[gravessufferer]

in reply to: Graves remission and high antibodies – Advice appreciated? #1172066

Hi Bobbi,

Thanks for the fast response. Unfortunately I don’t have any previous antibodies results to refer to.

I think if I had the T4 and T3 to look at then I might be able to get a better picture so maybe I should get them checked? My current TSH level would be classed as high in the UK as the upper limit there is 4.50.

I am trying to get hold of my old endo as he is amazing and I think he will be able to let me know if anything to worry about. I didn’t really want to just leave it and wait to get ill again if these were signs if the illness creeping back or going hypo.

I wondered if high levels of antibodies like this were normal in patients in Graves remission.

Thanks
Abigail

[gravessufferer]

in reply to: 9 months after diagnosis,my story #1069788

Thankyou, I just wanted to give people some hope as i know how desperate and afraid i felt at the start of all this, it upsets me when i read posts of people who feel so low as it reminds me of how i used to feel. I still have alot to face but we have to be strong and atleast we can come here for support from people who feel the same.

I just dont want people to let this illness get the better of them, we just need to have a little faith.

[gravessufferer]

in reply to: 9 months after diagnosis,my story #1069783

Hi
I think that now i have had time to get a bit better i can be more upbeat about things, which is why i wanted to come back on here to let people know that it is hard in the beginning but if we are strong we can make things better for ourselves.

It is funny you say you are impressed with my strength and i am grateful for that because it is that which keeps me in going, this is the main reason i wanted to come back on here as i wanted to show people that you do feel better, if you look at some of my older posts i sound a lot more desperate, i really had a rough time with it all physically and emotionally for months after being diagnosed i was so down, i didnt see my friends i didnt really do anything, i had very bad anxiety, i was constantly freaking out about everything, i was so scared, it really did change my whole life for a while, and although it still does know i have got back alot of what i used to be.

When i say about being positive i think that it has a big impact on how you view things and giving yourself a better chance at recovery, i think it is ok to have a good cry when things get too much or your having a really bad day but you have to just think to yourself i need to pull my self back together and keep trudging on im only making myself feel worse. I didnt use any particular strategies i just used will power, also my dad was always there to remind me that the stressing out and getting worked up was doing me no good and bad for me. I am still afraid of what is going to come in the future as in a couple of months i will be off the medication and will see if i am cured i just hope everyday that i am as i dont know if i can cope with the if not.

i hope you are doing well

[gravessufferer]

in reply to: Looking for stories #1074644

Hi there , my name is abigail, im 19 years old and got diagnosed in october 2008, i live in the uk and there is hardly any information at all about graves.

I am an art and creative writing student and was thinking about writing something about the whole experience anyway or doing some kind of art piece, i have already written a poem about the experience before being diagnosed.

I would be really interested in getting involved in this if you would like, and it would be good to talk to some people my age who are experiencing the same thing as me. Thanks

[gravessufferer]

in reply to: finding it hard to cope #1074682

I am on beta blockers to slow down my heart rate and to make me feel more relaxed and as my levels come back to normal so does a lot of other symptons, my heart rate is measured regularly and is not out of control the worry is just in my head reallly.

I have a really great endo who genuinally cares about people and takes a real interest in his work, i was just wondering is there anyone who does alternative therapies to help themselves such as yoga…or meditation…ect

thanks everyone

[gravessufferer]

in reply to: depression #1074693

hey there i was really sorry to hear you feel this way, and i often feel down myself, i dont always believe taking anti depressants are the best thing as it is more medication to mess with your body, but if that is what you feel comfortable doing then that is fine. I personally feel a positive mental attitude can really lift your mood and i know it is difficult when you feel so low, there are a lot of books and people out there who can help you. do you have anyone close to you who you can talk to?

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