[hockey]

in reply to: confused re: dosage & brand change #1066447

Thanks for your reply Bobbi.

I guess with the dosage, and brand change at the same time it shouldn’t really be a big deal – especially since I will be going for another blood test in 2 mths (mid-April) to check to see if this is the right dosage for me.

It’s just frustrating (for me) that there seem to be so many conflicting views about treatments, precautions, medication. I wish it were more cut & dry, in the box – rather than there being so many ‘grey’ areas.

Thanks again! Hopefully this new dose will help me feel better.
-hockey

[hockey]

in reply to: how do you get over the anger? #1068103

Hello again!

As I posted before I took the RAI, I was bothered by frustration, impatience, anger etc. and then it seemed to fizzle after I took the RAI. I had no drive/fight left in me, it felt like the RAI sucked it all out of me. However, gradually, I’ve become more and more impatient – the impatience seemed to return around Christmas (aprx. 3 mths post-rai, about 1 week before (I think), if not the same week or the week after I started taking Synthroid). I am now VERY short on patience with many things, sometimes trivial things, but it ALL bothers me. All I seem to want is quiet and space.

Has the same happened to anyone else who has taken RAI? Did the anger come back? Was it due to being hyper caused by over-medication?

I was told to get a blood test the 2nd week of Feb … that would make it 6wks after starting replacement. I am seriously thinking of getting tested early to see if that is the potential cause.

Any ideas as to what’s happening/happened to you, would be great!
Thanks,
hockey

[hockey]

in reply to: new to replacement – couple of questions #1066908

So, I’ve now been on replacement for 3 weeks … taking it at night still seems to be easiest (for now). I find the hour of the dose varies, but, that’s the best case scenario for empty stomach. Bobbi – not sure why in your post you said taking the replacement in the morning is the ‘safest’ – what exactly do you mean?

Now, I’m starting to feel hyper – irritable & not just short term – it lasts all day long (for instance, my son lost his favourite stuffed animal & we couldn’t find it, but it bothered me ALL day long … my daughter wouldn’t go to her skating lesson for the 3rd week in a row but loves skating, we had been earlier in the day & I just can’t shake the frustration), little things my husband does bother me – all very similar to pre-RAI. I’m also tired – but not at the same time (if that makes sense) .. I dozed off putting the kids to sleep tonight, now I can’t go back to sleep. Last night I was awake at 2:30, my mind is racing. I want to stay in bed in the morning as I feel tired, my muscles feel tired in the morning even if I haven’t been active the day before.
Could I be on too much replacement? Is it worth taking a blood test now, or do I wait for another week – my endo said to get one the first week of Feb. so getting one now would be 2 weeks early.

Thank you for the advise posted earlier re: don’t alter or ‘forget’ to take the dose as I would be apt to do the same (my husband would also have suggested doing the same thing). At this stage in the game (being close to blood test time), there’s no point in re-starting the clock on the dosing.

It seems as though most of the others who have posted here have been put on larger doses over time, moving up from 50 to 62.5 to 75 to 100 … my endo started me at 75mcg, is that typical? Could that potentially be part of the reason why I feel more hyper? Two weeks before I started the replacement I felt great!! Then, the week between Christmas & New Years, the sluggishness set in (blood test confirmed it was time to start replacement). Since starting replacement I felt more hypo at the beginning & now feel as though I’m trending again to hyper.

The tread "Too much levoxyl?" has also been helpful in looking at dosing etc. but I’m not sure what to do?

Any suggestions … should I go for a blood test now, or would it be better if I wait another 2 weeks as originally requested by my endo? Would waiting for a couple of weeks paint a more clear picture? If I am on too high a dose now, would it show on a blood test if I were to go now? I don’t want to yo-yo as has been mentioned, but It’s just frustrating with the irritability, racing mind, lack of concentration, lack of interest/motivation – the muscle cramps previously mentioend are essentially gone & the hyper symptoms seem to be getting progressively worse/more noticeable as the week(s) go on.

Sorry for the rambling – think some of that has to do with the lack of concentration I mentioned earlier.

Thanks,
hockey

[hockey]

in reply to: new to replacement – couple of questions #1066906

Ski wrote:Well! Where do I start? All good questions, and we understand the frustration as well!

