[hoganshelly]

in reply to: Hair loss and muscle stiffness #1177510

Thanks for the replies. Makes me feel better to know I’m not crazy or imagining things. I really believe it’s still all related the thyroid. I hope to have some resolution before my next set of surgeries this summer.
Will be under going eye muscle surgery and for my eye lid retraction.

[hoganshelly]

in reply to: Coping with the holidays #1175463

I had OD the week prior to Thanksgiving. My children and family lives 2.5 hrs away. I wasn’t able to make it for Thanksgiving dinner. Not because I felt that bad after the OD..I am experiencing bad double vision and driving was/is out of the question. I have a small amount of family here and we just went to Cracker Barrel for lunch. It was good food and no clean up!! Not the way I would have prefered but it was acceptable for me given the situation. I love to cook but just did not have it in me to do this year. If I have to miss 1 Thanksgiving, 1 Christmas and be able to enjoy the rest of them with my family then so be it….
Due to the upcoming surgeries….I will be doing what little shopping that I need to do this year online. At least my kids will get a little something. Due to all the medical bills money is very tight….they will all get a little something. I have come to terms with this…and I know I am doing my best. I have really had to let go and ask for help and to let those help me.

Happy Holidays!!

[hoganshelly]

in reply to: Use of prednisone to treat TED: it’s effectiveness and any side effects? #1175287

I have been on and off prednisone for the last 3 months due to my severe TED. It has helped my vision. I started taking it a week prior to my RAI August 28th. Intially my endo prescribed it to protect my eyes from the RAI (40mg a day). After the RAI my eye dr suggested that I stay on it due to the inflamation behind my eyes. At my 6 wk check up I was still extremely hyper. Endo said I could stop taking it…..I noticed immediately that once I missed a dose or stopped my vision was worse. Things were very blurry and a lot more uncomfortable. Eye dr put me back on it at (60 mg a day). I had OD on my left eye 10 days ago and I have since been experiencing double vision. I have started back on it….(40 mg a day). I have noticed (although not as much) that it does help again a little bit.
It does not do anything for the double vision.
As far side affects go…I have not really had any. I have gained about 5-10 over the last 3 months. After the the OD I have actually lost 5 of those lbs.
Overall, I would say my experience has been good and helpful with minimum side effects.

Good Luck

[hoganshelly]

in reply to: OD in the “hot” Phase #1175080

Here is a quick update. I had left eye OD on Friday. I am doing well. Biggest dissappointment right now is my double vision. It is really bad now. Eye dr says that is to be expected until my right eye is able to be done. To answer gatagori…I beleive since I am so hyper is the reason for the TT at this point. My endo changed my bp medicine and it is working much better.
As far as my OD….everything went well. I can definetly notice a difference even with swelling. There has not been any untolerable pain. The bruising is really starting to show up. I have a follow up with eye dr on Wendsday and then appt with surgeon the week after thanksgiving for TT.
Will the removal of the thyroid help stop the TED?
I am very concerned with the vision issues and working right now. I am an accountant and I must get back to work as soon as possible. I am trying not to rush it…
I do not understand everything that is going on nor the reasons for the dr decisions. I just believe that whatever they decide will be the best for me and my situations.

Thanks for listening….

[hoganshelly]

in reply to: OD in the “hot” Phase #1175076

Thank you for the response.
6 wks after the first round of RAI visiting my endo he did put me on Methimazole. However, I had a bad reaction to it. Muscle aches, fever, hives and rash. I was taken off of it immediatey and that is why the 2nd dose of RAI had been ordered.
I have also read that it can take up to 6 months to know if RAI is/has worked. It is common to still be so hyper 6 wks after RAI?
My eye dr and endo are communicating as well. I am on bp medicine currently, however my bp is still high. I also have a very high heart rate. BP averaging 145/90 jumping up to 162/95 and heart rate averaging 115 (as high as 148)
Is high bp a direct cause from the GD? I have not read a lot about that.
I am just concerned that I am in limbo. I haven’t been cleared by the endo for eye surgery as my eyes are getting worse by the day.
I am hoping to get some answers tomorrow from endo.

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