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in reply to: psych symptoms #1177108

catstuart7 and vanillasky, we are going get through this…one day at a time.

This forum is great and and its gotten me through many a tomes but I do wish that we lived in same city so that we could meet, chat, laugh, share just to help balance this weight on our shoulders. Don’t know what I would do if I didn’t have Internet.

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in reply to: psych symptoms #1177107

Kimberly, I appreciate your response and to tell you the truth I do not remember if it was you or someone else who responded to me. Nevertheless, I need support now and I am 100% positive that there a lot of people in our situation that have no idea how long this is going last; the feelings, moods, health etc etc. I respect the process but I see no harm in sharing, talking, listening.

A girlfriend of mine came by desk today to say that she knows another lady who is living graves and TED. She mentioned that the woman is really depressed and taking things really hard. I didn’t even hesitate when I told my friend to give her my # if she wants to talk.

I could have said, “Oh it’s too bad that we don’t have a support group in our area”, but when you have graves you already feel like an alien because very few people have even heard of graves. If and when she calls, I will listen and listen some more and share my own experience if she wants to hear it.

I am not her doctor, specialist, or counsellor but there’s nothing wrong me asking her if she has either of those supports and nothing wrong with me encouraging her and letting her know that she is not alone. I would even,like I’ve done several times before, refer her to this site (if she has access to the Internet).

Honestly, if more people in my area find out about my journey with graves and they want to talk and know about our lack of resources in Canada, I will not refuse to be an informal support to them. Awareness is key and that’s all I’m trying to do.

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in reply to: psych symptoms #1177103

Oh God…I’m having the same problems coupled with depression. I know it’s disease. I had a TT about 2 months ago and except for a little fatigue..I’m good. However the moods are something fierce (at times). I take no crap and my fuse is short..especially if I’m dealing with someone who knows me and is doing something they know I don’t approve of. I get so irritated and honestly it’s scaring me.

Normally I’m the nicest person, give you the shirt of my back and leave myself without. I work in the public sector and I will go to bat for my clients so I don’t understand what is happening to me. The depression can be overwhelming at times and I wish there was a support group in my area-heck in Ontario, Canada period but sadly there isn’t and I’m so sure that would help. I know this for sure. So much so that I want to start one myself. Not to offer or give health information because I’m not a doctor but just to talk, vent, share ideas and SUPPORT. I remember asking about that idea once before on this site and someone responded about all this “stuff” I would have to do in order to start a Graves/Hashimotos support group…personally I thought I was misunderstood.

I’m seeing my new physician on the 19th and will be requesting a referral to a psychiatrist; sometimes the thoughts in my head can be very convincing and I not ready to go yet. Yeah it’s that bad sometimes…but I can control and hide it well

[jaqeinquotation]

in reply to: Stress and Graves’ #1177092

Same here…..without a doubt my past relationship and the seperation caused the worst flare up. I always said to him that something there was something wrong, that I wasn’t feeling myself but he always brushed it off and said you’re fine, nothing’s wrong with you. Smh

[jaqeinquotation]

in reply to: OD might be cancelled…hot phase is back #1177069

Thanks Kimberly,

My pill bottle says Levothyroxin “Sodium” 100mcg. I feel like a mad person trying to figure this out.

One more question,

Can my family doc test for TSI if my endo refuses?

Thanks again for your patience with me…sorry to be such a bother

jaQe

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in reply to: First lab results after 6 weeks on Levothyroxine #1177044

Kimberly,

I wonder if the supplements have anything to do with it?
I’m taking a ultra mega multivitamin with minerals 2xs/day….Silica 1x/day, wild salmon fish oil complex (I “heard” fish oil is good for the eyes) and I just started taking a vitamin b complex 1x/day.

[jaqeinquotation]

in reply to: 2 decompression surgeries……. #1177017

I will definitely update

…at this point the surgeon has not asked to see one picture of what I used to look like and that bothers me lots…also it seems I’m back in the hot phase so with the new referral and TED flaring up again.. surgery will not be for a while.

[jaqeinquotation]

in reply to: First lab results after 6 weeks on Levothyroxine #1177043

Thanks Kimberly,

I posted a new topic asking if anyone else has heard of this happening but based in your response it seems it can happen….I guess it’s better it happened now rather than after the surgery right?

[jaqeinquotation]

in reply to: First lab results after 6 weeks on Levothyroxine #1177041

I recently got my lab results back after being on Levo 100mcg’s for 6 wks also and my endo reacted the same way when I asked why he wasn’t testing for free T3.

Standard ranges
TSH: (0.35-4.94)
Free T4: (8-15)

My results:
TSH: .33
FreeT4: 14

Endo says I’m a bit hyper and suggested stay on 100mcgs but only 1/2 of pill on Saturday and Sunday. I feel so so; fighting the depression related to the TED that is taking over now. I thought I was in the cold phase and had eye surgery scheduled for March but looks like I’m going to have to cancel cause the eyes seem to be acting up again and back in the hot phase…..anyways I’m going off topic

Praying for remission,

jaQe

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in reply to: Reason for Cytomel? #1177012

Thanks Kimberly:)

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in reply to: 2 decompression surgeries……. #1177015

Yes, on March 5th. It’s bugging me and I just wanted to see if anyone else has heard of 2 decompression surgeries.

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in reply to: How do you cope with being on the knife edge? #1176945

Gosh I need to get a shirt like that made. As a matter of fact…I’m going to get a few of them done up in different colors.

Hang in there jclark3…I’m praying for us all!

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in reply to: What questions should I ask the Ophthalmologist? #1176771

Your way makes much more sense to me and when I go see him on March 5th I will ask him to clarify. I booked surgery for the 27th but for me if I’m not comfortable I’ll postpone if I feel a second opinion is necessary to put my mind at ease.
Come to think of it I’m pretty sure he meant two different surgeries. I remember him saying that when he removes the bone..I would probably wonder the need for that surgery; that the eyes would go back about 2-3 mm and that I wouldn’t see much difference until he removed the fat??? And we were talking about doing both eyes at the same time. I wonder if the surgeries are done differently here in Canada?

Personally I would like the eyes to go back to 19 or 20.
Am I asking for too much?

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in reply to: What questions should I ask the Ophthalmologist? #1176769

gatorgirly,

Did you have the bone and fat behind the eyes removed in one surgery or two different? My specialist gave me the impression that it would be 2 different surgeries. For example, bone then fat, then if necessary double vision, then eyelid surgery.

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in reply to: Anyone using Lotemax, Nasonex or Selenium? #1176918

Thanks Kimberly! I’m hoping people chime about the Lotomax and Nasonex…interested to hear if others have been prescribed those instead of prednisone.

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