[jasmin24]

in reply to: I’m back, and need advice… #1170486

Thanks ya. I guess I was concerned with the fact that it seemed more urgent than I’m used to… Having this for 6 years off and on is enough… sadly i’ve been to a LOT of endos… im glad to find aone i like

[jasmin24]

in reply to: Reaction to Tapazole, now on PTU, normal side effects? #1065989

snelsen wrote:Hi Jasmin,
I am responding to your interest in knowing the experience of people who had a thyroidectomy. I was very toxic
(hyperthyroid) after the birth of my first child. Hyperthyroidism is the same thing as thyrotoxicosis, and boy did I feel toxic!
.

Thats how mine started too! ” title=”Sad” />

[jasmin24]

in reply to: Reaction to Tapazole, now on PTU, normal side effects? #1065986

Ski wrote:My goodness, what a tough time this is for you! It’s REALLY impossible for us to say what might happen next, considering your path, but it sounds as though your doctor is very responsive, and that’s definitely helpful.

Since you’ve been mostly unregulated, all of this may be predictable, I guess, but since it happens differently to each of us, sometimes we just have to take the ride and see what it’s like, if you know what I mean. Do the best you can, make sure your doctors know what’s going on, and go easy on yourself. Sounds like you are doing that.

You are SMART to check with the doctor when scary stuff happens (I’m sure you’re up on Thyroid Storm and its symptoms?), so keep doing that ~ don’t be afraid to "pester" them, it’s their job to monitor your health and give you advice. Hopefully the PTU will give you some relief until your surgery.

I’ve heard that when a patient has both Graves’ and Hashimoto’s, the typical treatment is ablation (either RAI or surgery), simply because it is so hard on a body to be constantly out of balance AND moving to extremes in opposite directions. I hope you are feeling better VERY soon, and please keep us updated on your treatment and how you’re doing!

Yes Im aware of thyroid storms, etc. I’ve been dealing with the rollercoaster of having both for 5 years, dx’d for 3 though. I was completely against any sort of ablation… but after a lot of research I realize I dont want to feel bad for forever. I am only 27 and have two young kiddos. Its obviously not going away ” title=”Sad” />. I’ve read (and dr confirmed) that if you have Grave’s and have RAI you could still get the "eyes"… I dont have that and dont want that. So we decided surgery is the way to go. We can’t do surgery until my levels are normal though. The dr said if I dont get better soon they will hospitalize me. On Friday they believe I had warning signs for stroke. Anyways, like I said, its just hard to know if im feeling better. Sure I feel better sitting on my butt all day :p i guess tomorrow will be the true test of how it is. Hopefully my middle schoolers will be nice to me.

Anyone have thyroid surgery? good or bad decision?

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