[hwalter]

in reply to: Beer and PTU #1072500

Truly I think we will all agree that some of the best advice here is to listen to your body.
I tried a mixed cocktail and didnt tollerate it very well…tachycardia, etc.
Got the same results with beer, although
Wine (due to the sulfiates in it, which most people have problems with) I am fine. So now it is my enjoyment drink of choice. I don’t do it all the time, just the occassional social drink. Moderation and listen to your body and you will be fine.
Just remember to try to enjoy life, that is the best we can do!

[hwalter]

in reply to: Endo asked about Charlie Horses?? #1072302

as much as I would like to believe that they are a hypo symptom, I have had them since my diagnosis in Jan. I am hyper. they are not fun, you know if you have them that is forsure!

[hwalter]

in reply to: Do you/did you tell employers about your GD? #1072284

You may find that there are times where it will effect you work and the amount of work you can handle. It would be wise to advise them about it, that way if for some chance something does happen they can be ready to handle it. Employeers are much more grateful and willing to help when they are notified!

[hwalter]

in reply to: Emotions- Woman #1074546

OMG you are not the only one who feels like this.
Really truly I think GD is a ticking time bomb and watch out if you are the inocent bystander who is around when it goes off.
These emotions are the same for me, as far as they cycle tho that is a whole different thing for me. I had my uterus removed last month so i don’t know when I am actually having a cycle (still have my ovaries so I do still cycle, just w/o menstrations ” title=”Wink” /> ). The only thing I can do, is ask my family for support, let them know I need to be left alone and then leave. Last night I got so hot that I actually had to put my head in the freezer to cool off~!!!!

[hwalter]

in reply to: diet/supplement suggestions #1072755

It is so nice to have feed back here. Last night was probably the worse night ever for me and this all came at a perfect time. In matter of a couple of hours I went from incredbily tired, then with enough energy to do grocery shopping and make dinner and then to horribly angry and then sobbing like someone watching Titanic for the first time and not knowing how the ending is. Seriously, cried myself to sleep while in my hubby’s arms because he was so concerned he didnt want to leave my side. So this is not just effecting me.
As to my knowledge I am still hyper. Last test was about a month ago, go again in 2 wks. I am so glad to hear that I am not the only one with muscle loss/pain. Thank you for the wonderful advice ladies! It has brightened my day. One last thing, any ideas on how to get "some" energy level. It is spring, normally I am bouncing off the walls right now and more than happy and loving life. But i can hardly get out of bed to get a shower and a cup of coffee, this is no way for someone to live. What an ugly disease! I know, I know, look on the bright side Holly, it could be much worse! Sometimes that is the hardest thing to do. They should change the name to the Light Switch Disease, because it comes on just like someone flipping on a light switch, {FLIP} just like that you have Graves!

[hwalter]

in reply to: so many opinions, but really how many options? #1072854

Thank you for sharing you story with me. It makes me feel better to know that I am not the only one who is feeling worse on the meds. I have faith that I will feel better, but just wonder how long it will take! As for your answer, I am hyper (right now). Everything I have been reading says that within time I will go hypo. Not looking forward to that at all. Guess all I can do it wait!

[hwalter]

in reply to: Bad two days with Graves #1072893

I can share this with you. My dr was kind enough to let me know that I was going to feel much worse before I felt any better. Boy was he ever right. And I can say this, if you get to the point that you are fustrated with the meds and choose not to take them, that once you start them back up (if you do, which you probably will) you will feel like crap AGAIN! Granted, all said and done, feeling like you are a walking pharmacy is no fun and nobody should have to live this way, AT LEAST, we still have our lives. We are still active, and can go outside, and can take care of ourselves. There are some people out there who can not. In the beginning of my research on GD, I found this quote, "You did not get Grave’s overnight, therefore, you will not feel better overnight". Sadly patience is a vertu here and being hyper, patience is something that seems to not exsist! Focus on the greats and goods of everyday, not just your GD. There is more to life than our disease! ” title=”Wink” />

[hwalter]

in reply to: Family Education Material #1073154

Marpo wrote:I made a coloring book for my young grandkids and a friend of mine in Ireland kids. I will send you a copy in the mail Nancy ” title=”Very Happy” />

Could I please get a copy of this book too? It sounds wonderful and will help my children understand what is happening to their mommy! please email me at hollyrw@earthlink.net and I will email you my address.

[Author]

Posts