[Hopeful23]

in reply to: My big day! RAI tomorrow #1069594

laci. yeah. I have been dealing with this for four years. Its been the hardest the past year. I actually did have anxiety when i was in high school but was healed until my graves came about. You know i heard graves can cause benign tumors and found that interesting since you had one. Wonder if there is any correlation. Or just ironic. Hmmm. Yeah. I def post my results. Today was week ten for me. We shall see:)

[Hopeful23]

in reply to: TSH numbers after RAI up and down #1070343

Oh no. Now what? This is craziness. I have never heard this happen before. Your thyroid/Anti bodies are fighting ROCKY style:( keep us posted.

[Hopeful23]

in reply to: Newly Diagnosed! #1069542

well. there are two medications that do the same thing but are chemically done differently. tapazole and ptu are anti thyroid medications that block the absorbtion of iodine to your thyroid which comes from food that is in turn converted to metabolize your system. however these two medications are very harsh on your body with rare but very harmful side effects such as low white blood count being the main concern as well as liver function. tapazole is usually only taken one time a day where as ptu is taken three times a day and causes a copper metalic after taste to the point of vomiting. More people dont respond well to the Atds than do. when this happens you must decide on radioactive iodine which is non invasive or a total thyroidectomy which is obviously very invasive. all surgeries have risk of bleeding infection etc. On top of that TT come with vocal cord damage and parathyroid damage which regulate your calcium. However with a skilled surgeon its a 1% Chance of those complications actually occuring but it does happen. It comes down to what your dr. Feels is the most safe and accurate treatment for you. If He/She feels one would be just as effective as another one than it becomes a personal choice.

[Hopeful23]

in reply to: Newly Diagnosed! #1069540

Welcome to a great support group.

My name is Krystal and am 24. I have been dealing with this disease since I have been 21. I wouldn’t have gotten this bad if I had a dr that actually listened to me and didn’t over look my blood work for a year. Everyone has a different story. You will to. However you will relate to probably everyones story at some point.

I am just now starting to feel better but i use that loosely. I still have a lot of healing to do. I am however on my way to a better lifestyle and an easier way to handle graves. I choose the RAI option over surgery when the ATD’S didnt work in my favor. Its better for you to research and ask questions to figure out what is right for you. We have great facilitators and people who are here to welcome you and help support you in anyway possible. This is not a medical advocacy just a support group. welcome aboard even know the conditions are not so welcoming.

Krystal

[Hopeful23]

in reply to: My big day! RAI tomorrow #1069592

runlacie,

Yeah, I actually got my BW Monday so Im just waiting on the results. Im not sure what to expect them to be. I would like to hear im going hypo range or at least im within the normal limits. I continue to see improvements so thats always a good thing. I am just struggling with anxiety/panic issues. I made a pro/con list and they leveled out so that didn’t help much lol buuuut it helped to see it in writing what wants there May 12 09 ya know.

Pro
1. Tachycardia Gone(resting Hr= 56-60)
2. Received treatment
3. Tremors gone
4. Leg strength/ leg tremors gone
5. On my way to a healthier lifestyle
6. Extreme hot flashes/ sweating gone
7. Insomnia gone
8. More better days/ not as bad of bad days or as long.

Con
1. Emotional issues (ie. depression, anxiety, panic. irritablity)
2. Weight Gain = 22lbs
3. Memory issues still
4. Still can’t work
5. Digestive issues
6. Still feel foggy/off at times
7. fatigue/weak at times
8. Puffy look

So, im taking it in strides i guess. Keep us posted on your RAI. We are all here for you as you know that ” title=”Smile” />

[Hopeful23]

in reply to: My big day! RAI tomorrow #1069590

Yeah, I have to disagree with you on the dosage. Runlacie is right. Your dose is figured out by your absorbtion, how much your body excretes and how much you need to absorb and gland size. Thats what the radiologist told me. Weight has nothing to do with it. I had a 98% uptake and my dose was 14.6 milicuries.

[Hopeful23]

in reply to: My big day! RAI tomorrow #1069585

congrats on the rai… my dose was 14.6. You are lucky they caught yours so early. They determine your dose by how high your uptake was how much you need to how much your body excretes it. I hope you get to do everything you have planned. Keep us posted..

