[Hopeful23]

in reply to: GETTING RAI ON DEC 16….I’M SCARED #1067122

So far no eye problems. I did gain weight but as soon as my thyroid levels went into normal range I lost the weight immediately. It was more swelling and water retention than anything. You just look puffy. lol. It’s hard to explain. One of the harder symptoms is the "wall hugging" you literally feel as if you have to use the wall to walk. Its awful, thats a huge symptom of hypo as a lot of people on here went through that. It’s still better than hyper. lol. I wish you the best.

[Hopeful23]

in reply to: RAI update #1067191

SO happy to here this Emily ” title=”Smile” /> We went through our treatment together and its so nice to see you improving. Makes me smile. Continue with the updates ” title=”Smile” />

[Hopeful23]

in reply to: GETTING RAI ON DEC 16….I’M SCARED #1067115

I had RAI done May 22 09. It was thee best decision I could have made. I am now back to work and nursing school. It was very quick for me and I had awful heart palpitations and tachycardia pre RAI and It didn’t get any worse when I had the RAI, it only got better. Everyone is different and responds differently but I to am a chicken and if I can do it ANYONE can. LOL. I want to wish you thee best of luck in your recovery and I promise things do get better. Im not going to say it was a stroll in the park. It took a lot of support from friends and family and a lot of fighting everyday but the end result is so worth it. I had 15milicuries and wasnt even put in isolation my uptake was 98%. My thyroid WANTED that RAI as my endo said. LOL. Graves disease is a struggle but hypo is too. However, compairing the two is so hard b/c they are their own diseases. If i had to go back and do it all over again RAI would still be my treatment of choice. It is nice to be able to wake up and enjoy my day instead of wake up and want to go right back to bed. I still struggle w/ anxiety and fatigue but the difference between then and now is i can PUSH through my day as before I couldnt. I gave up the whole day to my symptoms. It’s hard and I was exactly in your spot. Im 24 and have been dealing with all this sinc ei have been 21. Its to the point where I just said you know what, it is what it is and the only thing you can do is get better. Ya know? My best advice to you is take your beta blocker every 8hrs or how ever you are prescribed it so that it never has time to leave your system. If you feel better and your heart rate isnt in the 60’s still take it. I made the mistake of thinking i dont need it and boy was I wrong. lol. Just do exactly what your endo/PCP says to do and it should be tolerable. Again, good luck and try not to think to much about it and work up your anxiety. Take it for what it is and get through it so you can start your life again. Best regards.

Krystal

[Hopeful23]

in reply to: Hyperthyroid again #1067455

Thanks Sky and Emily ” title=”Smile” />
I did tell him about my pregnancy and he is still happy about the dose/medication change so we shall see. I am super energetic, it’s pretty funny. I forgot what it felt like to be hyperthyroid. I get so much more accomplised ” title=”Smile” /> Well, I’ll keep updates on the new meds/dose. Again, thanks for all the support. I love my GDF family!!

[Hopeful23]

in reply to: Hyperthyroid again #1067452

Yeah, I figured switching was probably not a good thing. I called my endo and he confirmed that at this point in my treatment that it shouldn’t give me too much of a problem. He said he was worried about my hair loss and synthroid can cause alapacia (sp) and that is a side effect that can be brutal for some people. He said mild hair loss is one thing but when it starts to show thinning/bald spots that it was something to worry about. He said switching was something that he DOESN’T do unless it is 100% necessary and he feels in my case I needed to switch. I am not feeling too bad, I am feeling more "hyper" ie. I am having trouble sleeping,I feel like I always have to be doing something or I feel like I wanna jump out of my skin. It’s no where near what I was pre RAI THANK GOODNESS. I don’t think I have the strength or will power left to deal with that all over again. LOL. A few of you mentioned "negative effects" from switching. Could you share those effects with me. LOL. That way I am more aware of anything that may happen during this. I’m kinda scared, I have not taken the Levoxyl yet (don’t yell please, lol) I figured since my TSH is low that I had a few days to decide since the half life is 7 days ” title=”Wink” />

This is kinda personal but It’s on my mind and I am too afraid to ask my dr. I was pregnant from Aug 31 09- Oct 10 09. Due you think this could have caused a drop in my tsh? Prior to my pregnancy my labs were on the low end of .5. I didn’t know if that could have caused it or if it just was too high of a dose. Thanks for listening/responding!

