Ughhh! I sooo feel your pain.
I am 8 years post RAI, and I still have wonky levels – I guess that will always be the case. I have never heard of reducing dosage in the spring and summer, and that makes total sense!
After being way too jacked up last summer, I reduced dosage over the winter, and now, here we are in April, and I am too low.
Blood was drawn yesterday, and I have an email in to my doctor to hear what he has to say. T4 level, T3 low, TSH through the roof.
So tired of palpitations, anxiety, I am ready to feel better again! I find that even when levels are low, I can’t tell (except my clothes are tighter!) I just know when levels are off, either too high or too low, I feel wrong. The only time I felt good was when I was pregnant – suppressed the immune issues, and I felt great. Of course, once I weaned, everything went haywire, I’ve been managing that for the past 3 years.
Anyway, thanks for your post – I completely understand!