[Hopeful23]

in reply to: Disability #1070400

call ur local dis. office they will schedule an interview ovr the phone. its not something that happens over a week. my dr said and backed me up on not being able to wrk i was severly hyperthyroid and i still got denied. i just went and got a lawyer and it can be 18-24 months To get a hearing . it is very hard and takes time. good luck though.

[Hopeful23]

in reply to: Has anyone experienced….. #1070411

so this is a good thing. i did something i probably shouldnt have. i looked this up online and it was saying peripheral neuropathy.. //sp//. i have been in anxiety mode all day. i did have my appt moved up to this friday cause im gaining weight and eating almost close to nothing but when i do eat its turkey burgers and a healthy side dish. lol and chips. haha.

[Hopeful23]

in reply to: New to Graves, curious about all this #1070512

Okay. I can relate to this. I had thee exact same problem. I HAD ALL THE SYMPTOMS OF GRAVES. My levels were normal and than boom they were so bad it was scary. Stay proactive and please get an endo. This is their speciality. Its what you need. Good luck stay strong.

[Hopeful23]

in reply to: im so tired of my mom saying… #1070526

oh wow. you really need to get in earlier. its state law all dr offices have to set aside emergency spots for situatons like u. i am sorry u had to go thru all that. i hope u get ur rai scheduled when u get ur appt. u have been sick long enough. im worried about u. even at my sickest i didnt have extreme weakness that rendered me like that and my endo was shocked i was sitting infront of him. i really recommend rai. just my advice though.. u need to get better my love… oh my i remember when i wasnt diagnosed i wouldnt go any where that a hosp wasnt in clear view. i bet u were so scared. i would have been. you seem to be so strong. Bless u. all i know is u all are my strength when people compliment me on staying strong i always say its my gd foundation…i wish we all lived on the same block.haha. … STAY STRONG AND GET QN APPT THIS WEEK.

[Hopeful23]

in reply to: im so tired of my mom saying… #1070522

omg, you all are amazing and hit it on the spot with everything. I cant thank you enough.

I am trying to move out as soon as possible but I just cant right now. I am in week 4 as of yesterday. Yeah, I think i’m past my ‘dumping’ phase. I was there for about a week really hyper. Now my tremors i cant remember the last time i had NOTICEABLE ones so I guess thats a good sign. My thyroid really went down in swelling but has stopped but I don’t chock on it anymore LOL. <Thats always a plus> I scheduled my classes for August Fall 09. I usually would say okay so not next semester either. That gave me a good sign that i was getting a better ‘future’ thought process:) My next appt is June 30th at 145p. As far as how i have been feeling is kind up and down. I still am emotional easy LOL. I do cry and am fine later or the next day too. Ugh, this is so crazy isn’t it:( I read up on other autoimmune disease and have been in panic lately so im sure that hasn’t been good on my mood. I have gone to a gluten free diet (okay, okay does one box of gluten free chex count) HA HA. I dont know how people with celiac disease EAT omg, everything has the gluten wheat protein in it. I am asking my endo to send me to a Nutritionist cause im a VERY VERY picky eater and i just want to be healthy cause my diet is PASTA, BREAD, POP AND FUDGE ROUNDS. Since my rai i have packed on about 10lbs WTF. I hope i loose it plus when im on synthroid cause my NORMAL WEIGHT before all this was about 112. Ill be fine in the 120’s but nothing more ill look weird cause of my frame and athletic shape ” title=”Sad” /> oh kay, ill stop rambling now i guess. Thanks again you all have helped me remember that im not this way cause im coping out or choose to be lol… <<<<<<Muah>>>>>

<<<<<<<<<<HUGS BACK TO YOU ALL>>>>>>>>>>

[Hopeful23]

in reply to: three weeks post rai… #1070743

lol, yeah no kidding. I told my endo i was trying to exercise and he about slapped me off the table (not really) but if looks could kill I DEF WOULD HAVE BEEN DEAD hahaha. He explained to me what Ski explains…. ski your so smart ” title=”Smile” /> what would be do w/o our facilitators ” title=”Smile” />

[Hopeful23]

in reply to: Im not on atds during rai. Why? #1070682

okay,
I was just nervous cause my levels were really bad and my uptake was obviously at the highest you could go so i was basically freaking out about going into TS. Im assuming if my endo thought i needed them he would have told me right…lol… thanks you all, i just freak out and im scared of TS. Im in week 4 this tuesday, so when does the TS become out of the question? I mean will i have to worry about TS for 4+ months or am i starting to become in the ‘SAFE’ zone? I hate to call my SUPER BUSY endo to ask him such a ANXIETY related question ya know…

Love you all
Krystal

[Hopeful23]

in reply to: Thyroid Uptake Results…What Were Yours? #1070686

at 24hrs i was at 99.8%. lol. crzy huh.

