[hannahsmom]

in reply to: teenage daughter has Graves? #1169227

Thanks Kimberly and Shirley –

I know you are correct and I need to have the Dr. interpret these – but I appreciate the clarification. It’s hard to sit and wait and not do anything. I will focus on being thankful that she’s doing ok and wait until we have her exam and consultation next week.

Will keep you posted.

[hannahsmom]

in reply to: teenage daughter has Graves? #1169224

Finally got my daughter’s most recent lab results in the mail today:

TPO Ab < 6 (ref 0 – 20 IU/ml)
Antithyroglobulin Ab <20 (ref 0-40 IU/ml)
TSI 46% (ref 0 -139%)

Please let me know what you think these mean as her Dr’s nurse described these as "negative."

By the way – she seems to be doing better – no increase in goiter size that I can tell – maybe has gone down a little? (she says it’s just my imagination that it might be shrinking).

Anxiously awaiting your feedback

[hannahsmom]

in reply to: teenage daughter has Graves? #1169221

Bobbi, Nat82 and snelsen –

Thank you so much for your replies. Here is an update:

We received the results of her anti-TPO, thyroglobulin and TSI last night – and they were all "negative." To my understanding – that probably means the results were within normal range, not necessarily zero. I am going to try to get a copy of the lab results tomorrow.

The plan is this: she is going to have her thyroid panel repeated Oct 4 (about one month after last synthroid dose), an exam to check size of goiter and consultation on Oct 6. If she is still hyperthyroid, we will schedule a RAIU scan.

I have been doing some research, and evidently in one study 91% of children with Graves had an abnormal TSI, but only 57% did in another, larger study. So the RAIU will (hopefully) give us a diagnosis?

Still considering coming to Boston – would it still be helpful if she does not have Graves (or the tests are not complete)?

Nat82 – I will contact you if she does have a diagnosis of Graves in the future – and I really appreciate the offer of letting me consult with you.

Thanks again to all of you –

Brenda

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