[genuinruby]

in reply to: potassium iodide drops #1064630

Thanks again everyone for tuning in. I did put my surgery on hold…I am holding at eurothyroid levels due to the last go-round with methimazole, my doctor agrees that I will never get balanced due to having the antibodies for both grave’s and hashimoto’s it has been nearly three years of trying. And you are all correct, some things are more important than work. My co-worker’s brother (they are very close) has brain cancer, and just as my appointment got close enough to start the drops, he was put on morphine and Hospice has stepped in… we can’t both be gone at the same time. More importantly, I don’t want to rush back to work when I may not feel up to it. I feel good about the decision, and when I talked to the sugeons scheduling aide, she said it was not a good idea to start the drops and not follow thru with a surgery. On the bright side…I am all ready to do it…got the surgeon, got the drops, will feel good about taking time away from work, when things get back to normal. Thanks again.

Ruby in Reno

[genuinruby]

in reply to: potassium iodide drops #1064627

Thanks Bobbi, I had looked around online and didn’t find a satifactory answer, LOL-you must have a better search engine than me. I had asked the pharmasist, and she really couldn’t tell me. She referred me to ask the doctor, which I will next time I am in there, but I needed to know TODAY. I have finally got the courage to schedule the surgery, got the drops, and now there is a crisis going on at my work that has made me consider postponing. Thanks again for your quick reply.

[genuinruby]

in reply to: Just found out I have Graves 3 weeks ago – Help #1064769

Jules,
I am no longer a rookie as I have been dealing with graves treatments for nearly 3 years and with undiagnosed graves for many years. I have hoarseness with hyper levels. It goes away when I reach eurothyroid level. Everytime I start taking methimazole, I get a sore throat.(no fever) It also goes away in a week or so. My doctors cautioned that if a sore throat and a fever develope then I needed to have a labtest to check my white blood cells. Here is a quote from wikipedia that explains:

"It is important to monitor any symptoms of fever or sore throat while taking methimazole; this could indicate the development of agranulocytosis, an uncommon but severe side effect resulting from a drop in the white blood cell count (to be specific, neutropenia, a deficiency of neutrophils)." This is very rare.

Welcome to our shared journey, I know it is overwhelming for you at this beginning part of the trip. Hang in there.

Ruby in Reno

[genuinruby]

in reply to: Tired of being tired #1064823

Mish5572 wrote:not that I have done anything to cause me to be tired. Lately it seems as though just walking up on flight of stairs slowly will leave out of breath. This afternoon I took my teenage daughter to the mall to by a bikini. We walked slowly and only went into a few stores, but at the moment I feel as though I ran a marathon. I am exhausted. Does that get better? How long does it take?

Michelle, for me, I don’t have every sympton, everytime my levels start dropping back into the hyper-zone. Getting winded just walking a short distance is one of those signs for me. It always goes away as soon as my levels go back to normal range. Of course, the first time it happened to me I thought it was due the the huge amount of weight I have gained. I tried to start exercising…lol..what a mistake that was.

[genuinruby]

in reply to: Grave’s afteeer treatment? #1064837

Thanks Ski, I was certain I could count on you to chime in. I hear over and over again things such as " I am in remission , since I have been off my meds for ‘x’ amount of months. But that would more likely be a case of eurothyroid rather than remission if I understand correctly. I personally have been eurothyroid off and on these past 3 years, but I have never felt well. So, if this is as good as it gets, I feel really sad. I don’t want to just feel "not-hyper".

[genuinruby]

in reply to: more use of this site family please post #1064908

Hi Cynthia,

Have you visited the Face Book group? There is a lot more interaction there with posting and questions and answers and most importantly for some -"venting". You can click on the Face Book link on the Home page right here of NGDF.

I am one of the many who checks into this board frequently, reading all the new posts, and yet, seldom comment. I have read numerous messages on various message boards for thyroid issues. I like this one best, because we have a great staff that volunteers their time to keep this board "honest". If I read it here, I can feel reassured it is information that can be backed up with research.

Ruby in Reno

[genuinruby]

in reply to: The Third Printing of Graves’ Disease In Our Own Words #1065244

Jake ,

You are wonderful living proof that our lives do go on.

Thank you!

Ruby

[genuinruby]

in reply to: Post-surgery update #1065286

AWESOME news….thanks for the update.

[genuinruby]

in reply to: Surgery Tomorrow, Yikes…. #1065312

Just know that we are all out here….sending you "positive thoughts and energy". Hoping all the best for you. Let us know how you are feeling soon as you can,

Ruby in Reno

[genuinruby]

in reply to: Recovery time? #1065427

Thanks for the comments. I know I will feel more drained than I do now…whew..lol…and it is a day to day challenge as it is. ” title=”Smile” /> I hadn’t thought about the half days, that may be a real good option. After nearly 3 years of unsuccessfully trying to achieve remission, I think I am ready for this option. I will keep everyone posted.

Ruby in Reno

[genuinruby]

in reply to: Switched Endo’s- very new treament plan…OPINIONS NEEDED! #1065707

In my journey I have met three types of Endocrinologists. The first one, immediatley wanted to radiate my thyroid, and withheld antityroid meds until I begged for relief. The second one, looked at me and said "your thyroid is not the cause of all of your problems" and now the third and hopefully final…wants to treat my symptoms and not my numbers. If I have learned nothing else these past 3 years, at least I have learned to stand up for what I feel is best for me. I have discovered that there is no way the doctors have time to review our charts completely …and they are very overbooked patient -wise. The clinic I go to has over fourteen thousand patients in their database. I have to be pro-active, and know all the how’s and why’s so I can understand what the doctor is reccommending, and make sure that it is what I want too.

[genuinruby]

in reply to: Question about Grave’s Eye Disease #1065961

Consider checking in with your primary care doctor to rule out whether or not it could be a sinus issue. I have been blessed with a mild form of TED which is slipping into the "cold phase" (diagnosed Jan 2008 after Graves diagnosis Fall of 2007), last December the pressure behind and around my eyes built up to where I felt that if I could just pluck it out of there I would feel relief. LOL Turns out that 2 rounds of antibiotics cleared it up, and it hasn’t been back.

Just my thoughts, hope you feel better soon.
Ruby in Reno

[genuinruby]

in reply to: Driving a car #1066103

Prior to being diagnosed, in the fall of 2007, I chose to quit my second job as a delivery person because I could not see the addresses and street signs properly. And the hyperness I was feeling kept me from being able to "focus"…a little hard to explain…but I felt very insecure driving at night.

[genuinruby]

in reply to: Low Light and Balance #1066188

I ,too, have had some intermitant balance issues in low light. I cannot really pinpoint the "whys’ –but– I have noticed a connection to it happening and having double vision. Which has also been intermittant these past 2 years.

[genuinruby]

in reply to: Very Sore Feet #1066575

me too….my feet are ALWAYS in extreme pain, I do my best to tune it out. I understand it is just inflamation. I went to a podiatrist who gave me a steroid shot in each foot, and reccommended orthotics. The shots helped for several weeks, the orthotics sit on the shelf, my feet hurt too much to wear them. Is this a connection to Graves?

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