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in reply to: For newer patients mainly… Life after GD… #1068180
Hi,
I’m new to this website – and blogging/posting too!
Here’s my problem – I was diagnosed with Graves 5.5 yrs ago when I first found out I was pregnant. I went on PTU for a bit, then came off as my thyroid regulated itself during pregnancy. When my son was 4 mths old, I had to go back on PTU. I was on the ATD for aprx. 5 mths, then got severe joint pain – I couldn’t move, I felt like I was 100 years old, and was sooooo tired all the time. I told my endo about it, and he totally dismissed it. I then went through x-rays with my gp on all my major joints to see if it was osteoarthritis which it was not. I ended up taking myself off ATDs and the pain went away. I was mildly overactive, but got pregnant without problems for baby#2, again thyroid went into remission for pregnancy but it didn’t last. I have been overactive for almost 3 years now. My husband is very anxious that I do something as I have been moody (feels like I have PMS quite often). My endo has been pushing RAI ever since I’ve had my children, but since I was breastfeeding, I was able to delay it. I have been thinkging of doing RAI, but I have seen so many negative posts about it, that I’m scared to do it – especially since it is a one-time thing, no going back – AND – my endo didn’t listen to my complaints the first time when I was on ATD and felt like I was going hypo (T4 was 12 & t3 was 2.9 – Canadian #s). I feel that he’s going to make me sooo hypo again that I will not have any energy to do things with my children, or for me to be active. I also don’t want to have to be away from my family after taking the RAI and fear jokes from some people that I am a green monster/freak for being radioactive, in addition to setting off alarms at the border or airport should I decide to travel. Any suggestions from people who have been there, done that? Or, someone who is also just waiting it out to see what happens? Thanks!
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