[julies]

in reply to: Effects of RAI #1067711

Hi Lucy

Please do not worry about RAI.. I had this treatment on September 4th this year. Although I had some side effects that where on the worse side of things. My thyroid was sucking in at 90%, so when it started to die off, my blood presure and anxeity went through the roof. I had pain in my neck, that made me cry the day after the RAI pill. I went through all of that and still believe it was the best thing I could have done for myself. The three days I spent away from everyone in my family was nice. You can be around your pets, so do not worry about them, if you have any. I spoke to my vet. It has been almost two months. I feel great. No weight gain, I watch what I eat. You should speak to your endo, and really get some facts about this treatment. It is worth the time, and research. I hope you feel better soon.

Julie ” title=”Razz” />

[julies]

in reply to: Weigh-in (just for fun) #1068759

Hi everyone,

Three weeks since RAI. I have not started to gain yet! I am eating under 1000 cal a day. I am only allowing myself yogurt, protein drinks, fish chicken, and veggies. I am staying away from the bread. I am pretty upset that I cannot work out right now because after my immune system hit my thyroid it then decided to attack my joints. I have pain in my right hip and right knee. Never had a problem before. I still do yard work, and run around all day long. I think that helps. I think that perhaps, that because I was so hunger all of the time with being hyper, that I might get lucky here and not gain too much I really hope!!!!!
I am not very hunger right now, but very thirsty all of the time, Has anyone else been really thirsty after RAI? I drink so much water I think I am flushing out everything I eat. I am starting to get tired in the afternoon for the past few days; I usually fix that with a medium coffee from Dunkin Donuts. My endo appointment in scheduled on October 29, @ 7:20 am in the morning, I have an hours drive to get there, not looking forward to that. I have some lab sheets from my endo that she gave me back in July. I would just like to if I am any closer to being normal. How long did it take everyone else to notice weight issues after RAI?

Julie

[julies]

in reply to: how do you get over the anger? #1068089

I understand how you feel, I was allergic to ATDs as well. Graves, sucks! and we are all stuck with it for the rest of our lives; I hear.
RAI is not so bad, I myself had a bad reaction to the treatment, but was fine a few days later. No weight gain yet, it has been over three weeks, I eat like a bird. I have other problems caused by the Graves, it has attacked my joints. They are unsure if I will every be able to be active like I use to be. It took too long for them to test me. Try asking your doctor for some medication to calm you down, it worked for me. Again as for the RAI, I had my whole bed to myself for three nights. That was great! ” title=”Very Happy” /> only the doggies could be around me, we all enjoyed the extra room. I really do not think you will ever really get over te anger, I still have it, I want someone to blame. I just live, and do my best to be happy with myself. I hope you can take care of yourself, and try to be happy.

Julie

[julies]

in reply to: RAI, not so godd reaction #1068326

Hi everyone,

Sorry not to get back sooner, but I do not have the Internet at home. Katet, I am so glad you are feeling better. Friday, I thought I was going to loose it my heart rate must have been near 140 I was so confused, and emotional, just started to cry for no reason at all.
I started my monthly, and the second day was the worse I can remember. So heavy, I wish I had stayed home. The one thing good about the whole thing is that I went from 20 days to 27, almost the normal break. My doctor called me some medications Friday night to calm down and they help. I am still very hyper. I have started to eat under 1000 cal a day, sticking to protein, low carbs. I am pretty tried all of the time, especially around this time of the day. I still cannot get much paperwork done on the computer, so I mostly just do things with my clients. Work is so busy, I am glad for that; it keeps my mind off of things. I purchase some natural tears; they help, when I remember to put them in, with my trembling hands.

How are you doing ewmb?

Julie

[julies]

in reply to: RAI, not so godd reaction #1068322

ewmb, glad to hear you can get out more, I have struggled with going to work for sometime now. I get a lot of anxiety when I drive, and also get dizzy, so I have to pull over, never mind the shakes in my leg, that is on the gas peddle, I notice that back in December 08 I am more hyper than every, my thyroid is a hard lump today. Feels strange, I am very winded as well. Katie, what side of your neck is the lump on, mine is on the right about the size of a small meatball, I am calling today to make an appointment for my son for an eye exam, and I will do the same for myself.
I hope everyone feels a little better today

Julie

[julies]

in reply to: RAI, not so godd reaction #1068319

Thanks for the information ewmb, I will pick up some natural tears.
How long before you did not feel so hyper?

