[hansontrish]

in reply to: Back Pain #1066995

Ski, thanks for the info, and I will look into the fibro stuff… I’m getting it again… and I have done nothing to injure it…. kinda makes you wonder.

Kimberly, I will ask the next doctor I see… I think that I’m done with this one. I’ve been on the phone all night with my older sister, who is a nurse, and she has raised some pretty good questions to which I had no answers…. but she is threatning to come here and start standing up for me and making some decisions… so I better get it done so she does not have to do that…. hehehe *wink *wink. ” title=”Confused” />

I’m not really sure what the doc has been talking about because I can’t get him to answer me… I actually went to the hospital today and still got nothing, nothing but the run around… It’s getting very frustrating!!! .. ON second thought maybe I should let her come…

You all have been great… Thanks for all the help. And I will check up on these two main points.
Thanks again,
Trish.

[hansontrish]

in reply to: Back Pain #1066992

Thanks for all the info guys… I have done some research and found that as you guys have mentioned, joint and muscle pain are very normal, but "back pain" is not an actual symptom. I’m not sure what has caused it. It finally went away, after about a week and more motrin then a regular person should have.

I’ve tried talking to the docs, and tried getting someone to listen, but everytime it’s "here take this pill". I’m not saying that I’m anti pills… just I would like to know what is wrong before I start dosing myself with drugs. But with the new year, my husband has agreed to help me "stand up and be heard"… he’s going to be my back up if I can’t get through to them.

I’ve come to the conclusion that I need to get a new doctor. I can’t get it to happen before my RAI, so I’m going to have to wait until after. (insurance issues.)

It’s not just because of the pain, it’s a whole bunch of stuff… I had another post on here about most of it.

So with that said.
The back pain has subsided, with motrin, muscle rub, and rest. I’m going to watch to see what seems to trigger it. I’m just really hoping that it does not come back.

Thanks again guys for all your advice, and support.
Ya’ll rock.
Trish.

[hansontrish]

in reply to: very confused about a bunch of stuff… #1066982

Hubb: Yes I’ve only had 2 blood draws and I just started on the treatment in Nov, ADT’s. I do feel rushed, but at the same time, I’m the sort of person who just wants to get things back to normal as quickly as possible. I’m finding out with this lovely disease that quick is not something that can be used in a sentence to describe it… ” title=”Smile” /> Thank you for the advice.

Valarie: thanks for the advice. I’m kinda on the same train of thought as you, about the doctor thing….

Bobbi: thanks again for the email and the advice… I take all of it to heart.

You guys seem to be the ones I turn to for answers to the questions that I know deep down my doctor should be answering. Getting another doc is not really an option at this point, I’ve tried for the last week, but can not seem to get anywhere. I will keep it up though. I did however get an eye doctor appointment…. FINALLY!!!

All of your information is great, and I value each persons advice. I have a friend who I talk with daily who has graves, and I pass a very good amount of info on to her…. She is thankful that you guys are around, as am I.

Thanks again for all your input.
Trish.

[hansontrish]

in reply to: Back Pain #1066987

Ms Bobbi,
I’m not sure either. But the first time I saw him he asked how my back pain was, and I told him that it was not that bad. He said it would get worse. And everytime I go see him he asks how bad it is. But this is the first time that it has actually been a real problem.

thanks for the info about the way our body reacts when we are hyper, it’s some good info, a lot of things are making sense now.

I don’t have any history of back injury, and never really had back pain that was for no reason…. I mean I’ve hurt myself, like trying to ride my 13 year old neices bike… you know… crazy stuff ” title=”Very Happy” /> but never just because.

I forgot all about the pharmacy… thank you for reminding me. I will give them a call today. I’m having a few isses with the endo doc right now, as a matter of fact I think I would trust the pharmacy over my endo doc. I wish my PCP could do his job, then I wouldn’t have to deal with him.

But anywho… The pain has dulled down for now, so I’m going to take advantage of it and get the house clean.

Thanks again,
Trish.

[hansontrish]

in reply to: My choice of treatment and a question about it #1068072

So here is another question for you guys. Sorry for all of them.. ” title=”Smile” />

if I’m feeling pretty horrible, is that a good indication that things are not under control. I mean I feel really really horrible. I told the doc but he just said he would check the blood, which was on the 8th. How long do the labs take?
It is all I can do to get out of bed in the morning, and take care of my kid. I went to the doctor around june, at the time I was working 3 jobs, and being mom, so I never had time to go to the doctor a bunch. We moved, and my husband said my health was priority, so I’ve done the doctor circut and now that I’m getting treated I am beat. I have no energy, I feel like I have the flu, I can’t concentrate and I can’t seem to accomplish simple tasks, which would of been no problem in june. That does not even touch the topic of the pain that I have everyday. I’ve read about all of these symptoms, but they are usually after RAI. I have a friend that has graves and she has been through 2 storms, and treats hers with meds only, and she says she feels fine.
So since I’m not feeling great, should that be an indication of things not working??? I’m not even sure that makes sense.

