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Hi – good for you a BIG step in the right direction! I am now 14 days post op!
Its the ENT surgeons who do it over here in my locality. They just run through the risks – which they have to and I asked questions about complications etc.. she was very reassuring
” title=”Smile” /> I asked about returning to work ans explained the nature of my work to her
What will happen after the op – how long will it take to recover –
I also asked what seemed a really obvious question but I asked about my GD and her confirmation that I will always have it…she was great in explaining it all to me although admitted that an endo would be more qualified to do so.
she explained about scarring – wasn’t worried about that at all and infact you would hardly notice my scar at all – she has done an amazing job
How long will I be in hospital?
when I can I start lifting as I have 2 kids etc..?What I didn’t ask and should have (perhaps actually discussed with my endo) was how i would feel going from hyper to hypo – that has been my biggest challenge emotionally
” title=”Wink” /> Can’t think of anything else as she was so well versed as she highlighted she did around 40 thyroidectomies a year so it was all in a days work for her and her confidence and reputation settled my uneasiness – although I was still very anxious about the op itself.
Also my levels were running hyper at the time of surgery but it still went ahead – may want to ask about possible scenarios like that?
Wishing you lots of luck! Its the best decision you will have made with regards to your health! I have no regrets what so ever
” title=”Wink” /> xxx
Nancy thanks for that info!
I don’t know if I could survive a seperate thread for dreams as I can’t stop laughing at runlacie and it was lethal even coming on here tonight with stitches in my wound lol!
I certainly have been dreaming more and I do think it is perhaps down to hormonal influences. Some of my dreams are real hooters! As long as there are no dream pyschologists on here then I will be happy share my most strangest and funniest dreams
” title=”Very Happy” /> . Sometimes my hubby thinks I am complete nuts! He said one morning – you are weird you were talking in your sleep last night! I was being defensive and then I blurted out "Oh I had a dream I went to the moon last night" he just collapsed on the floor in fits 
I even had a dream I was married to George Clooney – oh boy was that depressing when I woke up and it wasn’t true!
My anxiety dreams are always to do with flying and I can’t get to my seat on time to get my belt on – those are horrible
” title=”Wink” />What a wealth of information – amazing how the assumption is made because they are the same meds that they will have the exact same active ingredients! I bet there are loads of people out there who are in the same boat and their GP’s don’t have a clue about any of that.
Its like when I when to the dentist just before diagnosis and when they gave me the jag to numb my mouth my feet were practically hitting off the ceiling like Micheal Flatley in the Riverdance
. I didn’t know at the time my GD had become active and therefore shouldn’t have had anything with adrenaline. I then got a sticker on my notes saying I had to get the injection without adrenaline for any further procedures. I didn’t even know that injection existed ( my uncle is a dentist) and I bet there are thousands of people out there who feel awful with that jag never mind visiting a dentist! its all cost effective as I am sure that 99% of the population would rather have an andrenaline free injection… Over here its cost cutting on the NHS! 
You have truly helped a lot of people just by that research! Well done you!! xx
HI that was a really interesting read especially to me who has just had a TT on the 22nd of July. However, as typical of me I ended up in intensive care as I was toxic at the time of surgery and tachycardiac throughout. I vaguely remember fighting off the staff as I went into recovery from the op
In the UK they keep you in for 3 days. I was in for 4. I was started on the second day with 75mcg of thyroxine. I was very hoarse and it took 24 hours before I started to eat ice- cream – very hard indeed lol! Then I made myself eat some form of solids on the 2nd day to prevent a laxed throat. I am now 12 days post op and I am still very hoarse and can’t raise my voice. My scar looks very neat as I had internal stictching and my surgeon has a fantastic reputation for both surgery (most important to me) and her incisions and scarring. I too have just been applying the water hose to the applied area and allowing it to run off the scar and dry with a clean seperate towel. I was lucky that I did have wound pain but I managed on paracetamol as I was reluctant to take other pain meds as they make me sick. I have not had pain meds in about 5 days, I am finding the mood side harder to cope with.I made the decision for surgery after a horrible experience of a TS and then my levels were not being controlled well with meds and had issues with continuous low WBC . I was absolutely petrified but I knew I couldn’t face another TS and I had to think that I could feel well after this. I feel my neck so light and "empty" after having a really large goiter – seemingly the biggest my surgeon had seen in along time and that was it smaller than after the TS – its a strange feeling not having my thyroid in there.