Here’s the thing about thyroid hormone. Our body absorbs it through the large intestine, so it needs to GET that far, alone, in order to be sure our body absorbs it as efficiently as possible. That’s the issue with taking it on an empty stomach. In addition to that, there are certain substances that can change the way it is processed in our bloodstream, if that is taken in very close in time to the replacement hormone. STILL, consider this: if you take it the same way each day, eventually your dose will be adjusted accounting for whatever method you use.

As far as taking it at exactly the same time, a couple of hours’ difference won’t make much of a difference, so don’t worry about that. The interactions with other substances have more chance of disturbing your condition.

The first period of time after taking a new dose of replacement hormone (first 3 weeks or so), it’s very typical to feel "kinda up," "kinda down," with no real rhyme or reason. You should find that those feelings even out in weeks 4-6.

Thanks for your insight Ski!

I’m still trying to figure out this replacement thing, especially when I’m not used to even taking a daily vitamin, it’s so nice to have a sounding board of others who have been there/done that to bounce ideas off of. I hadn’t consided that a higher dose may end up being what is needed if I were to eat something closer to the time of taking the replacement than what I perhaps should (eg. eating cereal in the morning). It’s also nice to get a general feel as to how long the up/down emotional fluctuations may last – I know everyone is different, but hopefully it will settle shortly.

I remember seeing on previous posts re: setting an alarm part-way through the night, at this point in time, I would prefer to try & get a full nights rest especially since I have little ones & they don’t always sleep through the night, I figure right now I don’t need any more interruptions in my sleep.

The back pain is gone (yeah), I went for a run today, first time in a long time & I felt really good running! I wasn’t sure how the run would go as this morning I had the biggest cramp in my hamstring, the pain was excruciating, I didn’t know whether to laugh or cry!!

Has anyone else experienced muscle cramps as they transition from hyper to hypo & then start replacement? I seem to be getting many cramps (neck, legs, shoulder/upper back) every day or couple of days.

[hockey]

in reply to: Pregnancy and Medication #1066914

Hi Christa,

Some of what you have gone/are going through sounds familiar.

I went to my GP for a physical in Jan/04 as we were having trouble getting pregnant & so my dr. ordered standard blood tests, including TSH. I went back in a month to review the results with him – at the time, he didn’t mention anything & I really didn’t notice anything unusual. Looking back, I had some symptoms – sensitivity to the lights in the office, irritability (mostly though b/c there were other women in the office getting pregnant & I wanted to be), increased hr – I was really sucking wind while playing a hockey game, just thought I was out of shape as I hadn’t been going to the gym as frequently). So, I went back to get the results, & my dr. said I was hyperthyroid & was going to refer me to a specialist (endo). Surprisingly I got into the endo’s office within a week (my #s were really out of whack – T4 was 49 – Cdn numbers). In the meantime, I thought all would be OK seeing as how between getting the blood test results & seeing/talking to the endo I found out I was pregnant.

I went to the endo anyhow – as they said I NEEDED to, took my husband too. The endo told me I really HAD to go on PTU – knowing I was pregnant – as there is an increased risk in miscarriage if you are hyper, along with other things. So, I ended up being on PTU for aprx. 4 mths of my pregnancy. I had weekly blood tests to monitor & was on the lowest dose possible to maintain normal thyroid levels. He started at 50mg, the highest I was at was 50 mg 3x/day (or 150). I think I was only on the 150 mg’s for aprx. 1 mth, then as the pregnancy went along, the dose was lowered until I was able to be off the medicine completely. I was VERY reluctant to take the medicine (in general, I’m not really one to take tylenol if I have a headache, I usually just work through it), but did in the end take it.

The OB I went to was surprised that I was still on PTU when I saw him at around 22 wks, but he knew the endo & told me my endo is a walking encyclopedia so I felt a little better and shortly after that, I was off of the meds anyhow.

As far as my child’s health – all went well throughout pregnancy & delivery (born 10 days early). My endo had said that as long as I was in a normal range, then there was little chance my baby would be hyper/hypo at birth – the hospital did a routine thyroid check at birth & it was ok. My endo did suggest though to avoid iodine (for epidural, they used some other disinfectant) as it could cause a flare-up of graves due to excess iodine I may absorb – it was just precautionary & didn’t seem to be a big deal. I remember the anethetist preferred iodine but that’s mostly because you can ‘see’ it going on rather than trying to make sure my back was painted with the cleaning agent.

