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PTU is like Emily said an anti thyroid drug. It blocks your thyroid from absorbing/releasing extra hormone. Tapazole and PTU do the same thing in a different way. Tapazole is taken once and PTU is take three times a day. I took Tapazole from the start. I was on one pill a day. I switched to PTU and took 3 pills every 7 hours. PTU doesn’t stay in your body as long as tapazole. THIS IS WHAT I WAS TOLD. LOL, My endo. I may have misconstrued some info but im pretty confident its right. Beta blockers have no SPECIFIC impact on thyroid except it helps block the hormone from making your heart work harder. I hope this kinda sorta helped. I repeated emily but sometimes repeats can be good. lol
in reply to: the rai is working:-) #1070056April,
I hope you decide what you FEEL is right for you. Write everything down. Reseach and ask questions. For me, I wanted to NEVER deal with HYPER again. SO RAI IS THE WAY FOR ME. I have sooo many friends/family members that are hypo and have a great life and are OKAY with their disease. So I didn’t mind trading mine for theirs. I really didn’t have a choice but the route with RAI was def a good choice on my behalf. ITS NOT SCARY I PROMISE…. GOOD LUCK IN YOUR DECISION” title=”Smile” />
in reply to: Anxiety/Panic Thread….. #1069939Wow. I hope I can go back this semester without dropping out. I really need to attend college this fall and spring.
Anyway, so today during one of two of my anxiety/panic attacks I was searching the web. I typed in cognitive ways to help subside/reduce anxiety and panic. I came across some interesting videos. I am going to post some links at the end of this post.
I thought this was a very clever idea….CALMING KIT… What you do is make a little kit that fits YOU. What makes you calm, smile, happy and it can be anything. Scripts, picture, memories,A drawing, blank journal, or journal of quotes. Put it together and when you are feeling anxious or panicky start looking through or reading to help divert your mood and mind. Im not sure what im going to put into mine but it will probably be pictures, quotes, scriptures or some sort of reality check. LOL. I thought I would share this with you all.
<<HUGS>>
PS. For those who are doing this share your Kit with us if you would like
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GOD BLESS
http://www.ehow.com/video_4397929_treat-stress.html
http://www.ehow.com/how_5027553_deal-panic-anx … iving.html
http://www.ehow.com/videos-on_4030_alleviate-p … tacks.html
If you have trouble by clicking on them just past them into your URL tool bar. Hope these hit home with someone
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in reply to: Anxiety/Panic Thread….. #1069935wow…congrats on landing such a great interview. you must be stronger than you realize. the thought of me even workn throws me into an anxiety attack. i give you So much respect for staying strong for your family. Your daughter made my day. Im literally sitting in the er waiting on my abdomen results. I can hear a trauma going on and im like oh no i have a skull fracture and broke my hip what. How on earth they get that from constipation. Lol. Im such a spas. Well congrats on the interview all you can do is try:) keep us updated:)
in reply to: Driving to GD Conference #1069870same with me..anyone coming thru canton oh. i dont have a car since i cant drive…ill supply gas one way full tank or lunch at a sit down resturant of choice…
in reply to: having a virus and GD? #1069903I am fighting off some bronchitis/ upper resp infection riiiiiiiight now. UGH,. Im super sleeepy. I wish I had a home kit to take my own TSH levels. LOL. I think I would be less worried and anxious at every thing my body does.
in reply to: Dose change after 15 years? Meno? #1069857I have no input on your levels except my TSH right now is .1 Im waiting to be put on SYNTHROID not Levoxothyroxine. <SP> Any way. All I have to say is OOOHHH MYYYY. I am sooooo sorry about your losses. My eyes automatically filled up with tears as soon as i started reading this memorial site. I knew it wasn’t going to be a pleasant read. I hope it gets better for you. Chin up.
<<<<<<HUGS&PRAYERS>>>>
in reply to: Anxiety/Panic Thread….. #1069929I am ordering it on Amazon or going to borders to look thru it…..
