[graves02]

in reply to: Surgery and TED #1169078

Thank you Sandy. The doctors and my sister are trying to push me into muscle surgery. They claim they can’t make eye glasses for me. I have vertical and horizontal problems and have been told I would become dizzy with eye glasses. Learning to live with the double vision. When necessary I cover one eye. My right eye is worse than my left. I’m scared of the surgery because of some of the reasons you have stated. I have read that you can lose you range of motion. (looking left and to the right) Feel like it’s a crap shoot. These are my eyes their messing with. One doctor said it would be one surgery and others say many surgeries. Don’t know who to listen to. Your suppose to be stable. What is considered stable? Just eye measurements or eye measurements and TSI. Not finding consistancy in the medical profession.

Hope things turn out better for you. Please keep me posted.

Thank you again,
Wendy

[graves02]

in reply to: Surgery and TED #1169071

I have only had Graves for a short period of time (2009) and fighting surgery for my TED (muscle surgery). My understanding is that Hyperthyroid and Graves run their separate course. I was told it can correct itself and then return at a later date. Also staying on meds won’t help the Graves. My Hyperthyroid is under control. Don’t think my TSI or Graves is under control. People with RAI can get TED many years later. I have heard so many things that I’m very confused. Was told not to have surgery until stable, but my TSI numbers are going up again. I’ve been off meds since March 2011. Been trying to find someone who has turned down TED muscle surgery. Why and how are they doing? Finding many doctors are not real familiar with Hyperthyroid or Graves Disease. Doctors are more familiar with Hypothyroid. Feel like I’m doctor hoping. When I ask questions they don’t know the answer. Please let me know what you find out.

If anyone out there has had eye muscle surgery please answer some of my questions. How many surgeries? How are you doing? When did you decide to do the surgery? Has it helped? Do you have full range of motion? What happens to the eye lid when the muscle is moved? Did you feel the adjustment? My eye sight in both eyes are perfect. I do have double vision and was told they can’t make glasses for me. Scared to mess with my eyes. Feel like I’m functioning and not walking into walls. Do get a little car sick.

Been going to the same Endo since 2009. Looking for someone who is more specialized in Graves and Hyperthyroid in the
DC/Meto area. Someone who is more up to date on things.

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