After pregnancy, I became hyper aprx. 4 mths after delivery (had bi-weekly blood tests for first 3 mths, then monthly). I went on PTU again as I wanted to continue nursing. I was on PTU for aprx. 5 mths until I stopped it due to excruciating joint pain, turns out I am allergic to PTU. My endo didn’t agree the joing pain was caused by PTU, however, I had blood tests along with x-rays of all my sore joints (essentially all joints as everything – wrists, ankles, shoulders, knees, hips were affected & bi-laterally too) & they came back showing no osteo or rhumeutoid arthritis. When I stopped the PTU & it was out of my system, the pain went away, so on I went. I remained hyper, my levels were slightly higher, but no-where near where they had been prior to diagnosis.

Now, my child is a healthy 5 year old! As for my child’s health, the only thing is he seems to have some allergies to animals (cats?) and is also allergic to peanuts, however, these allergies also run in my family. So far, nothing thyroid related & I keep my fingers crossed all the time there won’t be any problems. I can tell you there have been many instances (before/during/after pregnancy) when I’ve worried/wondered if the PTU did anything, but so far I can’t seen any evidance in it.

My endo pushed to do RAI when I became hyper post-partum, but I continued to say no as I was nursing & then too because I wanted my kids to be close in age. I didn’t want to wait for 1 yr before trying to get pregnant post RAI (or even with surgery b/c I knew you still needed to achieve stable levels through replacement). So, I continued on being hyper & got pregnant rather easitly. For pregnancy #2, again, I started out hyper (this time around, no meds though), had frequent blood tests (bi-weekly) & my body regulated itself around the 4th-5th month. I was ‘normal’ until 4 mths post-partum (Feb 2007). Again, I was nursing, so chose to do nothing. I kept putting off making any kind of decision as I was ‘nursing’ & ended up nursing for much longer than I had ever planned.

Was there a difference in the pregnancies as the first I was on PTU & the 2nd I was not? I can’t say there was. Were there any concerns with either pregnancy? Not really, only my OB thought my 2nd child was on the small side & sent me for a 3rd ultrasound around the 30 week mark. In the end, my 2nd child was born 4 days late & was BIGGER (8lbs 10 oz in comparison to my first 7lbs 2oz) – so go figure that he thought my 2nd child (now 3) was maybe on the small side.

In the end, I continued to do nothign for my thyroid – let the numbers stay where they were. Then, I seemed to become more symptomatic – anxious & irritable, so I tried accupuncture & some homeopathic stuff (not a true believer in ‘home remedies’ but I didn’t want surgery or RAI so thought I would give it a try, at least it’s reversible) and it seemed to work for a couple of months in that I was less anxious – maybe it was b/c I had someone to talk to??? Finally, in October 2009, I ended up doing RAI after agonizing over my decision for a long time. And now, I am just starting replacement & will see how that goes.

Christa, I totally understand your desire to have your kids close in age – that’s exactly what I wanted (and they are, 2 years & 1 week apart). It can be hard to convince your dr. that at times, but it sounds as though he is supportive. I sympathize with you over your concern about harming an unborn child (through medication that you need to take) as it was a decision I had to make once without really understanding what Graves was or why I needed to take the medicine since the only reason why I got the initial blood test was b/c I was having trouble getting pregnant & since I was pregnant, it didn’t seem as though it would be a problem. Whatever you decide is ultimately YOUR choice – best wishes to you. I hope your switch to PTU goes smoothly (if that’s what you choose) & that you are successful in getting pregnant. Make sure that you are monitored closely – weekly or bi-weekly blood tests – and are put on the lowest dose possible and that it’s tapered off too so that you are not on the PTU any longer than needed (at least, that was the approach my endo took).

All the best,
hockey

[hockey]

in reply to: How long did it take you to go hypo after ablation? #1067025

Hi enough,

Sounds like we have had similar things happening (from reading your previous posts) – only I’m a few weeks ahead of you (RAI was Oct 2nd).

I too thought I was having a TS in early Nov (5 wks out), but guess I didn’t. I just felt awful for about 2-3 weeks (weeks 4-6 post RAI were the worst). Then, it seemed to get a little better. I have just been riding it out (no meds – no BB (never was prescribed them, ever!) & no ATDS (allergic to them)).

My TSH is still suppressed & T4 (no longer testing for T3) is nearing what I thought my endo had said was ‘normal’ – however, without a normal range TSH, I guess it’s still not really normal.

I have had regular blood tests every 2 weeks (since RAI) until the last week of November. Now, as the numbers are lowering, I’ve been asked to do them weekly – a bit of a pain, but it’s nice to stay on top of what is happening.