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in reply to: Just diagnosed today and I am so scared! #1069918Christy,
Welcome aboard. Sorry its under these circumstances. However, I don’t have kids im 24 F. I cant even imagine. I can hardly care for myself every second of the day let alone a family. Your family is your support system now. Lean on them and us we are here for you and we have great people and FANTASTIC MEDICAL STAFF AND FACILITATORS on here that REALLY know their stuff. They don’t give medical advice but its close enough” title=”Wink” /> Stay strong and confident. like you said its not cancer and eventually you do see that light at the end of the tunnel. I was diagnosed in Nov but had been dealing with symptoms about 2 years prior. I was in BAAAAAAAAAAD shape was lucky not to have gone into TS (thyroid storm). My PCP looked over my thyroid levles for about a year and then by the luck of GOD I had to schedule an emergency appt and was put in with another provider who saw my labs and recognized my symptoms and boooom GD journey began. I selected the RAI after the PTU and Tap didn’t react in my favor. Good luck, read and ask questions all you want. PRAY, BELIEVE IN A HIGHER POWER. YOUR NOT WALKING ALONE
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<<<<hUGS>>>>
in reply to: Anxiety/Panic Thread….. #1069925I can relate to you. I also suffered with exams, group work, presentations which before hand LOVED LOVED LOVED THEM. I would volunteer to be group leader/spokes women. I gathered ideas, numbers, emails etc. Not so much anymore. I just would sit there like okay. Krystal just get through this without passing out. lol. I think where my anxiety started was having reactions to medications and since it just hasn’t subsided. I had anxiety during senior year in HS and I learned to control it and before I knew it I was fine. Its different this time. I had seizure activity with anti anxiety meds ie. Lexapro and the list goes on. So know when I get this anxiety/panic fear, i fear another seizure. Its not the typical, Im having a heart attack anxiety its am i going to have a seizure again. The anxiety I felt turned into me having partial seizure and so thats what i relate it to now. I am allergic to a lot of the seratonin dopamine releasing drugs. So medication is out of the question for me, I don’t even want to try anything that messes with chemical change AT ALLLLLLLL. I would rater deal with the tremors, jelly like, foggy mind, uneven gait than meds. Its that bad
” title=”Sad” /> I was a nursing major but it became to overwhelming when I got GD cause I kept self diagnosing myself with everything else since GD symptoms are so broad and can correlate with 1000 other syndromes, diseases etc.
<<<Hopeful23>>
in reply to: the rai is working:-) #1070053Wow, that is hight and crazy thats how it ended up working. Its so weird how many people react so differently to the symptoms, disease and treatments. I really don’t know what to say I have not experienced that level of treatment yet or numbers. I know what you mean by mudbrain. lol.
I think you should just def write down symptoms and ask how to deal with them what to watch out for now that your taking synthroid. How long will you be affected by the newer levels. I hear synthroid takes 21 days to do what its supposed to however it goes back to well will it be that way for you. Just talk to your endo. write down answers to your questions so you can reassure yourself and read back on them if you start feeling confused or is this the way i should be feeling etc. Have numbers to contact your endo encase of emergency and make sure you know whats an emergency and what isn’t that should help elevate anxiety or uncertainty. GOOD LUCK AT UR APPT. Hope you start to feel better soon.
To post a new thread outside of a response go to top of page when your in the forum and it will say NEW TOPIC hit that and enter subject and body but how you responded to this forum was correct
” title=”Smile” /> If you didn’t know already hahahha
Love
Hopeful
Krystalin reply to: the rai is working:-) #1070049Yeah,
I was lucky I was an unique case. I was given 14.5 mCi dose which is a pretty good dosage but since my uptake was 98% I was told I didn’t need to be in closed doors. However I still couldn’t hold babies or be around the elderly for more than an hr. I had to eat on paper plates, wash my cloths separately and I couldn’t sleep with my BF for 3 full days. I was NOT tired at all. I didn’t have a soar throat or ANY swelling. I didn’t feel any different till like my 3rd week. Then I felt like crap. I slept and slept and slept. This just goes to show you how it effects everyone so differently. Since you don’t know how you will be effected I would wait cause if you do get the "normal" 3 days after effects you will be soooo miserable and uncomfortable. I would just wait till you came back and enjoy this holiday cause you never know what can happen. You may be on your way down there and be exhausted and sleep the whole time. That would be a bummer ya know. I don’t know. It just seems more common to experience what ewmb did than what I did. I would just PREPARE yourself for the worst and hope for the best. I mean if you feel fine than find something to do around your house or with friends ya know…..<<<Goodluck>>>
in reply to: the rai is working:-) #1070046runlacie,
I can relate to you on that one. CONGRATS ON YOUR DECISION AND KEEEEEEP US POSTED. I am here for you and will give you my phone number if you want it. I am here for any questions. Its going to be worth it all when you start to see a difference going towards the lacie before GD…<<<HUGS>>>
Krystal
in reply to: Hey Ski, I have a question? :) #1070025E- I did notice personally that cutting diet coke out did make me feel better however I was allergic to it and didnt know it until I had a seizure from it. Aspartame and other artificial sweeteners can cause a myriad of side effects. I honestly think something correlates it to my GD because I NEVER drank Diet than all the sudden I did with lemons and exactly to the year I came down with GD. I’m sure its not related at all buuuuuut we maaaaaaaaaaay never know LoL. Try to stay away from that and surcalose if you can
” title=”Smile” /> Just my opinion of course…
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in reply to: Just found out today I have graves disease #1070014Skinny,
Welcome to thee absolute best forum” title=”Smile” /> We have amazing facilitators and gd patients that are here for you. I am sorry you are apart of this group for obvious reasons however glad your here than some where else. I don’t know where to start and I apologize ahead of time for length.
