[hyperteacher27]

in reply to: Hair Loss #1066012

Thank you to everyone who has responded. It is comforting knowing that this is not only happening to me, though of course no less frustrating and upsetting. Again, it is so hard to express concerns over something like hair loss without sounding vain, but it is scaring me that Graves Disease is changing me more than just internally…

I will try the Garnier product and take the advice of not messing with it too much. I’ve always had long, very thick, very curly hair…so cutting it short is just not something I can even wrap my brain around right now…I am just hoping it doesn’t get so awful that I have to.

Thanks again!

[hyperteacher27]

in reply to: Blood Work Shows I’m HYPO just 6 Weeks Post RAI #1066767

I am a teacher, but I teach high school. Not sure if it matters all that much. I went back to work after three days. Had RAI on a Monday and was at work Thursday. I think that all doctors and hospitals are different. My doctor is super laid back and I think that if there were a TRULY SERIOUS risk of exposure to others she would take it seriously. She told me to use disposable items for three days, where everything else I read said not to throw anything away because then the contaminated items would be in the trash exposing my little sweat droplets or whatever to goodness knows who! I mean it can all get SO scary when you start reading too much, but honestly she just said don’t share a bed with my fiance for three nights. Use disposable goods for three nights. Keep a distance of approximately 3-6 feet to all individuals for three days and that is really it. I mean at first I was certain that things I touched without gloves would contaminate my fiance and I forever. I was like, what if the iodine just stays on a book I was reading for example and I pick it up in a week and it keeps destroying my thyroid more and more. Nuts right? Well now I’m just SO glad to have done it. It worked so fast for me, and I am super grateful for that. It was the smartest medical decision I could have made at that time. I was miserable and I did not have to stay miserable for as long as it sounds some people do. Obviously be careful with the exposure to your baby and follow the precautions given to you, but do not stress!! Good luck!!

[hyperteacher27]

in reply to: Blood Work Shows I’m HYPO just 6 Weeks Post RAI #1066765

Thanks guys! You’ve both been really helpful and supportive on here! I do appreciate it.

[hyperteacher27]

in reply to: How long did it take you to go hypo after ablation? #1067058

Hey Kelly,

That is exactly what happened to me! Itching, sweating, rapid pulse and hand tremors all came out of NO WHERE and they came fast and furious making me feel horrible mentally and even more so physically.

I too had long dealt with what doctors would say was IBS and fibromyalgia, so I’ve always had chronis things that bother me but also that become like second nature to me.

I opted for the RAI right off the bat. Within weeks of being diagnosed with Graves’ by an Endocrinologist, I was scheduled for RAI.

It has now been just a bit over 5 weeks since I had it and I have NEVER felt this good in my life. I posted under an old thread of mine, but I just feel amazing: everything from my skin to my stomach to my hair to my heart. I am the most calm I have ever been too, typically I have been a very anxious/worried person.

Definitely do not be afraid of RAI. I have high hopes for you! Take care ” title=”Smile” />

[hyperteacher27]

in reply to: HAD RAI Treatment at 9am Today #1067212

Hi all and Happy New Year!

I just wanted to give an update as tomorrow will mark five weeks since my RAI.

I am feeling the best I’ve felt since my symptoms of Graves’ came on abruptly in August 09.

The biggest perks have been that my itching is almost completely gone. I’m not insanely hungry anymore. My pulse is no longer racing. I’m sweating right now, but mostly because I’ve been cooking meatloaf and the heat in my apartment is way too hot, but the sweating has gotten SO much better. I am sleeping better. I’m more focused and my tummy feels better!

The BEST news is that I had blood work on Dec 15th, which was only 2 weeks post RAI and three out of four tests came back saying I was in normal hormone level range. I’m sorry I don’t have numbers.

I know this counteracts a lot of what has been said here, but my doctor told me my dumping would take place within a few days of receiving the treatment and so far that first week of the treatment was when I felt the WORST. Ever since then, it has been only getting better.

