[julies]

in reply to: Allergies to Methimazole/ Tapozole – how long will it last?! #1068959

Hi josie,

sorry to hear about your rash fromt he methimazole/tapozole, however be careful with the ptu as well. I had a reaction to both, same thing rash/hives, it took about three weeks for it to go away all togther. Take care of your self.

Julie

[julies]

in reply to: What happens after RAI? #1068451

Thank you, for the support, that is great that your levels are back to normal runlaice, my endo told me to give up carbs and eat high protein diet. I would like to start back at the gym in late September. I am hopeful. I will let everyone know and review what Ski had to say, Thanks again,

Julie

[julies]

in reply to: Gutted and fed up :( #1068491

Oh Hyperm

I am so sorry to hear about your troubles. You really have been through such terrible times with this disease I hope feel better soon.
” title=”Sad” />

Julie

[julies]

in reply to: Hives Question? #1069418

Hi sue

Sorry I have not been around to get back to you, my job is nuts, going on vacation next week, staying home and resting are my plans

I was on both the Meth and PTU. They are diffirent medications, but still have the many of the same side effects. I got hot flashes and a rash with the meth, and hives and a rash with the PTU. Now I am looking forward to RAI. I am trying to schedule it during Labor day weekend. Right now I am on nothing but a sleeping pill at night. Did you talk to your Endo about the rash? Are you still on the medication, or off? how are you feeling.

Julie

[julies]

in reply to: My big day! RAI tomorrow #1069617

Runlacie

I am so happy to hear that you are starting to feel better and almost like yourself again. I made my decisionfor the RAI, it will be Labor Day weekend. My employer is given me a couple of extra days off. I called my endo yesterday, and I am hoping she will let me wait. I have been sick this long, a few more weeks will not kill me. Plus my goddaughter is having her first birthday on the 22nd. I do not want to miss that. I am happy with my decision; Thanks again for all the support.
Julie

[julies]

in reply to: My big day! RAI tomorrow #1069612

runlacie

How are you feeling this week?

I was diagnosed in April 09, but I think, I know I have had this for a lot longer. Yes I have had muscle loss. My skin looks loose, not firm like it use too. I push myself to do all the things I can. For the last few days the heat has killed me. I have not been walking because of that. Going off the PTU really sent me into a tailspin. I am crazier than I was before. I suck in the iodine at 95 % rate so the endo told me that she is going to give me a large dose. My vacation starts this Friday, last day of work. My problem is I would have to get the treatment on August 3rd. I guess that is my decision.

ewmb did you get your numbers yet?

Julies

[julies]

in reply to: Need Advice: Methimazole Allergic Reactions #1069428

I feel so bad for you right now, however the PTU may cause the same reaction, I did the bounce from the Methimazole to the PTU. I had a rash and low white blood count with the Methimazole. I was on a low dose of PTU and got a couple of hives, when by doctor brought me to a 300 mg dose of PTU I became covered in a rash. It was painful not just itchy. Try a cool bath with baking soda, that helps a little, stop the medication and contact your doctor ASAP.
It has been a week,and I still have the rash a little. It takes a few days to stop the progression after you stop the medication.

Julie

[julies]

in reply to: Hives Question? #1069415

Sorry to tell you but yes it is caused by the medication. I had that reaction to both of them. Look at the side effect sheets from the medication you are taking. I had to go off the meds because of the hives and a rash. Good luck

julie

[julies]

in reply to: My big day! RAI tomorrow #1069606

ewmb
How long after do you get the blood work to see if the RAI worked?
My doctor told me two weeks after. I really hope that you get good news, perhaps your body is just taken longer to adjust to the RAI.