[Hopeful23]

in reply to: Newly diagnosed and not much information……..I’m scared #1070724

Hey:) well i sent you a pitcte message but ill just repeat some stuff here. Sometimes when you start medicine like this they ease you into it to help prevent to much at once kinda thing. I did the same thing. Everyone is different it depends on your levels and how severe your symptoms are. All the symptoms your mentioned are def graves disease symptoms. I actually gained a crazy amount of weigt and lost three times what i gained. I had to withdraw from work AND school. however that does not mean you will. I went three years without my gd diagnose. I was not stuck in my room at all. I just couldnt be around healthy thyroids for two days. However there are people that have been confined to their rooms for three days. It depends on your dose and how much your body excretes thru urine and sweat. You can read a different story on everyone with the same treatment. One rec i can make is make sure you know what your reading and make sure its good because there are a lot of horror stories on the web. There are great facilitators on here. Everyone on here will be happy to share stories advice or a hug:) go thru and read old posts and responses. You will find a lot of good informatio and hope. I promise:)

[Hopeful23]

in reply to: three weeks post rai… #1070735

Hey thanks for the post backs. i will be at four weeks tuesday. So yeah. I had a six day follow up cause my endo was worried since my levels were bad and my uptake was 100%. My next visit is the 30Th:) oh yeah i did realize my sexy goiter has really gone down but i still choke and feel like i have something in my throat. Not as bad though:) so i guess i am showing improvement. I also went and played pool and went out for wings. Two days in a row. I tried to work but had a huge anxiety attack. At least i tried though ya know:) so im glad your FEELING better. One thing in not looking forward to is the period regularity. Lol. I like my one hour period. Haha:) are you nervous about takingthe hormone replacement.. i kinda am.

[Hopeful23]

in reply to: Weight gain during Graves disease #1070980

i actually too gained alot of weight. i went from 112 to 190. then one month i went to 98lbs. i am up to 138ish. it flucuates still. my endo says ill even out when my body is healed. i am not even worried though. weight is not my main focus nor should t be yours. stay strong get better than lets go to the gym together. lol

[Hopeful23]

in reply to: radioactive iodine treatment #1070961

This can be a scary process i know. I was terrified. However the treatment itself really is not that bad. Im in week two. I didnt have the soar throat or the salivary gland swelling. I WAS LUCKY. i wasnt confined in my room. my uptke scan was almost 100%. i couldnt eat or drink off anyone. couldnt make food for anyone or plate it. I have been really tired esp the first week. My fatigue has improved i do still have my days. i just pray u have the same exp. good luck. ur in my prayers.

[Hopeful23]

in reply to: Hello! #1071143

Hello and welcome princess ” title=”Smile” />
I to had a similar story as yours. My dr at the time looked over my levels for almost 2 years. I started feeling like you around 21yearsyoung. I am now 24 and just got diagnosed in past Oct. I was in and out of the er two three four times a week. They kept sending me home with anxiety and panic information. I knew being a nursing student this was not my problem. I was a dancer/gymnast and competitive cheerleader and so I tried to ignore it and ‘BE HAPPY’ thinking i was over thinking and what not. I however got so bad i was passing out and getting heart rates as high as 190. It was waking me up out of a dead sleep. I would be sweating like a man. I also lost major weight I went from 112-190 back to 82 lbs in one month. I thought for sure I was going to day every night i fell asleep. When I could, I literally had to get so tired i couldnt keep my eyes open. I would go 2-3 days without sleep in fear i woudlnt wake up. I know where you came from. We at one point were all there. Im sorry u had to go thru that at a very young age. Everyone on here is very young and has gone thru and are very educated on this disease. If you go read posts from months ago you will see how much my attitude has changed. My endo is amazing and so smart and if it werent for him I wouldnt be here today. He is my gurdian angel. When this is all over. I couldnt buy a gift for him that could describe my gratitude and thanks. He has been there for me at 2 3 4 in the morning. I would be crying and so scared and he would assure to me that i was going to be okay and he would soon fix this for me that i just had to be strong and patient. I was at a very bad state and was lucky to be alive. I went mis and undiagnosed for 4 years. I wish you the best of luck in your journey. Welome to the family ” title=”Smile” />

All is OHIO girls/guys need to meet up and drive to a conference together ” title=”Smile” /> Ely and princess and whomever else. Let me know how you feel on that idea ” title=”Smile” /> OR we should all meet up for a dinner date.

[Hopeful23]

in reply to: confusing? recently diagnosed..anyone?? #1071392

welcome. i know u are afraid and have questions. i am 24 and swore off rai. However after being one of the people having the rare side effects to the medications i chose rai. It is not invasive at all. I took two pills this past tuesday at nine am and went grocery shopping at ten am. i had no restrictions except sleep alone wash dishes clothes and flush toilet twice for two days. I was not confined to my room or treated like i had the plague. I am four days into my treatment and am so happy to be on my way to recovery. My sister is hypo and she takes one pill a day. She says its second nature to her. i was scared to but i just want it to be over. Hypo is more easy to live with. Synthroid is so close to naturul hormon. Radioloiist says this is safe and easy. I would do it. Much easier.

[Hopeful23]

in reply to: Venting…DENIAL AGAIN! #1071160

im so sorry. i can relate to you. i jusr received my denial letter to. i just called an attorney. he is making a house call monday for me. i hope he can help me. i cant get medical insurance unless i get ssi. im so irritated and was feeling like u. i know its hard. you have to stay strong and fight. dont let this get the best of u. use ur family to keep u strong and when u feel like giving up push harder. we r here for u. ur family is here for u. stay strong. im praying for you. stay strong

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