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in reply to: On ATD two years-plus? #1183800
My story on Tapazole for 6 years.
in reply to: Hello and thank you #1172979I should have been updating this thread over the years.
It was this forum that made me aware there is success for some with long term Tapazole usage and the possibility of remission.
I was on Tapazole for almost 6 years started at 30mg and went all the way down to 2.5mg daily and had a jump back to 10mg, 5mg and back down again to 2.5mg. RAI was suggested multiple times by my Endo, he said the likely hood of remission after 2-3yrs of Tapazole was very unlikely.
Right round the 6yr mark my Endo said it was time to stop taking the Tapazole due to my readings going Hypo off the 2.5mg daily dosage.
6 months off Tapazole all readings were normal.
12 months off Tapazole Endo said readings were starting to lean towards hyper again but not enough to consider any treatment. Follow appointment set up in 6 month. I’m told to expect to be Hyper consider RAI option or Tapazole should the readings present this option.
Today 18 months off Tapazole – follow up appointment. All readings perfectly normal. Endo was excited to deliver the news. He said it was very unexpected based on what he seen in the results 6 months prior.
Follow-up set for 6 more months from today. Endo said if all is normal there will be no need to see h again and back to my family Dr. Should this be the case I will ask to see him at least one more time in 6-9 month for one more all clear.
I wanted to share this journey to provide others with more reference points.
This site was a great help to me, if my info can help others that would be awesome.
Thank you for the website, stories and hope this website provides.
in reply to: Hello and thank you #1172977Update #2
Had my second follow up October 17. T3/T4 and metabolic rate remained normal on the lower dosage of tapazole. Irregular heart beat is normal now (also had a appointment with a cardiologist begin of October who confirmed this a half month before my endo appointment. I have been weaned off metropolol over 8 days. Tapazole dosage was reduced again with my next follow up is in 11 weeks with the goal of eliminating tapazole in 6 months if results remain normal on reduced dosages (plan is to step the dosage down again in 11 weeks if all remains normal). My Tapazole dosage is now half what it was (20mg down to 10mg) in a 4 month period. I have put on an additional 5lb the past 2 months of muscle with a strenuous home reno lol!
Hopefully others have progressive improvements with their graves and hyperthyroidism. Good luck and God bless everyone.
in reply to: Hello and thank you #1172975Update #1
After the first 2 weeks of tapazole I was sure I was losing more hair but it seemed to stop. I had to do my labs at 6.5 weeks and seen the endo yesterday (1 week after my labs) at this point 7.5 weeks I have gained 16 pounds…..dead give away my metabolism had slowed. So my first visit to the endo I was told there were 5 issues T3/T4 metabolic rate, high heart rate and irregular heart beat. So follow up visit T3/T4/metabolic rate And heart rate all are in the normal range, irregular heart beat still exists. So tapazole cut from 10mg twice a day to 15mg once a day, metetropolol not cut still 50mg twice a day. At this loint my thyroid is showing only normal readings. Labs again in 6 weeks with return endo follow up visit #2 in 7 weeks, goal I am told is if t3/t4 stay normal reduce the tapazole again and hopes that the irregular heart beat corrects itself (with luck).
The endo plan was to have a 12-18 month program with hopes to get the thyroid levels corrected and move into remission. To see things in a normal range so quick is truely a blessing. I wanted to share this with everyone because it provides hope.
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