I have two weeks, and plans to do things, I am told I have to use my vacation time before I can do any short term disablity at job. So is it just decided first or second, I am leaning towards the second week, doing it on a Friday and maybe going back to work on a tuesday. I was going to have the RAI done in September, because my employer was given be a day and a half extra. My doctor told me I can not wait. What to do,

Julie

[julies]

in reply to: My big day! RAI tomorrow #1069604

Congratulations runlacie, on the RAI treatment ” title=”Very Happy” />
I have no other options now; I must do the RAI or have my thyroid removed. I went to a new endo she is a really good doctor she spent time with me explaining everything about my levels and how sick I was. I guess it really never hit me that other people would notice my symptoms. No one told me that my skin would get hot, not a temp, just warm to the touch. Well this endo increased my PTU up to 300 mg a day I was only on 100. I felt better right off, but I got this awful rash very itchy, it has started to go away. She had to take me off the medication. I have a sleeping pill, and could start the beta-blocker again, but the beta-blocker cause me gain so much water. I gain 15 pounds; I was up to 130 from115 in just two weeks. So that is out of the question. I lost the weight, in two days after going off the beta-blocker. I am walking and swimming almost daily. I am just trying to decide today when to get this RAI treatment. My endo told me it takes about a week to come in, and I have to have a pretty significant dose because my intake is 95 %. My thyroid is very Hungry My vacation is coming up I have two weeks at the beginning of August. I guess I am trying to decide and I must today, and I am asking all of you. If I do this the first week, will I feel sick during my second week? I have been through hell this past year. I really would love to go to the ocean and relax for a few days.

any feed back would be great

Julie

[julies]

in reply to: ovulation hormones and bad day #1070496

Hi

Because I thought I was going out of my mind I called my primary care last week, (7/1) The nurse called me back the following day, she told me that she is hypo, and that calcicum helped, she takes 1200 mg a day, and it helped her. I am not sure if it works, but i started taken a1000 mg. a day, I am sure it will not hurt I am 43. I let everyone know if it works, but I am still checking in with my doctor.
Julies

[julies]

in reply to: So nervous – how will I cope? #1070069

"M" you are so strong; you are so helpful to all of us with your great advice. I know that how scared you are; I feel that panic right now. I know you will be fine. There is a client that comes to our center she use-to-use Cocaine. She found our in March that she had a toxic goiter. She had it removed three days later. She is on medication, and told me that when she woke up the next day, she felt like a new person. The anxiety and panic was all gone. It took her about three weeks to really feel good. She is a shining example of success.

I wish you success with you surgery. Know that I am saying a pray that you wake the next day and feel like a new women.

Love from Mass ” title=”Smile” />

Julies

[julies]

in reply to: Is it a bad day? #1070101

WOW, Thank you so much for all the support. I was saying the same thing about RAI when I first heard about this option. I thought it would be better to go the medication route, but I just do not know anymore. I really believe I have had this disease for many years. I do call my doctors when I really think I should. I spoke to my endo just wants to prescribe the PTU. She referred me back to my family doctor for the other problems. I called my doctor yesterday, and the nurse called me back; I am off the beta-blocker, and I gave her a list of my other symptoms. The nurse told me that she was hypo. She said something about increasing my calcium.
I am hoping for something for the panic attacks, they suck. I am so dizzy today. I feel like I am in a cloud. My son who is 21 is going to the doctor today, I really think he should be checked. He has some of the symptoms. Dry hair, loosing weight, very moody. It would be just his luck. When he was young he was allergic to the sun. He went into remission six years ago.

Thank god for the three-day weekend

Thank you very much for responding, I cannot tell you how much I wish health, and happiness to all.

Happy Fourth of July

Julie

[julies]

in reply to: Is it a bad day? #1070095

Yes, I am on a beta blocker and a sleeping pill besides the PTU. The endo wants me to have the RAI, I am not sure I am ready, but I do not believe I can handly these mood swings, and feeling so ill. I was going to go to the gym after work, but not feeling well enough today. I really wish I could work from home, but I work with the homeless, I kinda of have to be out and about. I am going home now, I am calling my family doctor to see if she can cut the dose down on the beta blocker. Thank you for the information about RAI, I am truly considering that option.

Julies

[julies]

in reply to: Is it a bad day? #1070093

Hi ewmb

Ijust started the PTU yesterday, a very small amount, the worse of it is that I feel cloudy, spacey, like in a fog. I wish I did not have to work today. I hate this, I want control of MY LIFE again.
As for the RDA, that might be next for me, I worry about the after effect. Did you feel different after the treatment, (Better)?

Julies

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