[HummingRose6]

in reply to: Lost Post – Question About Causal Link #1075227

Thank you. I really appreciate your perseverance in getting an answer for me. It’s a strange coincidence I guess. Have a good holiday.

[HummingRose6]

in reply to: Lost Post – Question About Causal Link #1075224

I can’t tell you how much I wish I had known better at the time! It would have made a huge difference in my health! You are right–it did a huge number on my poor body and it’s taking a long time to get better. I did have a thyroid uptake/scan in early 2007 when the doctor finally realized that I was hyperthyroid. Graves’ has been confirmed by 2 endocrinologists. And, I have been under the care of a good endocrinologist for about a year now and taking AntiT meds. It seems that I am hypersensitive to the drugs and levels keep fluctuating so meds keep having to be adjusted. It’s been a very bumpy road and I am not feeling back to "normal" (good) yet but have felt pretty good at times and hoping to get stabilized long enough to continue feeling pretty good! I still wish I could find an answer to my question. Nancy Patterson said she would check into it before my post was lost. I don’t know what happened with her inquiry. Do you know how I can followup with her to find out where her inquiry stands?

[HummingRose6]

in reply to: Lost Post – Question About Causal Link #1075222

Thank you MamaBear for your response. What happened was the doctor (internist) was giving me thyroid because he felt I was a little low although in the normal range. (According to my endo. my labs were perfectly normal before the supplementation was given.) However, the supplementation actually did make me feel much better than I had been feeling — at first. Then shortly thereafter I became hyperthyroid and I continued to be hyperthyroid for about 1-1/2 to 2 years BECAUSE of the thyroid supplementation that was being given to me during that time. The doctor didn’t understand that the lab results he was getting during that 1-1/2 to 2-year period were hyperT results and he kept giving me the thyroid during that entire time. (The dr. basically didn’t recognize the TSH levels of none to almost none during that 2 yr period as hyperthyroidism. Unfortuantely, I didn’t know enough to know this either until I learned all about it by studying Graves’ and thyroid issues 2 years later.) Then there was a shift in the labs that showed thyroid levels above the normal range along with the non-existent TSH–that is when the dr. recognized the hyperT and stopped the thyroid supplementation. Stopping the supplementation didn’t bring my levels down. So, the tests to find out what was going on with the thyroid gland were done and in about 2 months I was diagnosed with Graves’. So, I am trying to find out whether this "forced" hyperthyroidism for so long could have triggered the Graves’.

Do you know anything about this?

[HummingRose6]

in reply to: Can Thyroid Supplementation Cause Graves’? #1075478

Thank you so much. I will send an email to the President now. I live and work on the Westside (work: Marina del Rey; live: Culver City) so I hope the timing and location of your group are going to be accessible for me. If not, please let me know how I might help get one together on the Westside. I will inform the President of all of this in my email and request that I please be kept in the loop if possible. I would so much appreciate that. Thank you again.

[HummingRose6]

in reply to: Can Thyroid Supplementation Cause Graves’? #1075476

Thank you so much. I really appreciate your trying to help me get an answer. I have been studying Graves’ but not found the answer to this question yet. I am so glad you have this bulletin board. I cannot find a support group in Los Angeles. I coincidently met one woman who has Graves’ but the problems that plague her are not the ones that plague me. I am relieved to find a "community" to share and commiserate with and learn from. Thank you.

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