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in reply to: 7 years post RAI and suddenly very high TSH #1171244
It has taken me a while to come back, but here I am, just busy! I don’t know what the reason was my thyroid changed like that, but having been on 125 mcg’s for years, I am now on 100 mcg’s. Adjusting through the changes were difficult as my dosage was lowered, but I am doing really well now. The change from 125 mcg’s to 112 mcg’s was the hardest… VERY sleepy and NO energy, this lasted for about a full month. When I changed from 112 mcg’s to 100 mcg’s the same thing happened, but lasted for less than 2 weeks. I am always surprised how I fail to notice my own thyroid levels are too high? i will guess a million things it could be, and my thyroid should be the 1st thing I notice! I had lost some weight, was feeling that “quarrelsome” feeling, heart palpitations (those happen at odd times and it’s more as if I feel I am on a rollercoaster for a few seconds, my heart sort of jumps beats as if I am scared briefly.) I am back to my normal self, and feeling really good. I think it also helps that my stress has declined though and my Mom is doing much better .
An important thing I learned from this though:
About a year prior to my thyroid levels changing, I had started taking generic levothroxine, not the brand name Synthroid. My doctor always told me to take Synthroid, but I thought what the heck? I will save money so why not? As it turns out it is not the same as Synthroid. I’ll try to explain it right. When working with mcg’s, every place that manufactures medication cannot get the exact, precise mcg’s. Even Synthroid makers tell us each pill may vary slightly. So, each company does their best, but each company has different ratio’s and standards for making the medication. So, now you go the pharmacy and ask for generic thinking its perfectly fine. Well, the pharmacy can’t tell you or guarantee which generic pill came from where, so you may get it from one place one month, and an entirely different place the next. So, the actual mcg’s of your generic pills will have a bigger difference. If you stick to ONE manufacturer, and they practice the same standards everytime, now you will have a more reliable dosage. Make sense? I signed up for a prescription savings card and my Synthroid brand name is about $23.00 a month.
Some people will argue it’s just the pharmacutical company trying to make more money… but at this point with all of our thyroid problems who cares?! It’s worth a little more just to have the peace of mind!
Another thing I never stopped to think of while my thyroid level was getting too high is that while I did not change when I took it or things like that (someone mentioned that, and thanks!) But, I had began working out more regularly and I had not really worked out in years. So, it is possible by working out, my metabolism kicked up and this had an impact on the absorption of my well, levothroxine at that time.
Again, overall, I am very thankful I had the RAI done when I did. It would be nice to not have such morning puffy eyes all the time (I KNOW this is from all this!) but other than that I am anticipating some more smooth sailing in my future!
Good luck to all of you and please feel free to ask anything if I can help
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