[jmwatson1982]

in reply to: A low FT3 with Graves? #1181591

It’s a bit weird! Right now, my second RAI was pretty successful and now I need replacement thyroid hormone(which has been a journey in itself getting the right dose and trying to feel good) so I could understand my FT3 levels coming back low during this hypo period. But I happened to notice my FT3 was on the low end/decent when I was majorly hyper. Another person offered an excuse that your body uses up energy quickly when hyper, and that tends to be the T3, so your FT3/TT3 might be normal or a bit low even when hyper because your body is just burning through it so quick. Makes a bit of sense!

ETA:, I also still suffered from hyper symptoms when my methimazole just wasn’t cutting it anymore and after my first RAI while my labs all showed ‘normal’ ranges. I ended up having a really high uptake and scan both times I did them, even though my labs were great, so it’s definitely something that runs deeper than what your labs show. They had no real explanation for it-the only thing they could really say was perhaps it’s the antibodies.

[jmwatson1982]

in reply to: a little question about hyperthyroidism post RAI #1180441

Update: My latest results went back to severe hypo, so it looks like my RAI did indeed work this time,(my TSI went down a lot, too!) and half of 88mcg was simply too little. So right now, we’re going to try alternating-88mcg and 44mcg, to see if my body just needs something in the middle. Frustrating, but at least I know my RAI actually worked! (last time it took forever to convince them that the first one didn’t take.)Now, if I could only find that sweet spot…

[jmwatson1982]

in reply to: a little question about hyperthyroidism post RAI #1180440

Oop, I forgot to add in the FT4-during my hypo state, that showed hypothyroidism-0.8 when the lab range is 0.9 to 1.8-and the last FT4 went from that to 2.7, along with a TSH of .04, so something definitely jolted! I don’t have any FT3 labs, sadly. They only run Total T3, which is normal-in the low 100’s out of a range of 60-180. My last T4 was done in early July, but I don’t have the results-I had gone to the ER for something else entirely, they noted my pulse was fast, I told them what was up and they did a TSH on me, and that time was .03. I get waiting, but its quite tough when you feel hyper and have it ringing up hyper every time so far. I go back next week for an appointment, perhaps I can ask then if I can do the blood work that day to see if I still am. They said I was the only patient they can recall in many years of going hypo to hyper so quickly on medication, and that just raises a red flag for me that the RAI didn’t work again.

ETA: thank you for welcoming me and reminding me about the biotin, by the way! I took the biotin last time around when i was just on anti-thyroid drugs, but I’ll definitely pick up some more and look into the shampoo.

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