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Viewing 9 posts - 1 through 9 (of 9 total)
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  • GravesRookie
    Participant
    February 19, 2014 at 10:58 am
    Post count: 11
    in reply to: Today is the day #1182091

    sunshineH20

    Best of luck to you, you do have to make the choice based on what is best for ‘you’

    By the way, in an earlier post, my technician told me the day I did my RAI that I probably don’t even remember what feeling good is like anymore…:lol: I have to agree

    Hope everything works out great!

    GravesRookie
    Participant
    February 18, 2014 at 4:00 am
    Post count: 11
    in reply to: Today is the day #1182087
    sunshineH20 wrote:
    Hi Rookie Graves, I too am a rookie, I was diagnosed with Greaves only a week and a half ago. After 9 years. I will see a specialist on Wednesday. I was just wondering how long you waited till you got your RAI treatment after being diagnosed. I have been in bed for 4 weeks now cause I lost so much muscle and I get only a couple hours a sleep a day. I have been off work for 6 months, no money coming in and I have to get back out there and live.

    Hi sunshineH20,

    Sorry for the late response. Also sorry to hear you are going through this.

    I actually only waited about maybe two weeks…my thoughts were “get this done”. After the Doctor explained my situation and my options I went for it. I am older, not REAL old 😆 59. I don’t care for surgeory, so I chose RAI. It was a breeze for me. Looking back it seems like just a bump in the road.

    I too had lost a lot of weight, almost 40 lbs in what seemed like overnight….but it was a course of maybe two months. It just started happening, pretty scary.

    I still have not started any thyroid meds as you could see from my last post. My last trip to the Doctor, he told me it could be a couple of months before everything is to the point to begin medication, much like buriedsunshine.

    I can say to you right now, it does and will get better, hopefully soon, so you can be back to your old self and start enjoying a since of normality (if that is even a word)

    I wish you the best with what ever treatment you decide. Again, sorry for the late response.

    as a side note: I still feel great

    GravesRookie
    Participant
    February 14, 2014 at 10:30 am
    Post count: 11
    in reply to: Today is the day #1182083

    Got my blood test results back yesterday, so far no change. So we wait. Still feel really good with no complaints

    Happy Valetines Day and have a great weekend! :D

    GravesRookie
    Participant
    February 13, 2014 at 4:10 am
    Post count: 11
    in reply to: Today is the day #1182081

    I haven’t posted anything lately simply due to the fact there is really nothing to say. I feel pretty darn good.
    Went to the Dr. yesterday for bloodwork; he thought it may be a little soon to be testing, but this is my call, so we took blood. I should have the results back tomorrow, maybe Friday.

    GravesRookie
    Participant
    February 5, 2014 at 6:42 am
    Post count: 11
    in reply to: Today is the day #1182080

    woke up this morning feeling pretty good, tomorrow is the last day of isolation! I am taking an extra day just to be safe. I have had no nausea what so ever

    I go in next Wednesday to do bloodwork. Maybe we can start moving forward and get things headed in the right direction soon.

    it just gets better every day

    and so begins day three

    GravesRookie
    Participant
    February 4, 2014 at 9:54 am
    Post count: 11
    in reply to: Today is the day #1182078

    gatorgirly,

    My uptake was 50% so I guess we may have had similar symptoms in that regard. I have been feeling better as the day progresses and look forward to feeling better more regularly.

    I am just kinda bored is all. My isolation is only 72 hrs as well, so Thursday I am going ‘somewhere’ 😆

    I have some hard candies called ‘Lemon heads’ and oh my God they are sour!

    Day two continues

    GravesRookie
    Participant
    February 4, 2014 at 6:13 am
    Post count: 11
    in reply to: Today is the day #1182077

    Woke up this morning feeling not bad, but not good either. It feels kind of like having a cold. I slept fairly well last night, no nausea to speak of. I can say this is the most bored I have been in a long time, not being able to do a whole lot.

    and so begins day two :)

    GravesRookie
    Participant
    February 3, 2014 at 10:25 am
    Post count: 11
    in reply to: Today is the day #1182074

    Thanks Barbra

    I just got home a bit ago and I am settling in. My dose apparently was pretty small, 15mci. I don’t have to stay in isolation as long as originally thought….only really 3 days. It took longer than scheduled because I had an arm load of questions for the tech and the Dr. The tech was extremly nice and helpful, she put my mind at ease and really helped me.
    I am glad that part is done and now we can move on to the blood testing and medication process.
    The tech told me that I probably don’t even remember what normal feels like and that I hopefully will get there soon.

    so this begins day one

    GravesRookie
    Participant
    January 29, 2014 at 4:52 pm
    Post count: 11
    in reply to: Just saying hi and glad I found this forum #1182021

    Thanks very much for the welcome and the recommended reading. I have combed this site, part of the reason for my brain overload. I have made my decision and will be doing RAI Monday with home recovery. So maybe I will be doing some post while I am in my self
    imposed isolation ……..share my experiences if that’s ok

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