I can say that lately I have been feeling tired (falling asleep at 9:30-10 while reading books to the kids to put them to sleep). When I worked out (played hockey) the last weekend in Nov, I felt GREAT (good thing too as we were short players). I can’t say how the workouts have gone since as I haven’t played since then. I’m hoping my games this weekend (have 2 & again we are short players) will work out OK. I guess things are on the mend – who really knows.

Good luck!

[hockey]

in reply to: RAI update #1067183

Congrats Lacie & ewmb – glad to hear you are both feeling better. Hope you enjoy the holiday season this year and have a healthy 2010.

Sallie – I guess we are getting there slowly.

Reading your posts (along with everyone else who has posted) was helpful in deciding what to do prior to treatment (RAI) for me – thanks!

I had RAI 2 mths ago now, 5 weeks after I took the dose it was awful – thought I was having TS (or heart attack) – guess it wasn’t a full storm, but definitely something was happening thyroid related as my gp couldn’t point his finger to being anything else after a physical, blood test & ekg. Initially my #s went up – WAY UP! Now they are starting to come down – hurray. Ay my endo appt. on Wed, he said most (& I’m assuming he means his patients) would be hypo by now – he’s now thinking that it (going hypo) will happen anytime now and has asked for weekly blood tests – a bit of a pain with all the other running around to do this time of year, but at least he will start Rx sooner so that I don’t hit rock bottom since it does take so long to build up/accumulate the hormone in your system, I am thankful for that. My patience is better following RAI, although I had absolutely no patience this past month for a week or so due to PMS. Hopefully that will get better as the numbers come down. Is one more sensitive to PMS with having a thyroid problem? Does it get better once your thyroid is ‘normal’ – ie. normal levels are reached?

I have another question too:
– before RAI, my endo always tested TSH, T3 & T4 … however, now that I’ve had RAI, he is only testing for TSH & T4. Why not continue to test T3? Any ideas? I didn’t realize it (T3) wasn’t on the lab request as I didn’t have it with me when I saw my endo on Wed (it was sitting at the lab). I wish that I had the req. as I could have asked about it then – now I am just sitting here wondering why as I track the results. I only realized T3 was missing as I had a message from his office saying TSH <0.05 & T4 18.4 & no T3 value (all #s Canadian). Wouldn’t you still want to measure T3 as it’s the more active form anyhow? Has anyone else had the same experience? Thanks!

[hockey]

in reply to: Scared to eat too much… #1067317

Hello enough3,

Yes – fear about eating too much following RAI – I’ve been there and the feeling still lingers although not all the time. The first week after RAI, I didn’t eat much, just loaded up on water!

I too am scared of eating too much and packing on the pounds as when I was first diagnosed with GD and it was mentioned that you need to kill your thyroid and then take replacement, the only people I knew on replacement were obese – yikes!! Some of my fear is that I will go to the other side of the pendulum (anorexia).

Anyhow – so far, since my numbers are more hyper than before I did the RAI, I’ve stopped worrying about what I eat .. I think I would have ended up losing weight if it had not been for some fo the Halloween treats I ended up eating. Some of my clothes are a little on the big side now, not much, but they look a bit baggy – so when they start to feel a little better, I will put the brakes on my eating habits … somedays being a stay-at-home mom makes it hard as the pantry is tooooo close and too easy to access – this will be a HUGE problem when my metabolism does slow down. Hopefully I’ll find a way to cope. I guess you don’t really know when you’re going to stop being hyper and then end up in hypo land with a reduced metabolism at which time the pounds would start to add up … I am glad that I need to get blood tests every 2 weeks to see what’s happening as I’m assuming that as the t3/t4 numbers become more normal, my metabolism will be slowing down. I’m also hoping that my appetite will decrease as I hit a more normal range of t3/t4. How often are you scheduled for blood tests?

Even though I haven’t worried too much about what I’ve been eating in the last couple of weeks, I badly need new clothes and winter jacket etc. but I am putting it all off for a year or so until I get a better sense of what size I am going to end up at. Hopefully it’s the same size, but I can live with going up a size. I’m not much of a shopper so if I can delay buying clothes so that I only have to do it once, I think I will as I’m assuming that I will likely end up being a size bigger (back to pre-GD, 10 lbs heavier than current weight).

I’m hoping that when I do finally start gaining weight, it will actually be muscle >> I know I’ve lost a lot of upper body (core) muscle. Anyone know the best way to build muscle?

