[jamcam66]

in reply to: Curiousity… #1172044

Hi Bri.

I don’t mean to frighten you or ANYONE reading this, but I cannot sit here & read your post without commenting.

Something You & EVERYONE should be aware of……..YES, you should be VERY concerned with easily bruising that you have never experienced before taking Methamizole!

One of the side effects of Methamizole (although not frequent): Unless of course it happens to YOU! Acquired Aplastic Anemia is a real & mentioned side effect of these meds. Most have most likely NEVER heard of this rare disease. (Only 3 in 1 million in the US will acquire this disease every year).

Aplastic Anemia is a Very Rare, but real Very Serious Bone Marrow Failure Disease. The main symptoms are: Low white cells, Low red cells & Low platlets. Low Plateles=Easy Brusing & Bleeding!! Aplastic Anemia is a Very Serious Bone Marrow Failure Disease!! The side effects on your Rx script barely even mentions this Potenially Fatal Disorder, but it is there & it can occur!

I know first hand all about Aplastic Anemia, because my husband is fighting this Very Serious & Very Rare Disease. (I must mention that my husband did NOT acquire this disease because he took Methamizole, but it CAN be a cause).

Because of my first hand knowledge of my husband’s experience of this disease, I immediately recoginzed mention of the disease & the side effects/symptoms in the Rx paperwork. Therefore, I was VERY concerned when my Endo prescribed these meds to me for the treatment of Graves. This is why I am sooooo scared to take these meds!!!!

Very worth mentioning for all those who are weighing the pros/cons of different treatmenst available for Graves.

I’m VERY interested if any of the administrators are aware of this potentially VERY Serious Side effect!

Peace, Love, Health & Happiness to ALL!
Jennifer

[jamcam66]

in reply to: HELP: Could it be a misktake???!!!….. #1171935

Yes…It was a MISTAKE!!!

The labs told the story & I should have listened to my body & myself!

The “Office Girl” told me to increase the meds. My Endo said to STOP the meds!

Saw my Endo today & that is what he told me. It was a MISTAKE!!

I should have stopped the meds NOT increased them!

I am sooooo angry! Well the Good News is that he told me to stop meds & I am probable in remission! Yeah!!!!

See him in 3 months for another lab.

If I come back with “Needing mor meds”: I will get a second opinion this time!

Check back with you all in 3 months!! I’m outta here!
Jennifer

[jamcam66]

in reply to: HELP: Could it be a misktake???!!!….. #1171933

Kimberly:

Thanks so much for your thoughts. Your last reply post is EXACTLY why I am questioning EVERYTHING! (Including my Graves Diagnosis)! Perhaps I don’t have Graves @ all & I was/am “subclinical”. My symptons for seeing my General Dr. in Dec. 2011 was pain in the thyroid area, anxiety & slighly elevated heart rate (80-95 BPM). The pain in my thyorid area left fairly quickly (before any meds), so I’m not sure now it is/was even related. I wonder now looking back if the severe stress I was going thru @ the time was the main factor for my anxiety & slightly elevated heart rate.

My original labs (before my Graves diagnosis) from Dec., Jan., & Feb. all show my TSH being low. However, in those beginning labs my T3 & T4 were all in normal ranges. I asked about this & my Endo still insisted that I am “Mild” Graves Disease. He told me about all three treatments & I chose the Meds.

Now I can’t explain as to why he has not done the T3 & T4 testing on these recent last two labs, but I am feeling very nervous about my numbers now edging towards Hypo & the strange & sudden increase of meds when the TSH clearly has come WAY up.

I called my Endo’s office this morning & asked that the Dr. please call me to discuss my concerns about the labs & meds increase. The receptionist told me that she did not want to argue my lab numbers as she is not the Dr. Then she said that the Dr. probably won’t call me since I have an appointment on Wednesday. (Seriously……What??!!)

I’m sure that I will have an interesting visit with the Endo on Wednesday. I just am afraid now he & his office thinks I am a nutcase in asking all of the questions.

Frustated to say the least!
Jennifer

[jamcam66]

in reply to: HELP: Could it be a misktake???!!!….. #1171929

Thanks for all your responses!

I did make a “Typo” error: It should be TSH, NOT TSG. Thanks for pointing that out to me & for your concern & advise! Also, my TSH number of 3.910 is marked High by the lab. FYI: The “Normal” reference range on the lab report says that Normal is: 0.358-3.740. So it looks like I am now Hypo in my opinion & therefore I still wonder why he increased my meds.

I am going to call my Endo’s office tomorrow & NOT wait until my appointment on Wednesday & I will ask that the Dr. call me personally to explain why my dosage was increased when on my labs clearly indicate my increase towards being hypo.

I also want to ask everyone out there (& I will also ask the Dr.’s opinion) on stopping the meds completely & taking a “Watch & Wait” approach. I read online that some Dr.’s are now taking this approach with non-severe cases. I only wish I would have read this before & asked the Endo before I started taking the Methamizole. The Endo had veven told me that I have “Mild” Graves Disease (whaterver that means).

Has anyone out there ever gone to a “Watch & Wait” phase. There are only two board certified Endo’s within a 150 mile radius in my area & I don’t want to offend my Endo by questioning him too much. I wonder if my Dr. will get mad @ me & think I’m a nutcase.

Peace, Love, Health & Happiness to ALL!
Jennifer

[jamcam66]

in reply to: Relapse about 4 months after RAI #1171912

I am so sorry you are experiencing such confusion with your GD. I am too as well & it is confusing! And soooo frustrating. Sometimes you just don’t know what to do & the end up posting on this site. (So glad it’s here)! I just wanted you to know I read your story & I wanted you to know that you’re not alone.

[jamcam66]

in reply to: HELP: Could it be a misktake???!!!….. #1171923

Thanks so much for your input Alexis!

