyone

    It has been a couple of crazy days for me :roll:

    I had a terrable reaction to the Methimazole, hives red, hot, itchy

    The on-call Endo took me off, told me I needed surgery, I am not ready for surgery. The PTU I took for a week, I was not in a nice mood, :evil: I only took it for a week. Is that a side effect, I would like to try it again,

    I am very confused now <img decoding=” title=”Confused” />

    Jules

    julies
    Participant
    Post count: 61

    welcome

    I have been on the methimazole 20 mg. a little over three weeks, I have cut down on eating, and walking a least a mile a day, I go to the gym three times a week. I am freaking out :o about the weight gain, I have gained five pounds so far, I refuse to gain any more weight! :twisted: I am feeling better a little wacked out <img decoding=” title=”Confused” /> but better. I hope you feel better soon

    julies <img decoding=” title=”Wink” />

    julies
    Participant
    Post count: 61

    I understand the sadness you are going through. <img decoding=” title=”Sad” /> I cannot seem to concentrate, I tried to write a check on Saturday, it took me three tries and I still messed it up. :roll: I am writing on this web site because I cannot write my notes on my clients; no interest in doing my job without taken more breaks.

    I walk at night; it is one of the things I really enjoy. I started to go to the gym after work, getting my anger out there, I thought was better than on my family. <img decoding=” title=”Wink” />

    I never knew that the thyroid could cause so many problems. That an illness could turn your life upside down; It is amazing that some many people find this web site; it is a gods send for all of us, it is a safe place to talk and express how we all feel and when we want to vent. <img decoding=” title=”Neutral” />

    Julies

    julies
    Participant
    Post count: 61

    For all,

    The eye thing with is poping out of your head! This only happens to a very small precentage. How many individuals on this support net work had their eye pop out? Please never let the internet scare you into rushing into some treatments. Educate youself, talk to others.

    Julies

    julies
    Participant
    Post count: 61

    I am so happy to hear that the methimazole has worked for you <img decoding=” title=”Very Happy” /> I am on the same medication, have been for three weeks. How long did it take for the medication to work for you? and how long before you could cut down?

    Julies

Viewing 15 posts - 31 through 45 (of 55 total)