I was slightly worried today as my heart rate was around 65 – which I felt was very slow but I know that I am tired and haven’t had much sleep so that could be the reason.
I too am being very careful as to what I eat and I have lost about 5lbs too! I hope it stays off. I am now starting to feel more mobile and I can move my neck better (probs due to dressing positions) I am hoping by Friday I will be able to start lifting the baby and start being more active in family life.
Now in hindsight when they offered me surgery 4 years ago after diagnosis I would go for it! I would not want anyone to go through how I have felt especially the last 8 months. It is major surgery and I am slightly anxious of being completely hypo now – but I am trying to relax into that and also into the knowledge of no more thyroid storms.
Look forward to hear what the weeks ahead bring for you – keep us posted !
xx
Thanks to you all – very much for all your support and words of wisdom. I made sure I spent sometime with my eldest today just playing board games on the couch – I want him to be as secure as possible as I think that is why he is playing up as much
” title=”Sad” /> . Then I decided that it was a cuddle on the couch day so when the baby had his feed my hubby tucked him into me to go to sleep on the couch – oh I love those cuddles and my eldest who is 4 lay on a bean bag next to me on the couch and we watched Toy Story 2 – twice! I gave myself a break and didn’t feel guilty for lying about and letting my eldest watch TV most of the afternoon. We all fell asleep – guess we were all needing it.I can feel the panic starting again and I know its going to build up so yes I am going to the diazepam after writing this and cut myself some slack
” title=”Wink” /> I hope it is able to settle me for the night. If it was just me in the house I would try to hold off but I can’t make my family’s life a misery, when as you say Nancy it is there to take and I would too tell someone, that so I guess I need to take my own advice. I am determined to get the kids sorted for the night and get into comfy Pj’s my hubby is off to rent some DVD’s and hopefully I will feel less tense ” title=”Smile” /> Thanks so much again – if I could group hug you all, I would! You are all my extended family xxxx
p.s Yes I think that is around the weight limit for lifting and I have been told not to lift until the end of next week – that will be 2 weeks post – op xxx
Hey,
Well last night was awful I was on the verge of getting my husband to call someone to get me sectioned… My eldest woke up at midnight (surprisingly he has been in his own bed for a few weeks now I think down to mamabears vibes) anyway my hubby went int to settle him and he blew a massive tantrum …. It was the final straw I just couldn’t take anymore and genuinely thought that was me away.
I feel so ashamed that he had to call my mum at that time of night but she came up and helped to settle me. She looked at the list of side effects with thyroxine and one is restlessness and anxiety. I have had thyroxine in the past but coupled with carbimazole.. I think Ewmb you are correct in that I am going hypo and perhaps that coupled with the meds then all the stress is just a very bad cocktail. I have never been this sort of person. As Sue said we are survivors so this is a complete change of personality.
My mum had highlighted my sister was very low after her op and it took a few months for her to feel normal… I don’t recall too much about that period but I do remember her calling her fiancee to come down and she was crying on the phone as he wanted to go to a football match -she ended the 7 year relationship that night for good. She and my husband reiterated what my surgeon had highlighted that I was very overactive and basically toxic at the time of surgery with a resting heart rate of 150 at the time of going to op so that I would slide down into hypo. EWMB I think you are right that these hormonal changes are really taking effect. My mum pointed out that I have been through a hard time with the TS – which had this effect on me and that I am not superwoman and that I do have a very sensitive system in which I take reactions to everything so no doubt my body is being its usual self at the moment and struggling to cope with all the changes. I am just so scared it is going to be the same as after the TS and take a long time for my mood to change. Also, she ,like all of you have pointed out – my sister came home from her op – she hadn’t been as ill just a large goiter that was unsightly and she had no kids and a family of us to help out..I do recall her being emotional and tired all the time but she too is a get up and goer so I suppose she just got on with it the best way she could.