[hockey]

in reply to: First set of results since RAI- Confused!! #1067302

Hi Sallie,

I too recently had RAI done (Oct 2nd), and am wondering where the roller coaster ride is going to go next – up or down? Initially (10 days) post RAI my numbers (t3/t4) were down, then at 3 & 5 weeks post-RAI, they have gone up – to levels that are higher that they were prior to getting the RAI done. It’s VERY frustrating. Unlike you, I don’t want to do another RAI if this one didn’t work, so I’m not sure what I will do.

All I can say is who knows … from this board, it’s helped knowing there is a period of ‘dumping’ as well as learning that it’s not an overnight thing where your numbers will go down >> wish my endo had said something, anything, to that regard, however, maybe it’s better getting the information from first-hand experience rather than his ‘text-book’ details.

I wish the whole process would happen faster or there was something I could do to speed it up – guess that’s one of the problems with Graves, we’re just go-go-go. It’s no fun feeling rotten.

Sallie – you mentioned that you feel drained … so do I … I’ve just felt so tired, and unmotivated since taking the RAI. I’m not sure why. It feels like the fight or flight response has just disappeared and if I needed to do something quickly, I wouldn’t be able to. I’ve felt like I just don’t have any fight left in me, I don’t want to argue with the kids about are the toys picked up yet, or it’s time to get ready for bed, or if my husband has put something in the wrong place – I just don’t care anymore, or even feel capable of fighting. With that said though, the last few days it feels like it’s coming back – likely b/c my numbers are so high. My GP figures all the chest pain/tightness, shortness of breath etc. I’ve had in the past 2 weeks is due to thyroid – just wish endo had given some guidelines prior to RAI as to what to look out for (or maybe that was the nuclear dr’s job, however that dr. had left the hospital prior to my RAI, it was a nurse I dealt with).

Good luck with your next test results. Hopefully you can figure out your endo too – it must be upsetting when THEY can’t keep things straight regarding treatment options/plans as they are the ones who are supposed to be guiding you so that you can make an informed decision.

[hockey]

in reply to: how long did your ‘dumping’ last? #1067433

Rats, I was hoping someone else had the same thing happen to them.

I was guessing my dose would be high enough (17mci) – higher than what most others have posted about, with an uptake of 50%. Could it be possible that I flushed the RAI out with drinking too much water (10L in 3 days!)?

Hopefully it is just the dumping, and it’s not getting worse. I don’t really want to have to take another dose of RAI … it was not a fun isolation period, and I’m not sure where I would go this time … I certainly wouldn’t go back to my dad’s cottage – I’m not even looking forward to going there in the summer for pleasure.

Guess I’ll just have to wait for the next test – in 2 wks – to see where the numbers sit. Guess I’m just frustrated after having a brutal weekend thinking I was in TS, and then to not have my endo even ask when they called with the numbers if I was feeling ok bothers me a bit.

As for taking ATDs – it’s not an option .. I am allergic to PTU & my endo doesn’t want to put me on the other one as he’s seen too many adverse reactions to the drug and also b/c I had the negative reaction to PTU. Guess I will just have to wether the storm on my own – no meds (incl. beta blockers that everyone on this board tends to refer to … my GP didn’t seem to think I needed them when I was in his office earlier this week, so guess it’s ok??).

Thanks again for your help Ski – I appreciate your words of wisdom.

[hockey]

in reply to: how long did your ‘dumping’ last? #1067431

Not sure if I made it clear in the last post when I said my numbers are moving up! It’s not TSH that’s moving up, it’s still suppressed. My T3/T4 #s are actually more hyper follwing RAI.

blood test day 11 post RAI – T3 – 7.6, T4 – 23.5
blood test day 26 post RAI – T3 – 12.0, T4 – 29.8
blood test day 38 post RAI – T3 – 13.1, T4 – 32.0

I’ve felt horrible from days 26-38, any suggestions as to whether this is ‘rock bottom’ or will my numbers (t3/t4) just keep going up?

[hockey]

in reply to: how long did your ‘dumping’ last? #1067427

Well, I didn’t end up going to the hospital – the chest tightness seemed to go away late in the day on Saturday and wasn’t there on Sunday.

