[jjbartlett]

in reply to: Side Effects From my antithyroid medication #1066113

I am taking Inderal and Propylthiouracil 100mg 3 three times a day. I was taking Tapazole 20mg three times a day. I didn’t know about Tapazole’s side effects until after I had been taking it. Now I know that both may cause similar side effects. I am going to try calling the pharmacy since no one seems to know. My doctor is almost always unreachable which troubles me because I think I should have a good relationship with a doctor who is going to treat me for the rest of my life.

[jjbartlett]

in reply to: How do people cope with the nasty comments and laughter ? #1066154

Thanks both of you, Kimberly and Bobbi, for responding to my post. I currently take Propylthiouracil and Inderal. I was taking Methimazole. The treatment options for me I have been told are lifelong no matter what I do. They told me my thyroid, rather or not I take medicines to control the thyroid, will not matter. My thyroid will eventually burn its self out and I will have to take hormone replacement when it does. So, I guess it is really of matter of when I want that to happen now or later. I have really been considering radioactive iodine because I really want to go back to how I was before. I want to exercise again and feel good about myself. Right now, I have been told my heart rate, even with medicine to slow it down, is too high so I cannot exercise. There is so much pressure in California to look good and I don’t. I get a lot of people staring at me because I am over weight and I look pale. I told my oldest daughter to visit this site and read the stories so at least one person in my life can understand I am not imagining these things. She was reading some of the entries and she was moved. I will try to figure out from Dr. Bui if she thinks that doing this now will help return my taste. You know what people the worst thing to me, because I love to taste things, is losing my taste. I took a bite of my Pizza today and nearly gagged because it had no flavor. It has been like this for 3 days now. I can’t eat and my mouth feels numb. Is this a side effect or an allergy?

[jjbartlett]

in reply to: How do people cope with the nasty comments and laughter ? #1066150

Well, I am new to this forum. I do know something about comments and insults. I had an enlarged eye on my right side and going through more test to determine if it causing problems or if it is the onset of eye disease. However, my Endocrinologist has never told me wither or not I have Grave’s disease or just hyperthyroidism. Is there a difference? My primary told me that it did not matter because the treatment is the same. In fact, it does matter to me. No one except those here can really understand the frustrations we face and the days of sickness. I am almost sure most people I associate really grasp that I fell tired, sick, full of anxiety, and I worry about my eyes and heart. I have been through so many test and now I have to go through more and the doctor’s still have not told me I have Grave’s disease. I see her again on Thursday hopefully then she will have more answers. The most recent good time is now I cannot enjoy food because I cannot taste anything. I called my doctor and she changed my medicine but she warned that this new medicine is known to cause live damage. Does anyone know how long this last? I quit everything I enjoy and now I cannot even enjoy eating. What’s next? I have considered just going and getting the radioactive iodine so I do not have to take these medicines anymore. Although, I have been told I will no matter what have to take medicine for the rest of my life. I have had others roll their eyes when I cannot walk very far. I had even one guy yell out a comment as he was walking into the store. I am lucky that I have my husband because I don’t know what I would do by myself. I wish I had more friends for support but, the ones I do have really do not think there is anything wrong with me. I am almost certain they have talked about me and how pathetic I am. At least here, I am surrounded with people who know. Thanks for being here

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