[Jolilly]

in reply to: New Member #1180227

Thanks Karen,

I am sorry you are on the TED path too, sounds like you have already been through plenty! I see my Dr. again on Monday and will see what happens from here. Thanks to all of y’all (yep, Texas) I have plenty to ask him about!

Jolilly

[Jolilly]

in reply to: New Member #1180223

Shirley,

Thank you for your reply. Some of the the things you have had done I have not heard of yet, sounds like you really have been through it all! I is encouraging to me to hear from someone who really knows what this is like.

My eye doctor specializes in Ophthalmic Plastic & Reconstructive Surgery, according to my endo Dr. he is the best in my area. He started me on the 60 MG dose with the long taper, like you.
Again, I think my husband is just scared, seeing the physical changes, it is hard to pretend nothing is wrong. Generally, he is a pretty good guy!

thank you for the encouragement,

Jolilly

[Jolilly]

in reply to: New Member #1180222

Kimberly,

thank you for your response and support. I think my husband is simple scared and overwhelmed by what is happening, in the 33 years we have been married this was not the first time he has inserted his foot into his mouth!
I made him sit down at the computer and read Again, about both Prednisone and TED. All is good again.

My Ophthalmologist is the one who told me about this support group and I am grateful to him for that, I am learning so much reading what others have been through, and so much I did not have a clue about! Sometimes it little things, like the occasional hand trembles, did not know that was the Graves!! The poos, did not know that was the Graves!! Its like a candy store of knowledge!

thank you,

Jolilly

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