No, I have never had any children. So therefore, it could not be Postpartum Thyroiditis.

I’m still very concerned as to why they told me to increase my meds when the labs indicate High TSH. Anyone else experience this? Is it normal to increase the meds when TSH is now high? Thoughts anyone?

I will be seeing my Endo on Wed. & I will of course have many questions for him.

Thanks Everyone!
Jennifer

[jamcam66]

in reply to: My period is almost 2 weeks apart now…Anybody Else?! #1171676

Thanks to all who responded!

Kimberly: Thanks for the info & advise!

Darcy: Yes this Totally sucks!

Chelle: Your story & (period times) are EXACTLY what I am experiencing!

Update: I decided to called the Endo (On Monday). The Dr. sent the order for a hormone blood test, which I did Wednesday. I am awaiting my results……..We shall see if I am already going Hypo. I think I might be because I have zero energy, muscle pain & I have gained 6 lbs. since I started the VERY LOW dose of Methimazole. (When you’re only 5′ tall that’s A LOT)!

Anyway, thanks for everyone’s input & I hope we get this right. I just want to feel good again!

Peace, Love, Health & Happiness to ALL!
Jennifer

[jamcam66]

in reply to: Diagnosed Dec 30, 2011 #1170691

Hi Angela!

I’m very sorry you are have such a rough time of it. I’m new to all of this too & I will pray for your recovery. I have thought of you often since reading your post yesterday & I just wanted to tell you that you are not alone & please let us know how you are doing!

Peace, Love, Health & Happiness to you!

Sincerely,
Jennifer

[jamcam66]

in reply to: Hi, Im new & Confused. Please help……Sorry if long! #1170671

Hi Bobbi & Kimberly too,

Thanks to your both so much for your explaination(s) of the process of diagnois. It will come in handy when I speak with my Endo again. Perhaps then I will feel more confident in my decisions of treating my illness.

I wish everyone reading this Peace, Love, Happiness & Health!!

Many Thanks!
Jennfier

[jamcam66]

in reply to: Hi, Im new & Confused. Please help……Sorry if long! #1170670

Thanks so much for your detailed & heartfelt response. I will definately ask for the “Number” of my iodine uptake test when my Endo calls me back. I know that I seem sceptical, but I just want to be certain that it is actually Graves & not from another cause. Mostly my scepticism comes from the scariness of an acquiring a potentially serious illnes, but it seems “treatable” & not something that is life threatening or fatal if treated correctly. I just need to keep positive and trust in my Dr’s.

Your story is very similar to mine & also the timing too. I hope the best for you & let me know how you are doing. I think after I speak w/my Endo & get my numbers again, I will feel more confident in all my future decisions.

Peace, Health, Love & Happiness to ALL!!

Jennifer

[jamcam66]

in reply to: Hi, Im new & Confused. Please help……Sorry if long! #1170666

Thanks Shirley & Everyone!

My heartrate is above normal. Sometimes @ or slightly over 100 bpm (But I dont think that is in the dange zone). I do have palpataions & must take deep breaths a lot. Of course there’s the Extreme Anxiety too. I’m either freezing or hot. There is almost no inbetween. The threshold for my body temp for me to be comfortable is a very fine line. No eye involvement that we can tell. I do have pain in the thyroid area that comes & goes. Sometimes I feel some small lumpy area(s) on the thyroid. They come & go too: Stange I know.

Don’t get me wrong. I do like my endo. It’s just that everything I have read makes me feel, that it is so difficult to diagnois. Should they have done more tests to confirm (Or convince me). Because only my TSH is low & my T3 & T4 are both in the normal range, i’m just not convinced it’s Graves Disease. Unless I just dont understand the labs. (I’ve only had 3 labs).

I have also have had an ultrsound & the iodine uptake test. Although, I do wish he would have shown me the iodine uptake scan results. Isn’t there a photo or print out of the scan he could have/should have shown me? (Just like when you break a bone they show you the xray).

Should I have “watched & waited” a bit longer before taking these meds? I’m so glad I found this website before I “Killed” mu thyroid with the RAI. I actually had the appointment to do it until I read some things about about it here & other places on the web: I quickly cancelled it! Why take the radical approach if it’s “possible” to put it into remission!!!

My doc wants me on the MMI for 3 months & then come in for a follow up labs. The MMI Rx dose: 1 pill (5mg) 2 times a week. It seems conservative from what I’ve read here.

Thank you so much for you kind thoughts of my husband. He has been diagnoised with Aplastic Anemia which is a Very Rare bone marrow failure disease: Only 1 in 3 million are diagnosed with Aplastic Anemia per year. FYI for Everyone: When I read the side effects of the MMI meds I’ve been prescribed: Aplastic Anemia is one of the rare side effects!! So you can understand when I read that: I’m sooooooo afraid to take these meds, but I guess there is no other choice!

I’ve always heard that life stresses can bring on disease. I’ve always been a “Worrier” so perhaps my husband’s illness in combination with my Mother’s declining health (She’s 81) & other stresses I’ve been going thru was just too much. I suppose I need to take up some yoga !!

My wonderfrul husband has had some improvement & we pray for a spontanious recovery (although rare). My illness pales in comparison to his. I need to be strong for him: He needs me now more than ever!

Hugs, Health & Happiness to ALL!

[jamcam66]

in reply to: Hi, Im new & Confused. Please help……Sorry if long! #1170664

Thanks to both of my responders for the advise, info & encouragement! It really does mean so much! I know it is possible to live a “Normal Life”, but it’s new & scary when it’s the 1st health scare of your life & the anxiety that goes with being hyperthyriod certainly does not help.

Peace, Love, Health & Happiness to ALL!
Jennifer

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