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in reply to: First blood work since diagnoses #1178803
Thanks all for taking time to respond. I saw the endo today. He decreased dosage from 20 mg to 10 mg due to the FT4 being so low and I’ll redo blood tests in 6 weeks. So far, the process has gone in line with what I have researched and feel it should go so I’m not sure why I seem to gear up for the opposite.
in reply to: Another hyper / hypo rollercoaster story #1178558I’m only 1.5 mos into this whole thing so forgive me, but why do doctors have patients just stop taking the meds vs. a slow wean to see how the patient responds?
in reply to: Stress and Graves’ #1177091^^^LOL! I just said the same thing to my friend two minutes ago.
in reply to: Is the Uptake Test Necessary? #1177122Does anyone know more info about a false positive TSI?
My endo’s concern of relying on TSI over uptake is false neg/pos with the TSI. So my thoughts for meeting in the middle is doing the TSI as a first step.
If it’s negative, I will proceed with the uptake to make sure it’s not a false neg and confirm the GD diagnoses or not.
If the TSI is positive I’m leaning toward assuming GD and moving forward with the same diagnosis and treatment as planned. At some point if treatment is not working and he wants additional diagnoses info I will then reconsider the uptake then.
Before proposing this, I want to understand the risk of treating as GD with a false positive TSI. Either way I “think” meds in year one was the plan.
I’m new to this so if you see a flaw in these thought processes please feel free to let me know and I can investigate more.
in reply to: Is the Uptake Test Necessary? #1177116Thank you for your replies it was very helpful as I can’t seem to find more than the standard explanation via Google. My concern is I have little ones and we do co-sleep at times – half the reason I never considered being tired an issue . I’ve also heard of “ANA” test regarding antibody testing…is that different than the TSI? He didn’t seem concerned about my nodules…I asked him directly if he considered cancer a possibility and he said no. He just said it was to confirm his GD diagnoses. I will try to email first. He wasn’t in a hurry so I want to make sure this is safe before scheduling it.
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