Krystal

[Hopeful23]

in reply to: Treatment Suggestion: Rad. Iodine vs. Anti Thyroid Drugs #1068220

Trey,
Im 24 and chose the RAI. MY thyroid was LIKE 8x its size and I was VERY sick. I had RAI done may 12 09 and became hypo july 22 09. My dose was 14.6. If I had to go back and do it over I would still choose RAI. I had ZERO complications and am sooo much happier and better. I am back to work, school, & life in general. It takes time and strenght but I wish you the best of luck in your journey. Do what you feel is best for you!!! Go with your gut, it never stears you wrong!

[Hopeful23]

in reply to: Levoxyl, synthroid, generic, what do I do??? #1068182

Lacie ” title=”Smile” />
Yay, your almost there girl. Okay, so here is my opinion and some information I have received along the way. With generic you don’t always get the EXACT dose of actual synthetic hormone. For example, If your starting dose is 25mcg and you start on generic you may only actually receive 23-24 mcg of actual hormone. Sine there are SOO many manufactures of levothyroxine you may only get 22-23mcg on your refill. I would recommend staying name brand. You always get thee exact dose everytime. I chose syntroid and my friend chose levothyroxine and I obtained a normal thyroid level from the start and she is still feeling hypothyroid and her levels are all out of whack. Again, this is what I was told in difference to name brand and generic. However, cost is the down fall. I pay 70.00 for three months however, I would rather pay more and know im getting the dose im paying for, ya know?? This is totally up to you obviously but I wanted to let you know. Also, as far as fillers I was told it has a lot to do with the color of the pill as far as the dyes go! My swollen lip was a sensitivity to red dye #2 so my endo prescribed me the 50mcg and I just take a pill in a half to stay at my 75mcg dose. I guess the white pill in the synthroid brand is the dose with the less fillers and additives (which makes sense). Okay, as far as levoxly and Synthroid the fillers are the same according to dose however levoxyl is cheaper than synthroid (pharm told me this as well). I hope whatever decision you make, you obtain normalcy VERY QUICK…. I hope I helped a little bit ” title=”Smile” /> Let us know what route you choose ” title=”Smile” />

Hugs
Krystal

[Hopeful23]

in reply to: Sickofgraves…3 months on Tapazole and getting better #1068229

Hey
I have someone you could talk to on here. Mongo26. He is also on tapazole and trying to obtain remission. I think you should PM him and maybe you two could share your thoughts, concerns and any other information. He isn’t so good with the low iodine diet so maybe you could slap him around for me. LOL. Good Luck!

[Hopeful23]

in reply to: 2 weeks on levoxyl no change? #1068199

I didn’t REALLY start feeling good on my synthroid until about a week ago and im 8 weeks into it. I was REALLY exhausted and had ZERO energy. I felt I was wall hugging for about two weeks. It was awful. I didn’t have the symptoms you are descriping but those are hypo symptoms so A. Either its not build up in your body enough for you to feel a slight bit different or B. You will need a dose adjustment in 6 weeks. I was started on 75mcg and thought it was too little and came back with PERFECT blood results. I think you need to give it TAD bit more time and really show your concerns to your endo if things dont improve in about 2-3 more weeks. This was just as hard for me as hyper was. Stay strong WE made it through thee absolute worst so just a few more weeks hun, YOU CAN DO THIS. I too was VERY emotional. You looked at me wrong, i heard a sad song, I couldnt figure something so simple out I WOULD START CRYING SOOO HARD I would give myself a headache. Make sure you get rest and take synthroid on an empty stomach with a full bottle of water. I noticed when I didn’t take it that way I felt "off". Take it at THE same time and try not to get so worked up because it makes you feel worse. I know easier said then done but I am just a few weeks ahead of you now and just want you to get better faster….xoxoxoxo