Julie

[julies]

in reply to: RAI, not so godd reaction #1068317

Good Morning Everyone

Katie, sorry to hear about your eyes being so bad, and I hope I am not out of line, but your endo is being an asshole . I hope your eyes get better soon. I ended up calling my primary care doctor to get pain medication. Today, I feel better, but feel like there is a lump in my throat. I am sucking on cough drops and having cold drinks, I am having some difficulty with the ice cubes, too cold. I am a baby.
I am still very hyper even today. My eyes are watery, but they have been like that for months. I am going to try to schedule an appointment this week with eye doc. How is everyone one else doing? I hope better today. This support is so great. I do not even know how to thank everyone. Thank you so much, ” title=”Very Happy” />

Julie

[julies]

in reply to: RAI, not so godd reaction #1068313

You know you are right, I did not want to move my head it hurt too much. My right side of my thyroid is very enlarged; Today is better, I really hate talking, it bothers me. I am sure in a few more days I will feel better. Thanks for the information.

Julie

[julies]

in reply to: 6 weeks post RAI and all better?!? #1068403

Thank you, I do not have a computer at home, so I will check in with all of you on Tuesday, Have a safe and happy Labor Day Weekend

Julie

[julies]

in reply to: 6 weeks post RAI and all better?!? #1068401

Hi All

What all of you have said my doctor told me last night. My uptake is at 90 percent. So when I take a dose at 20, my thyroid will take in 10 of that. The recent aches and pains I am having are all due to the thyroid. My doctor was very supportive and will see me in four weeks instead of six. I expressed my worries about weight, she told me to eat like a bird as soon as I start feeling like I am slowing down. She recommends very low carbs, and protein. She really calmed me down. She told me that the radiologist thought telling me I would go hypo quickly would reassure me, it should of, but right now I am pretty much going nuts, and very emotional. I am actually now kind of excited to wonder what it will feel like to be normal. I will go through all of this and bitch and complain the whole time, but I realize now that it is what I have to do. Sorry to be so, crazy

Julie

[julies]

in reply to: 6 weeks post RAI and all better?!? #1068397

Thanks for the support; all I want to do today is cry. I am at work, and cannot get anything done. I have not seen anyone for my eyes yet. No time, no sick time left. I am taking Friday off for the RAI without pay. I guess I should not be vain. I will try to calm down.

Good luck with your dose katet

Julie ” title=”Sad” />

[julies]

in reply to: 6 weeks post RAI and all better?!? #1068395

I will keep everyone updated, just did my pre-registration, and asked what my dose would be 20 of the RA dose is that high? Now I am freaking out, the Radiologist told me that my doctor wants me to go Hypo. I do not want to go into being hypo right off, I am very upset, and will call my doctor, about this. I was very direct with her about a lower dose, because I really did not want to be on the medication for the rest of my life, I am ready to cancel all together

Julie

[julies]

in reply to: 6 weeks post RAI and all better?!? #1068391

” title=”Very Happy” /> ” title=”Very Happy” />
Congratulations Lacie, I hope I do as well as you; I have no clue what my dose will be on Friday

Keep up the good work ” title=”Wink” />

Julie

[julies]

in reply to: Just a small frustration #1068370

OH MY GOD

I cannot believe the treatment all of you have had; I went through some of this myself, with my first endo. I am also a little upset with my primary care, because I had symptoms of GD for over three years. Loss of hair not being able to sleep, dry skin, anxiety. I was received treatment for each of these issues, but not until I went in for a sick call for a bloody nose did another doctor notice the lump in my throat. I was pretty upset. The first endo I had was nice enough, but never in the office. I had all kinds of problems with the two thyroid medications, low white count, and rash/hives. I was a mess. When I called their office, the endo on call, was rude, she wanted me to have the surgery. I just said No, I just found out I had this disease in May. It is only July. Give me some time to work through this. The endo on call said, well when you decide to have the surgery call our office there is nothing more we can do. I almost lost it at that point. I called my primary, and went to a new endo; she is a little further away, but worth every mile. She explained the disease to me, and helped me process my sadness and anger. I keep thinking that if only they would have done a test a few years ago, I would somehow be not as sick. WHY DIDN’T MY DOCTOR TEST ME! I am an advocate for the homeless, so I should know better that maybe I should asked more questions. I am the consumer. I pay for their services. I have learned my lesson. I am more vocal now than every. I ask a million questions, as you all know, I post many on this site.
You know these doctors act that they know everything, but we all know our body’s so if anyone is unsure, please do not be afraid to ask why, and demand respect. If you don’t get it, go somewhere else.

Take care,.

Julie

[julies]

in reply to: What happens after RAI? #1068453

Thanks for the support. I will keep everything in mind.

Julie

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