I mentioned all the symptoms to my GP at my physical and he wasn’t sure if it was thyroid related or not – good to keep an open mind – he said if I still feel crummy that I should deal with endo. He ordered add’l blood tests, and an EKG to make sure all was ok. Hopefully it will all be ok as otherwise, he gave me a clean bill of health – yippee! (even though my bp seemed high at 134/79) – guess he was taking hyper into account. He also said he hasn’t dealt with a patient who has had RAI done in a long time (10 yrs at least) – so that’s not exactly in my favour, but at least he was up front.

My endo’s office called with the results of their blood test I had done yesterday as well – T3 13.1 & T4 32.0 – so … numbers are still going UP!! How long does this last? I was hoping that I had hit rock bottom on the weekend, and that they would have been the same, or lower than the blood test I had on the 28th of Oct. I didn’t get a chance to ask the endo’s office any questions – she put me on hold for 5 mins after calling, then I felt rushed off the phone – she never asked about how I was feeling or anything … if I try to call back with questions, I will either get a busy signal, or, a message saying the office is closed – with no voice mail option. She said to get another test in 2 weeks, although this time, I will get another test sooner if the chest pains start again in case the #s are going up rapidly. It’s funny that when my T4 was 49 (yes, that’s right!!), when I was initially diagnosed, I didn’t feel this awful – and that may be a downfall as I wasn’t complaining then, so dear old endo may think that these numbers, which are less, shouldn’t pose a problem.

Yes Ski you are probably right – better to get checked out that not. I was second guessing myself all weekend, so yesterday’s appt. was a relief. Not sure why, but I really need to be pushed to go to the dr’s. Even when I was in labour, I wasn’t really sure (for child #1) and my husband thought it was just false labour as all his friend’s wives had it – and I had an appt. for later that morning wth my OB so I didn’t really worry. So, I sent my husband off to work (1 hr drive) for a 12 hr day … needless to say that all he got in was 1hr of work, and a couple of hours in the car. Anyhow – I really need a push to get me to go.

As for a TS happening 1 mth post RAI – I don’t think I would be so quick to say that it wouldn’t happen … TS’s are rare to start with, but one of the triggers is having RAI, and uncontrolled Graves >> which I’ve had both, plus I know that my T3/T4 #s are rising, so TS was the first thing that came to mind.

So – if anyone has any suggestions as to how long T3/T4 #s continue to rise during dumping, that would be helpful. Am I at the peak yet, or will they continue to rise even more? I’m hoping that I start to feel better soon. I’m not sure what is better – suffering mental symptoms (pre-RAI) or physical symptoms (post-RAI) as the symptoms I feel seem to have switched following RAI.

Thanks for listening.

[hockey]

in reply to: how do you get over the anger? #1068101

elf wrote:… And in that case, RAI helps. With my thyroid gone (like a mean monster alien sitting inside of me), my capacity for anger fizzled.

Well, tomorrow it will be 5 weeks post RAI & the anger seems to be gone. Yippee!! Elf, your description above re: mean monster being gone describes me to a ‘T’ = my husband said someone wrote that?! He was surprised you were able to nail down the change in my behaviour/feelings – and perhaps too that someone else had reacted similarily when hyper.

I’m glad the anger is gone … there are other things post-RAI that aren’t as good (headaches, sore throat – still!), tightness in my chest that I never noticed before even when I was first diagnosed 5.5 yrs ago (at that time my T4 was 49 – they didn’t test for T3 the first time, so not sure where that number would have been), and shortness of breath. My husband said he’s sorry I have the other symptoms, but is very relieved the anger is gone.

Thanks … it helped when I was deciding to do RAI or not that I wasn’t the only one who was angry or short on patience. I still have some moments of frustration, but who doesn’t – maybe as my numbers come down (they are at the same, or higher from pre-RAI), I’ll end up with even more patience.

[hockey]

in reply to: Congratulations Nancy and Ski #1067521

Congratulations!! Your wisdom and thoughtful words are helpful and encouraging.

Keep up the good work.

[hockey]

in reply to: neck pain post RAI – how long til it goes away? #1067731

As for blood tests – initially he said to go weekly … I had one 11 days after RAI (#s trending downward), and was asked to get another one in 2 weeks (initially he said weekly when I said yes to RAI) so maybe he is trying to catch it early so that I don’t end up having to feel symptomatic – not sure yet, just from what I’ve read on here, it looks as though most people seem to go hypo & feel hypo before any meds are started.

If the neck pain is related to the RAI working, it’s a little easier to take – I just hope the pain goes away soon, it’s rather annoying.

Thanks!

[Author]

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