Krystal

[Hopeful23]

in reply to: First TSH reading since I started Synthroid 6 weeks ago… #1068246

Hey:)
So I went to my endo, FOR WHAT? It was a WASTE OF MY TIME. He says IT HAS NOTHING TO DO WITH MY SYNTH and my lips don’t even look swollen…UMMM OHHKAY. I wish I could post a pic of my lips on here and let you all see what I see. LOL. He prescribed me Levoxy however I guess they are the same fillers. So the pharm said it wouldnt do any justice for me. My endo said he could prescribe me the 50mcg and I could take a pill and a half. How annoying is that? I am just sooo irritated. I just want ONE person to ACTUALLY LISTEN to me. Is that really too hard to ask? He walked in the room and instead of saying hi he said and I quote "Why we blaming everything on synthroid" My response was because none of this happended UNTIL I started taking it so IT WOULD MAKE SENSE TO ME TO QUESTION THE MEDICATION. He looked at me, wrote a script and said try this if it doesnt work we will try the other option. I said okay and walked out of the room before him. I AM A PEED OFF GRAVES HYPO PATIENT STILL. LOL…

I am just so sick of trying to please everyone and no ONE cares about my feelings and this goes beyond the STUPID DUMB SYNTHROID… ugh….

[Hopeful23]

in reply to: UP UP and AWAY! #1068339

Ohhhh my goodness this is sooo exiting and such GREAT NEWS!!! HOOOOOORAY ” title=”Smile” /> I am all smiles over her:) You are going to feel so much better in a few weeks ” title=”Smile” /> Keep us updated for sure. BIIIIIIIIIG HUG ” title=”Smile” />

Krystal

[Hopeful23]

in reply to: 6 weeks post RAI and all better?!? #1068389

YAY LACIE
I am so happy to hear this ” title=”Smile” />

[Hopeful23]

in reply to: Help with Hypo Symptom Recognition #1068456

When I slipped into hypo my sypmtoms were similiar. My marker was PALE skin and Lips.. My eyes were puffy and I also had dark circles. I was very very moody. I didn’t wanna talk to anyone all I wanted to do was lay in bed. I was freeeeezing ALL the time. Couldnt get warm for anything. My skin was VERY dry and Im a soft skined person. I was very emotional. I just felt worthless and mad at the world. LOL. Typical right?!?! I know how you feel. Keep us posted of course…

Krystal

[Hopeful23]

in reply to: Grand mal seizure #1068529

I also had a few seizures during my graves journey. I have never had a seizure in my life until my levels were off track. I was never diagnosed with epilepsy because the dr’s/ emergecy room never actually seen or recorded me having one. I had EEG after EEG and they all came back normal. I had an ambulatory EEG and that was normal so I would just be careful because you never know. You don’t wanna put your life or anyone elses at risk when your behind the wheel. Seizures are very scary and I was in denial about experiencing them. I was embarrassed and ignored them. I was "lucky" not to have a gran mal, I had complex partial seizures…. but was still all whacked out. Hope you figure it all out ” title=”Smile” /> good luck….

Ps. since i have been on synthroid and my levels have been closer to normal range I have not experienced any of those episodes. I hope they can find a connection with this if any…..I also had RAI done May 12 and have been on synthroid 1 month and 1 week. FEEEEEEL SOOO GOOOD THESE DAYS ” title=”Smile” />

Krystal

[Hopeful23]

in reply to: Weigh-in (just for fun) #1068676

lACIE,

Hmmmm, we shall see. I mean I did track in HS and did well. Ran the 1/2 and the mile. Did relays etc but just didn’t have the heart or passion. I like to MALL WALK. lol…

Krystal

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