[genuinruby]

in reply to: Question about TSH #1066609

Thank YOU…I feel really special with so many INFORMATIVE replies. After more than 2 years of trying to achieve remission, as I see my TSH dropping into the hyper zone again, I am seriously considering surgery. Thanks again for your answers.

Ruby in Reno

[genuinruby]

in reply to: Dear Thyroid #1066845

LOL@Jake!!

Ski– you got some talent there!

Here’s mine:

There once was a girl in Reno
Diagnosed with Grave’s by the Endo.
At first skinny and mad,
Now chunky and sad
At least she can still enjoy vino!

[genuinruby]

in reply to: Hi, new here #1066863

Some of us have the extra specialness to carry the antibodies for Graves and Hashimoto’s. It is a rollercoaster ride. Like you I was first diagnosed with Graves, with the usual scans aand lab tests. But found that taking the Methimazol I went to Hypo very quickly. I would go off the medication (after consulting with my doctor, of course) and within a weeks time I felt wonderful. Only to start the cycle all over again. Research the medical term – Hashitoxicosis for a little more information. Most importantly, hang in there.

Ruby in Reno

[genuinruby]

in reply to: What’s that on my head? #1067151

…and you forgot to mention that you are also an acomplished author. ” title=”Very Happy” />

[genuinruby]

in reply to: no shining lights, only sharp pains #1067748

It doesn’t seem fair that just when we think we are at the place in our lives that everything is going just right…we get sidelined with an illness we not only didn’t ask for, but we didn’t even see it coming. But it is – what it is. We have the rest of our lives to reach all of our goals and it is important to take care of ourselves now so that reaching those goals will be possible. Any kind of chest pains should be mentioned to your doctor, ASAP. It is best to let the doctors help you get that sorted out. Hang in there….it will get better soon.

[genuinruby]

in reply to: Is it possible…? #1067815

"Roller Coaster Ride" is an understatement…and I have been doing my best to be a good sport about this for the past 2 years. My antibodies were off the charts on both the TPO and TSI when first diagnosed in fall of 2007. A year later they were down approximately 50%- yet still very high. I have been reluctant to get RAI due to my fear that I may still feel lousy, or worse. But I am so tired of not feeling well. Presently off anti-thyroid medication because my TSH is at the high end of "normal" ("normal–according to age old guidelines) and even though my TSH is in normal range I feel I go from hypo – to hyper at rocket speed. My racing heart complaints finally got me a low dose beta-blocker last month—which makes me even more fatigued. SO……any information you can glean from the upcoming conference will be so appreciated…..looking forward to hearing what you learn. Thank you.
Ruby in Reno

[genuinruby]

in reply to: New to Grave’s and think I’m losing my mind! #1067845

I just want you to know that you have come to a great place to get support. I assure you that you are not "losing your mind"…do try to keep the stress levels to a low roar, and know that this part of the illness is temporary. Hang in there.
~Ruby

[genuinruby]

in reply to: Artificial tears and eye makeup #1071905

I am enjoying a more "natural" l@@k these days….LOL

[genuinruby]

in reply to: how bad is bad- eyes? #1072156

I frequently get blurry vision right after I put in drops, especially if I wait too long. I have to re-wet my eyes in the middle of the night. Ofton I will use a gel type drop, and if they are feeling especially dry I will put in the ointment. I only use ointment when I am going to sleep because it definatly leaves things blurry. This was the reccommendation of the Opthamologist Neurologist. For me, the dryness, waxes and wanes, I just try to stay in tune. It goes the same with the swelling around my eyes. I spend my work day on the computer as well, in a very well lit room. Removing the flourecent light, directly over my workstation helped alot with the glare. Hang in there….

[genuinruby]

in reply to: ok what size did you enter your prof pic as???? #1072183

It took several tries for me, photobucket is a website that allows you to resize a picture by pixals, and then I right-clicked on "save as". I kept trying until I was able to upload the "right size". If I remember correct it came in as 75X 89

[genuinruby]

in reply to: Is it "just" GD…. #1072210

I was diagnosed in fall of 2007. And I too, was consumed with worries that there was something else wrong. I obsessed over every symptom and test results. As silly as it sounds, I didn’t want my endocrinologist thinking I was a fruit loop so I took copies of my lab/radiology reports to another doctor and quizzed him about my concerns. He answered my questions and I went back to my endo feeling a little more confidant of his treatment strategy. Fast forward to now, spring of 2009, the anxiety filled days from the beginning of treatment are a blurred memory. Hang in there, it really does get a little bit better every day.

[genuinruby]

in reply to: nightmares? #1072265

Thank you to those who responded, your insight is greatly appreciated. For a little more clarification, I dream every night, vividly, in color, always have, and yes, events of the day do entwine themselves in my dream stories. The "nightmares" I refer to are a series of dreams, all different, with a common theme. That I have had off and on since I was 17–I always wake up screaming. Yes, I have consulted with a therapist about this. I posed my question to this group because I noticed that the frequency of these particular dreams has increased extremely. I may have had one of these kind of dreams every 8-9 months or even go a year with out having one…but since I have been diagnoised with graves (one and a half years) I have been having them more and more often to where I am now having them at least once a week and sometimes more ofton. And believe me if there was a rhyme or reason why or when they choose to occure I would have found it by now. I do know that when I was in hypo-mode due to the anti thyroid medication the dreams were rare. This is why I was wondering if anyone else experienced something similar to this. Thanks again. Ruby

[genuinruby]

in reply to: Question for 12 month post RAI/ Surgery people #1072643

According to the Home Page of NGDF this website is committed to finding the cause and a cure along with providing "public education & professional education"
For me, this means a balance of information. I cannot make an informed decision about RAI if there is not any pro and con followup information. In spite of the mockery from the previous post, I truly appreciate the "healthy "people who choose to check in and give hope to the rest of us.

Thanks and please consider this topic closed.
Ruby

[genuinruby]

in reply to: Question for 12 month post RAI/ Surgery people #1072640

Thank you Elf, Ski and DianneW for your replies. Also, I am "Hopeful" and trying to remain "positive and calm" , DianneW, thanks for asking.

I think I may have asked my question the wrong group of people. I expected more responses. How can one know if RAI is the "answer" if there are not an appropriate balance of success stories?

[genuinruby]

in reply to: Lab tests #1073183

I found the site listed below helpful to explain the different kinds of lab tests and what they are used to test for. It does not list reference ranges. Keep in mind that there are many different testing facilities and they seem to all have diffent reference ranges. It is important to have a doctor you can "discuss" your health with. A good doctor may not have all the answers, but they will be willing to investigate on your behalf.

Hope this helps,
Ruby in Reno

http://www.labtestsonline.org

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