Thank you all that replied, your comments made me feel a lot better that i’m not in this alone. I know its been 6months, and truly just getting to read these post…sorry:-( but its been a battle with Jordan. It took him 4 months to start responding to the Methimazole and a lot of reading and praying on my part. It’s taking me a few months to even talk about his condition without crying. Its hard watching him go through what he’s going through at 4yrs old! But as of today I can happily announce his liver and heart are now normal but we’re still battling getting his T3’s and T4’s withing normal range. This month his T3’s were 254 and t4’s 1.8. instead of going down his numbers went up this month, so now we were instructed to give 30mg of Methimazole and consider RAI or surgery. I’m nevous about both and treatment options but hoping this increase in medication will buy us some time.
Thank you all again for your responses…
jordan’s mom Kim
