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Ski,
Okay, cool thanks so much. I have been trying to cut back on soda intake. I have been drinking clear lol. Hey, it gives me justice. I LOOOOOOVE LOVE TEA. I have not tried soy products IM SCARED lol. I will see if it helps me though. Thanks so much for your great information. Have a blessed healthy day
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Hopefulvintagegreen wrote:hopeful, I’m so happy for you. I pray your recovery continues to uneventful (as far as symptoms go) and that RAI completely works for you. I’ve just started taking PTU, so I don’t know if it’s working yet.I know my endo is pushing RAI, but I kinda want to see how I progress before I kill it off. I’m also unsure about RAI because of what I’ve read about how people feel afterward.
Keep us updated!
From what I hear Endo’s like to do that. It’s easy and they really only see you for blood work after your dose. I however didn’t have that "Endo". He said to me I recommend TT and I was like okay lets do it. When I went in for my consultation I said OHHHHH HE DOUBLE HOCKEY STICK NOOOOO. I literally called the office as i was exiting the surgeons office saying no way no way no way set me up for RAI. I had to be on the meds I didn’t react to lol to get my levels in a safe zone. I was off two weeks before the RAI and just took my atenolol (beta blocker). Now the rest is day by day. I wish you the best of luck on this crazy roller coaster ride. Its a hard decision but if you have any uncertainty/doubts or feel that gut feeling when you pick a treatment cause its what you think is quick then don’t do it. I chose the TT at first cause it seemed more simpler and quicker and thats what i wanted. I wanted to wake up the next day and be healed Ernest Angly syle LOL. I however just had a feeling that, that was not what I was supposed to do so I didn’t. You will know whats right for you. Your instincts will let you know. Try PTU and if it puts you in remission thats awesome if it doesn’t at least you know you tried
” title=”Smile” /> Do what you feel makes you confident and happy. The Dr is just there to get you to the point of good health. You however are there living the dreadful emotions,fears,and frustrations. Only you can decide whats best for you treatment wise. As long as its safe for you of course. STAY STRONG…. I PROMISE IT GETS BETTER ” title=”Smile” />JUstin,
Ill take a White Chocolate Mac nut” title=”Smile” />I just want to also say Welcome, even know its not the best "Welcome" you will ever have:(. However, The facilitators and people are really here for YOU and will give you support/advice/HUGS whenever you need it. I am 24 years old and have a schedule like you or should i say did have a schedule like yours. I am in college with a double major Nursing and Communications mass media. I hope to one day have some medical show/support group for charity purposes. Anyway. I to suffered from relationships. Here is my background. I was having symptoms in January 07 got diagnosed in Nov 08 Had my RAI May 12 09. In between those dates. I had about 15 jobs, 5 boyfriends and a dog ((Duke)). My ex’s were calling me everything but a white girl. I was always calling 911 2-3times a week. I had it on speed dial. lol, The Paramedics knew me and at one point had lunch with me they felt so bad. I was 112lbs at the time of being diagnosed and went up to about 190 then back down to about 82lbs. My journey began there. I cut college out, dropped out of Alpha Phi Omega, no longer worked, etc etc. My soical life well lets just say I went from countless friends to a handful. I was so depressed and felt at anytime i could die and I would be alright with it. I didn’t know where to go or who to turn to. No one just understood me as being sick it was always something else. You cant do this omg Ur 21 or 22 or 23 and now im 24 and i just got the best gift ever my resting heart rate of 62. I cried and cried and cried when i could go a whole day without taking a break and checking my pulse to see if it was too high etc. I wont lie its still rough every day. Read any of my posts. IM a anxiety/panic attack waiting to happen. I call my Dr if my foot and finger twitch at the same time or im goggling it for some other auto immune. I hope your girlfriend can come to realization you seem so amazing and so does she. you both need to stay strong and be each others support system. When you feel irate, or irritable or sad or mad, or depressed tell her. Get out of the room go lye down. KEEP YOUR MIND OCCUPIED. The PC was my out/keyboard. If i felt weird or felt angry I would get on here and just talk and post and reply till i forgot how bad i felt. If my tremors weren’t 900 shakes per second I would get on my keyboard music is my life and you can always find a song to fit your mood. Find something that keeps you at ease no matter how stressed you are. Keep that in you back pocket and pull it out. It honestly helped me. I hope you find the right treatment for you and your journey gets better every day. Stay strong, positive, and most of all keep your GF in the loop of things. Have her go to appt’s, read pamphlets, etc etc. She maybe dealing with this in a push off manor cause im sure its scary for her to see you like this. My family started coming around last week. LOL. its been rough for them so they decided if they pushed me to ‘just deal with it’ i would be fine and my family just realized GD is not something you just SUCK UP and DEAL WITH. I wish you the best of luck Justin. My prayers are with you and your GF as you two adjust to this NEW LIFE. Remember with GOD all things are possible…
Emily,
Thanks for reassuring me” title=”Smile” /> After I read that I was like "okay, cool" Im "normal" to feel this way. Yeah, my tremors have been here and there too. I can, though, put things back in holes better lol (ie. Mascara, eyeliner) etc. This Tuesday was week 6 and i’m just now hyper borderline so i was happy to hear that even though I thought I was becoming hypo but its still good news.. Im guessing that im safe from Storm:) I was really worrying myself about that cause I heard a lady went into TS in week 5. I also have been stressing about college/major choice etc. I need to sometimes just sit back and BREATH. Have you been taking ur beta blocker at all? I don’t need it like every 6-8 hrs like i did before. I used to count down till my next dose. I have noticed some tachycardia when i climb stairs still. UGH. I took it that day and my HR was like 49 resting. So I was like not doing that anymore. So i lowered it to ONE pill today when I had a panic attack over my muscles jumping out of my skin. I took that at 12(noon) and my HR is still a lil under 60. I told my endo and he said to take a half if i ABSOLUTELY need to. I was always taking my pulse saying "SLOOOOW DOWN PLEASE" now Im like okay "SPEED UP" hahahah. My body is prbly like WHAT THE HECK…I see your from OHIO. I would really like to have a ‘meeting confrence’/support group type deal in this area. I will always be a part of this foundation. People and our Facilitators were LITERALLY my rock and support group. I don’t know what I would have done with everyone on here. <<<It brings me to tears>>> When celebrities talk about their charity’s I want to be like GRAVES DISEASE FOUNDATION…If i ever won a large sum of money I would donate half of what I won. I want to see a cure for this ya know. Okay, look at me. Im babbling. Any whoo. Private message me and keep me updated on ur GOOD NEWS and everyone else of course. Have a good night everyone…. <<<<<<<<<<Hugs>>>>>>>> Muah, xoxox:)sorry to hear ur story with gd. i struggled with the atd and beta blockers.. i suffered jaundice syncope and the lists go on. I had my rai may 12. I was so scared. My uptake scan was 98%. I had a 15 millicuri dose and i was not even confined to my room. As nancy stated sleeping separate and avoid babies around your neck for a few days. The radioloiist will give you specifics. It is going to be okay. Stay strong. Your are on your way to a healthy stable life. Good luck
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