[Hopeful23]

in reply to: Are cold hands and tingling normam #1069648

My 16 year old sister is hypothyroid since birth and she complains of this often and its usually when she needs a dose adjustment. Hope this helps….

[Hopeful23]

in reply to: Headaches #1069678

Yeah. I have been diagnosed with migraines since i was 12. I have a typical migraines. He knows that and said my hormones were triggering them as well:( oh well. Im used to them. They are my least worry but im not on any atds. Sooooo.

[Hopeful23]

in reply to: Skin burning?? #1069657

I actually experience the burning when i get my hair done however i have always buy only when i get my roots dyed blonde. If its just foiled and ann all over non bleach color i never have burning and as far as perfume. i had that happen once but happened to be allergic to it so it could be somewhere in the middle for you or totally something beyond my or your knowledge. I would ask ur dr if no one else has a direct answer. Good luck. also if you have your hair dresser put sweetner in the dye mix it helps from burning..

[Hopeful23]

in reply to: What happened to Diane? #1069703

Prayers &
God Bless

[Hopeful23]

in reply to: Anxiety/Panic Thread….. #1069951

I sure hope so. All this is getting to be much to handle. I go days feeeling like okay, I have reached the light and then other days I feel as if the light is miles to go:( I am over it all, lol. We have to keep strong but when does strength run out? I guess when we let it, and we can’t. We have come too far to let this get us down so close to being on the other side. Im not too sure what side I like but the middle is definitely not it (LOL)

I have a lawyer fighting my short term disability case right now, im hoping to get approved sooner than later so I can take advantage of the health insurance for anxiety/panic cognitive therapy. I refuse MEDS any type that I don’t need to stay alive. I can’t deal with the addiction, adverse affects or the dependency to survive on a daily basis. I guess if its my last very last option ill obviously take part but if not absolutely needed then I wont.

I don’t know, I think the worst thing for me is the emotional side of everything. I mean I am happy, sad, irritated, manic, panic, anxiety, fatigued, detached,hyper, and the list continues to contradict itself. Ugh, its so frustrating to live with myself I can only imagine how my Mom, Sister, and Boyfriend feel. I thank them in my prayers because I would be lost without them even know they get the worst end of me right now. You know that quote. "If they can’t handle me at my worst they don’t deserve me at my best" I can now relate to it. ha ha.

O-well another day in the life of Graves. Stay Strong everyone we have each other to help if anything or one fails. I Just want to be better thats all I ask. I don’t want to confined to my house cause i am too anxious, or depressed. Life is too short to feel this way.

Ps. Im having anxiety/panic over my slow HR. First, it was because it was too fast now im like is my heart going to stop am I okay. Im having puffy eyes, headaches, not sure about BP, its normal when I go in for blood work, umm my lips get white when im chilly, but they turn pink when i warm up again. Then just the emotional swings. I saw just so easily, lol but you all know what I mean. I don’t know. SKI, and whomever else, whats your thoughts, stories,feelings, advice, etc?

Love
Krystal

[Hopeful23]

in reply to: Headaches #1069675

ohh noo,
I was/am lol experiencing the same thing. I asked me endo and he assured me that its just hormonal changes and its probably NOT TED. However, there is always that slim chance it is. I am scheduled for an eye exam maybe you should get yours checked too ” title=”Smile” /> Just to be assured and safe:)

God Bless you all
Krystal

[Hopeful23]

in reply to: Anxiety/Panic Thread….. #1069948

oh what a bad week. my anxiety/panic/emotions are hay wire. I am missing out on my bfs sisters bach party and all the bon fires etc. i have had headaches off and on. i feel you could tell me i won a million dollars and my response would be `oh cool` lol. I just want MEEE BACK. My levels are not due to be drawn till end of july. I dont know how to handle the emotional part much longer.Am i alone with these feelings. who else deals with this daily or close to it.

[Hopeful23]

in reply to: Anxiety/Panic Thread….. #1069940

has anyone had a chance to Check out the links above!

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