I am 24 and have been dealing with this since about 21. I was 112 lbs a dancer,gymnast and cheerleader& coach. I was in college for nursing and had thee best friends/bf. Well so I thought. The minute my life went down hill I lost it all. EVeryone thought i was LAZY and MOOCHING. No one listened or cared to look past the ANXIETY/PANIC ATTACK diagnosis even though I was sayings ‘ITS NOT JUST THAT, THERE IS MORE GOING ON’. I was sitting on top of the world. ALways happy and outgoing and never tired. I would work work work and play play play. It suddenly all came crashing down FAST AND HARD.
I got diagnosed November 2008 and my CRAZY journey had begun. Like I said I was 112 then I went up to 160 and was told that it was because i was in college and had anxiety and wasn’t doing my hobbies anymore and etc etc. Then I had my usual Dr. Apt to get more blood work and testing done that had no correlation to my SYMPTOMS but at this point i was like whatever ill go in. I signed in and the receptionist says welcome to ……… Your name and Dr. I said Um its Krystal W. She just looked at me like umm im sooooo sorry. I didn’t look at you really" covering herself up for looking ‘shocked’. I was 82lbs in 2-4 weeks. I went back to my New dr cause mine was booked that day but passed my "reg" dr and she just stared and said lost some weight I see. Well my new dr said "okay, so Im assuming this isnt your actual weight since everyone seems to be in hysterics right now. I said now twoish weeeks ago i was 160 and she said well are you eating I said triple what i was last time i was here. She then sat in front of me and said okay tell me everthing since this is our first meeting. I wasn’t even thru my story before she stood up felt my neck and said swollow and I started choking like a victim. She said well you are hyperthyroid and I need to schedule you with an endo RIIIIGHT NOW TODAY. I went in my endo FLIPPED OUT and said not on the record but you have GD. I was like ummm excuse me i have whaaat. the name threw me through a loop. lol. HE DID MY SCAN THE NEXT DAY. My levels were in TS AND my uptake was at the time like 89%. He gave me scripts and said this is what you need to do i am very worried about you. gave me his cell, pager, home and answering service number. I was lucky not to go into THYROID STORM (TS). If it wasn’t for that dr who realized my BLOOD WORK WAS OVER LOOKED. I probably would have been a TS vicitim. God was def watching over me. You are not alone. AT ALL. We all have our stories. Now as far as pregnancy, food ect. Its def not the time for pregnancy. PTU is the choice of drug if you happen to get pregnant however at this state you HAVE TO DO EVERYTHING YOU POSSIBLY CAN TO NOT GET PREG for your health and the unborn baby’s health. Your focus needs to be getting your levels down and seeking a treatment option to heal your body. You body is being beaten up like a mac truck right now. Like others have said. Its like sitting in your car with it in park and putting you gas peddle to the floor and never stopping. Eventually your body will break down and thats whats happening to you. Your muscle mass is being destroyed and your heart is being over worked as well as your fight or flight system (sympathetic system) this is where you experience your anxiety/panic issues. I feel for you. I was you a few months ago. SKi our facilitator has way more knowledge than i have right now but go thru and read posts and her responses you will be a GD PRO by the end of the night/day. There is nothing really to avoid other than seafood. My endo specifically told me to stay away from it when I was at my worst. It has something to do with the iodine dye I believe. I don’t really know that time is kinda a blurr to me. I didn’t respond well to ATD’s. The Anti thyroid meds (PTU, Or TApazole) so i had the choice of TT or RAI and TT scared the living SHI* OUT OF ME so RAI was my treatment of choice and I cant say anything bad about it but its totally up to you and your endo. Research ask questions and do whats right for you. we are here to support you and again sorry to say welcome but welcome aboard. IT WILL GET BETTER BUT YOU HAVE TO DO EXACTLY WHAT YOUR TOLD BECAUSE IT CAN SPIRAL DOWN AND FAST. Stay strong, confident and believe in FAITH. Your not alone..
<<<<HUGS>>>
Hopeful 23
Krystal -
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