I am absolutely shattered this am as is my hubby and mum. But as you all know with kids – if you have only had an hours sleep you still need to get up. Hopeful you are right life is hard and I know that there are so many worse people out there than myself…I try to hold onto that thought to keep me calm and ashamed of my own selfishness but at the moment I just can’t control these feelings. My youngest is teething terribly the wee soul and I suppose it doesn’t help to hear a crying baby – even though my heart is aching for his pain….
Just a bad combination of physical/mental and emotional factors at period in my life where I should be getting peace to cope with the physical…
Thanks all so much for your input. I wouldn’t say I feel much better this morning just drained from a night of fighting whatever this is going on inside me.
I have made it through the night and am trying to stay within this "rationale" frame of thought as much as possible and I suppose its back on the diazepam – my mum also pointed out that in general after the high doses I had been on the week leading up to the op and then the time in hospital that normally people need to weaned of them so that perhaps isn’t helping that I am just taking as required as I hate taking meds like that
Thanks again… I am sure in the next few days as the levels start to even out I will look back at this and be so embarrased
m xx
Hi Sue,
Sorry to hear times are tough! You did make me laugh at the end though!
” title=”Smile” />No its not easy and its also very hard when people are trying to help by being positive but its not that we aren’t being positive its just a darn hard life eh? My hubby is good at times but he is exceptionally moody! I kid you not when I look back at our years together before we got married I see alot of the syndrome "women who love too much". I also see in hindsight (perfect vision I know) how moody he was then
” title=”Wink” /> I can appreciate what you are saying as couple of days before the op he said so what time do I pick you up that night!
I was like oh dear my hearing is going too! I just glared and said I will be in for 3 days at least! He was like well you don’t tell me anything and I answered well did you ask when I came home from my consultation? Nope you just kept on ironing! Then when I went for my pre ax both him and my mum had a bug so couldn’t come to the hospital. My mum knew how nervous I was and said she felt awful I was going there alone and he replied "oh don’t worry its not as though she is sick or anything" Do you see where I am going? I feel so disheartened. I know he has had a rough ride but I have been at the head of the rollercoaster in this one and think I deserve just a wee bit TLC – when like you say I am someone who especially is a TLC giver. Don’ t get me wrong he is good with the kids in caring for them and is not a bad person but as my wise old gran would say the best of men are selfish.I am so grateful for your honesty as sometimes it feels so lonely and you think gosh they all think I am a moan and so ungrateful and am not looking positively. I do believe like lakeview had pointed out that I am probably going hypo so its all kinda hitting the fan now
Its such a horrible overwhelming feeling isn’t it? Unless you have been there you will never know how it feels. I am so fed up I am lying in the dark in my room just looking on here and watching films on utube – how sad is that? ” title=”Smile” /> Also funny you should say about double vision – you know I never gave that a thought in accordance with my GD but since the op I have had some episodes – will I be ok? what do I do? Whom do I contact?
Thanks again for helping me feel not so alone on a really really bad day xxxx
Hi,
Is it your bilurubin levels which are elevated? I had that constantly at the beginning of my diagnosis and it was the medication. I was mortified when I heard the results as I worked with this endo at the time and replied but I don’t even drink
He said that it was most likely the meds but they weren’t so elevated that they were causing a great concern. I remember bursting into tears on like the 5th occassion that I got a phone call at work to say I had to be re-tested as they were more elevated that before ” title=”Sad” /> ” title=”Sad” /> However, my boss who has Chron’s disease had to come off all meds as her levels were very elevated and dangerous.
Its good they are keeping a close eye on you. I suppose avoiding high fat foods/alcohol etc.. wouldn’t do any harm in the meantime until they can get it sorted – it may be they need to change you to a different form of medication.
Hope they get it all sorted xxx
HI E,
Yeah I know what you mean about bathrooms etc.
” title=”Smile” /> ” title=”Wink” /> T is a great hubby and dad and in general is very clean but messy ” title=”Very Happy” /> but there also practicalities when you are unwell and I guess that is where the tension builds up. ” title=”Sad” /> Oh well onwards and upwards…Just need to let the cleaning lady do the bathrooms for just now
xxxx