Thanks again for all the help,
You guys are great.
Trish.

[hansontrish]

in reply to: Hyper after RAI #1067165

I have not had the RAI done yet, but I completly understand the whole, fumbling over words. I know what I’m thinking… but I can not get them to come out right some of the time. And typing can be a chore sometimes. I’m in school so that makes it so much more difficult to concentrate. I feel like a kid with ADD but the opposite. Not only that but all of a sudden I have forgotten how to type and spell. I know which letters I want but can not remember which ones go there, I know the word does not look right but can not figure out why. I would consider my self to be an educated person, but at times I don’t think I could compete with a 3rd grader.

It can be very frustrating. I have told my doctor about it and he said it was very normal. Along with various other things.

So abaltion was the thing for you??? I’m getting it done soon, kinda nervous. I’ve had a lot of symptoms and for a long time, they finally figured out why I’m having all these problems recently, I’ve been dealing with them for about 3 years, and a dx was made in Oct. The doc put me on high dose of ADT so I’m assuming that going hypo will cause you to have to re-learn a portion of most things. Something as simple as an everyday task, might need to be thought of ahead of time. I guess it’s a good thing I’m not a plastic surgeon… ” title=”Smile” />

[hansontrish]

in reply to: My choice of treatment and a question about it #1068070

Actually he is a civilian. I specifically requested a civilian, I worked with military docs for a long time and I’m not saying that they are any worse or better, just have limited resources.

Thanks for all of your help.

Hope everyone has a great holiday.

[hansontrish]

in reply to: My choice of treatment and a question about it #1068068

Bobbi,
Thank you for the advice and information. It did indeed help, quite a bit actually. The science of all of it is somthing I understand very well, and I could not locate that info, so thank you for that. I am usually a smart person and able to problem solve, however, it seems to be diminishing, which I was told could be caused by the disease. Sounds kinda corney, but that was a blessing in disguise, as I was having a hard time wrapping my brain around new concepts and ideas, and an extreamly hard time learning things. It was making school very difficult, and still is.
He did say that the ADT’s (thank you for explaining that acronym) were not keeping things level. So I’m guessing that it’s not helping. I will talk to him and get my lab report. I know that I have asked but never gotten anywhere.

The second opinion thing won’t be very easy, as we are a military family and the military insurance have a wonderful ability to drag their feet when it comes to approving these things. I had an emergency consult put in when my initial TSH levels came back and it took them over a week to approve that. I know that the doctor I have is very smart, and seems to know what he is talking about. I guess I just felt like there were things I was not told or needed to know about, as most of my information comes from old medical books or the internet.

I will look into the books you have suggested, and thank you for telling me where to find them.
Thank you again for your help,
Very Respectfully,
Trish.

[hansontrish]

in reply to: My choice of treatment and a question about it #1068066

Not really a reply, however, my questions would fall under this topic.

I was dx’d with thyroid issues in june 09. They were not sure what was going on, just that something was. I am prior military and currently my husband is still in so we move a lot. We moved in Sept. I went to the doctor in Oct. Dx with Graves in Nov.
I went from feeling crappy but thinking I was healthy in june to now, taking pills and feeling worse in december.

My endo put me on 40mg of methimzole (sp?) daily, (nov 3rd) he said that it needed to cool down, I asked for the actual values of my labs, and was told that it did not matter. I have read that 40mgs daily is a pretty high dose. But he said my levels were very high.
He has told me of the 3 options for treatment. I usually trust most of my physicians, as I was a medic in the navy, so I am very familiar with most medical related issues. This issue I am not.

My endo doc is going to schedule me for Ablation. He told me that I need to be isolated from my 16 month old son and husband for 10 days. We live in a very small apartment, with one room. When I had my uptake I asked about it and they said that it would be 48 hours max. Which one of them is right?? I could not find any black and white info out there for a definate answer.

The other thing I am wondering about is the actual choice of treatment. The endo doc, has said that ablation is the way to go. He barely touches base on the rest of the options, I basically just know that they are there. Reading all the posts about different treatment, I’m kind of wondering which is the right way.
He never told me about a "dump" or about adjusting the bp meds…. I didn’t even know that would happen. He have me a script for a medicine that I will have to take while I’m off the methimzole (sp?) and that I would have to cut my lisinopril in half, but he said that would be before the ablation and that I would not need anything after it.

I look through a lot of these questions and as i have found that not every one person has the same symptoms. Are there some good links out there that can explain all of this in detail? I thought I was a lot more educated about all of this, I guess i was wrong…. it just seems like people are talking about more info then I can find on the web or in my books.

Any help would be great.
Thanks ~hansontrish

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