[jstephens]

in reply to: Men With Graves’ and TED #1183995

@shimself I had mine removed because my biopsy could not rule out cancer and since I grew up next to Hanford WA nuclear reservation ( part of the Manhattan project ) I didn’t want to take the chance.

@ Mforsberg21 – there might have been some slight bulging but not nearly as noticeable as post surgery, seems to have improved once they got my levels sorted out.

[jstephens]

in reply to: Men With Graves’ and TED #1183992

I don’t have much to say but will try to answer any questions that come up.

My story is
Fall 2011 diagnosed with Graves
Feb 2012 biopsy could not rule out cancer. Decided to have a total Thyroidectomy I choose this path since I grew up near Hanford Washington this was part of the Manhattan project and is being sued by downwinders for all the radiation released that happened over the years. Mine ended up being non cancerous but I figured better to play it safe.

Shortly after surgery my TED started to show up. My Dr says it should get better after about 5 years. The past 2 years it does feel less “buggy” and I no longer have to use eye drops or gels at night. *crosses fingers

This past was the first we did not have to make any dose adjustments. Currently on 188mg of synthyroid

Still dealing with the mental side. Have good weeks and bad weeks. Mostly frustrating is the short term memory issues when you know something and want to say it but can’t spit it out.

[jstephens]

in reply to: Flu shot and Graves/TED #1175095

I should have included that i had a total thyroidectomy in Feb, so my situation may not be the same

[jstephens]

in reply to: Husband’s definition of support… #1174914

Sometimes i wish i had a open letter to the wives of GD patients i just compelted my first year of having GD and TED. looking forward to things calming down

[jstephens]

in reply to: Absent minded #1174971

do you have a link to teh research?

[jstephens]

in reply to: Flu shot and Graves/TED #1175093

My Dr recommended for me to get teh flu shot so i did also

[jstephens]

in reply to: Another RAI vs surgery post #1174430

i’m with Carito71, I had the surgery about 8 months ago and life is pretty good. takes a bit to get used to taking a pill every morning. the recovery was easy, never needed more than Tylenol. you are on light duty or 2 weeks so living alone may be a struggle.

[jstephens]

in reply to: eye coverings #1174452

Thank you Very Much

[jstephens]

in reply to: My Update – Thyroidectomy #1170432

Well made it home. The surgery went over by 3 hours because my thyroid had 8 “arms” wrapped around everything.. Dr said I’d made his top 5 for toughest procedures. I feel great only taking some tylenol for the soreness and a ice pack.

[jstephens]

in reply to: Please help choosing a right eye doctor. #1170400

Kimberly wrote:

Hello – Hopefully, others will chime in here, but if you no longer have bulging/protrusion issues, the surgery that is performed to correct double vision issues is strabismus surgery. One referral web site for surgeons in general that we recommend is http://www.asoprs.com.

(Note on links: if you click directly on the above link, you will need to use your browser’s “back” button to return to the boards after viewing. As an alternative, you can right-click the link and open it in a new tab or new window).

We have also just launched a physician registry of doctors who have told us they have particular expertise in Graves’. To access the registry, go to the home page at http://www.gdatf.org and click on “physician registry” in the box on the top right-hand side of the screen. Because we are just getting started, we might not yet have listings in your part of the country.

Looks like http://www.asoprs.com is no longer aatctive website

[jstephens]

in reply to: New to Graves and to NGDF #1169909

Thank you for the info

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