My doc said she was a bit surprised how fast it was working on Dec 15th and that when I see her in January she wouldn’t be surprised if I had gone a bit hypo. The good news is that right now I am not lethargic, I’ve only gained 3 lbs and hey it’s the holidays! and I’m not colder than anyone else around me here in Boston!

I hate to sound like I am gloating, but I really do think people need to hear good news to keep their spirits up and stay hopeful about remission. Graves is a truly taxing disease on mind, body, and spirit and I am so thrilled that I found this message board along with a great doctor who helped me choose, apparently the right path of treatment.

Be well everyone and best wishes to you in 2010!

[hyperteacher27]

in reply to: GETTING RAI ON DEC 16….I’M SCARED #1067121

Good luck on Wednesday, Pat! I had mine done Nov 30th, so just two weeks ago today and I am already feeling a little bit better. I had labs done today and plan on calling my doctor tomorrow for the results, so we shall see!

Only one person responded to my previous post about getting a yeast infection OUT OF NOWHERE a week post RAI. Any more thoughts?

Thanks guys and be well!

[hyperteacher27]

in reply to: HAD RAI Treatment at 9am Today #1067210

Hi All,

So it has been one full week since my RAI treatment. Definitely feel like my "dumping" happened fours days post treatment. I am feeling much less jittery today, and not sweaty at all! I actually wore a long sleeve shirt today! shocking!

Now I am not complaining at all, just wondering if anyone has had a similar experience. While I am feeling like some of my hyper symptoms are slowly fading, I also just came back from my PCP and she diagnosed me with a yeast infection and a sinus infection. WTF? I don’t feel all that bad, but had a scheduled follow up with her (she referred me to my Endo back in October) and I figured I would mention the few things that were ailing me (dry cough, post nasal drip, slight ear pain and then some classic yeast infection symptoms, subtle but there)

Is this normal to be open to infection easier post RAI?

Any thoughts would be great. And sorry if I gave TMI. You all have been wonderful!

[hyperteacher27]

in reply to: RAI update #1067181

Hi Folks,

I am four days post RAI and today has actually been the worst, but maybe just because I went back to work. I teach 9th grade English and throughout each class I was sweating so much that sweat was dripping off my nose! ” title=”Sad” />

I have also felt my heart pounding all day.

I am hanging in there though and can’t wait to start feeling better! I am actually looking forward (in a very disturbing way) to feel hypo, just because I have no idea what that feels like.

More to come….

Oh and my doctor is having me get labs on Dec 16th so we’ll see!

[hyperteacher27]

in reply to: HAD RAI Treatment at 9am Today #1067209

Thanks! Glad to hear that 4 weeks post treatment you are feeling better! I definitely plan to start exercising regularly again. Before I was diagnosed I found the joy that is ZUMBA! It is so much fun and such a great workout; I can’t wait to start up again.

I have to ask. You mention something about not having to eat once you wake up anymore. Why did you before? Was it because you were so hungry? Was it because you were nauseous?

I am hungry ALL the time and because I eat all the time now, I am so much less nauseous than I ever have been in the past.

Did your insatiable hunger go away after treatment?

Thanks again and be well! ” title=”Smile” />

[hyperteacher27]

in reply to: HAD RAI Treatment at 9am Today #1067207

Hi Babs,

Day 2 and I’m still feeling fine. I hope to start feeling "better" (as in relief from hyper symptoms) soon.

My dose was 12.9 mCi and my uptake was around 75% when I got the initial scan.

I live with my fiance and we are being as careful as possible regarding exposure. He works during the days so I’ve just been hanging out my segregated area on the couch and the bedroom. He has the guest bedroom and the kitchen and the other side of the couch! I’m using throw away utensils, cups, plates, and paper towels instead of hand towels. I drank a TON yesterday and probably urinated at least 8 times, which I think it is good. We only have one bathroom so I have been flushing twice and wiping the seat, handle, and sink down with Lysol wipes every so often.

Hopefully he won’t develop a weird thyroid problem because of this; I would hate to do that to him! It is scary to think that my treatment could harm him, but I think it is the best thing I could have done.

I will definitely keep updating everyone with my progress as the treatment continues to do its job.

THANKS!

[Author]

Posts